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Celiac Disease
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Posted 7/18/2009 11:44 PM (GMT -8)
I was wondering about soy sauce??? I know soy is basically bad because of MSG, is there a Gluten free "good" soy sauce? My son who just found out he has CD is into sushi. Is sushi okay??? Sushi just isn't sushi without soy sauce and the hot green stuff. What about Milk in small quanities? How about Margarine or butter? How about pop corn? How about anything that you all, as those who have had this thing for a while, have learned?

Thank you in advance, Diane
Posted 7/19/2009 5:51 AM (GMT -8)
Always read labels! Anything with any form of wheat has gluten. I have seen GF soy sauce for sale, however for the little bit I use it has not made any difference, so I haave to say honestly I have not read the label myself. Nothing is wrong with milk in any quantity unless he needs to be lactose free, too. Same with Marg and butter. Pop corn is fine, too. Oatmeal in itself is GF but is processed usually where wheaat grains are processed causing contamination, so that is another thing to worry about. My husband loves oatmeal and has been eating the Walmart brand without any problem. He bought some Quakers Oats at Sams Club and they made him sick. I had read that Quakers was high in contamination. So you just need to learn what wheat products are and stay away from them completely and that in itself has controlled CD. Good luck. There are lots of stores online to buy GF products but they are expensive. However, they are tax deductible in the percentage that is above the ordinary cost of food. ie: a loaf of bread costs $2 and GF bread $5, so the $3 is tax deductible. Amazon has GF stuff but in large quantities. So try it first. I made a friend by advertising in the local Shopper paper to give away GF food my husband did not like. mk
Posted 7/19/2009 9:06 AM (GMT -8)
Thank you. I'm trying to gather up information for him. One problem he's always had is he's not a good cook. Typical single guy, he's lived on sandwiches, mac and cheese, fast food, Pizza, and dining out. He's been breaking the rules for a long time and paying the price for it too. He says he's tired of being sick and is ready to get serious. (knock on wood)

It disheartens me to hear about all the wives coking and baking, sharing recipes etc...I wish my son (27) had that "partnership" in this battle. He's 800 miles away...hey, ya know of any good Christian single girls in Salt Lake area who'd be up for the job??? Just kidding of course...well, mostly kidding.LOL
Posted 7/19/2009 9:23 AM (GMT -8)
Hi Diane,

LaChoy soy sauce is gluten free, I just had some last night. Butter is ok, but read the label and make sure no one else dips a knife in it and uses it on regular bread, cross contamination can make you just as sick. Most popcorn is ok but there again you must read the label. McCann's irish oatmeal is safe but it's more expensive.

Here is a link to safe and forbidden ingredients, you may want to print it and take it with you to the store.

www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html SAFE LIST

www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html FORBIDDEN LIST

www.celiac.com/articles/183/1/Additional-Things-to-Beware-of-to-Maintain-a-100-Gluten-Free-Diet/Page1.html ADDITIONAL THINGS TO BE AWARE OF

I hope this helps your son!
Posted 7/19/2009 10:59 AM (GMT -8)
Thank you!
Posted 7/20/2009 3:27 AM (GMT -8)
Occasionally, manufacturers will change the formula/recipe for a product that has no gluten and might slip some in. (Recently PREGO spaghetti sauce came out and said they would not state that their product was GF.........this is one of my favorites to use.) Make sure you glance over products that you normally use to make sure they have not changed the product.

We only use oatmeal that states GF on the label. Bob's Red Mill has some that have a Purple label that are GF. There are some smaller GF companies that also state GF on their oatmeal.

MrP and I both got very ill about 4 years ago with the CC issue on our store brand oats.

There was a print out I had from one of our support group meetings that showed the high numbers of CC on oats. Quaker was the highest and other brands as well.

If you choose not to go with specifically labeled GF oats, I feel like you will be playing Russian Roulette. It will depend on when the box you purchase was milled.............the first batch off of the mill after they ground wheat or the tenth.
Posted 7/25/2009 1:10 PM (GMT -8)
GMA, thanks for the note on oatmeal. I love oatmeal but Quaker's causes a worse reaction than a pizza would!

Diane, send your son to a natural foods store or even have him check the local grocery.

There are some very good frozen dinners now that are gluten-free and even some packaged foods that don't take tons of preparation. I just moved from a town that had an excellent little natural foods store with lovely baked goods, breads, and so many options!

Smart Choice also makes some GF frozen dinners.

Obviously, these aren't the healthiest options but they are better for him than ignoring the diet.
Posted 9/16/2009 5:55 AM (GMT -8)
I would love some bread that is gluten free. The Sprouts store where I live has some that is very expensive - 7.99. I hate to buy it and it taste terrible. Has anyone tried any gluten free bread that they like?
Posted 9/18/2009 5:57 PM (GMT -8)
gluten free soy sauce is called Tamari. If he would like to dabble in baking Bobs Mills makes wonderful "flours" to make wheat free breads and baked goods. Not sure where you are located but if you have a Trader Joes in the area the have lota of wheat free choices at very reasonable prices. Whole Foods is another great place to shop but you do have to shop smart as they can be pricey. I like pasta too and I have found brown rice pasta is closest to the real thing and I think better. Good luck!
Posted 10/11/2009 11:17 AM (GMT -8)

bojalaisgirl said...
gluten free soy sauce is called Tamari. If he would like to dabble in baking Bobs Mills makes wonderful "flours" to make wheat free breads and baked goods. Not sure where you are located but if you have a Trader Joes in the area the have lota of wheat free choices at very reasonable prices. Whole Foods is another great place to shop but you do have to shop smart as they can be pricey. I like pasta too and I have found brown rice pasta is closest to the real thing and I think better. Good luck!

My local WalMart carries Bobs Mills gluten free "flours" in addition to a number of rice based GF pasta types and they are very good too.
Posted 10/11/2009 7:55 PM (GMT -8)
Hi Diane,

I believe that Salt Lake City does not currently have a Trader Joe's (I heard they're trying to get one there), but they do have at least 3 Whole Foods Markets in that area. Whole Foods has a dedicated gluten free section, so your son might want to check that out. Also, if he's really serious about going COMPLETELY gluten free, you should know that it's non-trivial. Here's a great website that gives a very thorough "how-to" tutorial, which is important because gluten is hiding EVERYWHERE:

http://glutenfreegoddess.blogspot.com/2006/01/morning-after-diagnosis-that-is.html

Since you say he likes sandwiches, I should tell you that most store-bought gluten free breads are disgusting. If he thinks he might be up to using a bread machine (super easy) you might think of getting one for him for an early Christmas present! :) There is a really good gluten free bread mix that my family loves: Pamela's Amazing Wheat Free Bread Mix. He may find it in Whole Foods or it can be ordered on Amazon.

BTW, the easiest (and healthiest!!) gluten free diet is to just eat unprocessed foods: meat, eggs, fish, chicken, nuts, fruit, veggies, etc. Steak, baked potato, and salad is a gluten free meal....just watch out for those condiments and dressings!

Good luck to you and your son!

JoAnn

P.S. Even if oats are certified gluten free, not all celiacs can tolerate them. Oats have a protein that is similar to gluten called avenin, which cause a reaction like that caused by gluten in some people with celiac disease (me for instance). See:
http://en.wikipedia.org/wiki/Oat_sensitivity#Avenin-sensitive_enteropathy
Posted 11/9/2009 7:48 PM (GMT -8)
I don't know it you have it available where you are, but the best store bought brand of bread that I've had is called O'Doughs. It's the next best thing to white bread..and GF. I really can't tell the diff..it's good toasted, or non to be used for sandwiches...all the others I've tried haven't been that great. Good Luck.
Posted 11/19/2009 6:04 PM (GMT -8)
like bojalaisgirl said Tamari sauce is a soy sauce that is gluten free. Most soy sauce is really a wheat sauce.

In sushi the one thing you have to watch out for is fake crab called real crab meat. It has wheat in it. The rest of the fish is fine it's just the crab you have to watch out for.

wasabi sometimes has wheat in it also but this is easy to fix because there are ones without wheat. It is basically just horseradish.

I hope he enjoys his sushi. I know we do and we don't do Gluten Soy Dairy and beef. I have been off the stuff for years
Posted 11/19/2009 6:12 PM (GMT -8)
We have also used rice wraps instead of bread. Its fast and easy. Just soak the wrap for a few minuets and fill it with lettuce , meat whatever as you soak a second one to wrap over it again. I works best if you don't over fill. You find the wraps at Asian food stores It looks like a flat round wight thing that will break if not careful.
Posted 11/20/2009 6:38 AM (GMT -8)

This thread reminds me of a news blurb that was on earlier this week.  I forget which network it was, but they did a story  on celiacs and gluten-free products.  And they made the point that as a celiac, you do not have to purchase only specialty gluten-free items (located in the gluten-free section of most grocery stores).  In fact, the specialty gluten-free products are generally up to 3X as expensive.  There are many regular foods that you can enjoy--you just have to read the labels.

In my grocery store, the gluten-free aisle carries a brownie mix for $8!  Do I need a brownie that bad?  No.  However, when I went to look at the regular brownie mixes (I do bake using regular flour for my daughters), I saw that Betty Crocker makes a gluten-free brownie mix, and it was only $2.99 per box.  Specialty gluten-free products charge sometimes more than 3 X the amount of its regular counterpart.  I do buy some things in the gluten-free aisle (I love Glutinos gluten-free pretzel sticks), but most of the stuff I get is NOT from that aisle.

Posted 11/20/2009 2:03 PM (GMT -8)
Great point -- another money saver is buying GF pasta, cereal and flours on Amazon. You do have to buy more at a time, but with free shipping and 15% subscribe and save options we are saving major $$$$.
Posted 3/7/2011 7:50 AM (GMT -8)
Please try Udi's bread, cinnamon buns, and bagels. This will change your life. Your son will think hes gone to heaven after he makes a sandwich. I can't believe this is the only company that can make glueten free bread products that tastes great. They have nailed it.
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