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Celiac Disease
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Posted 7/23/2009 8:40 PM (GMT -8)
My son has Celiac Sprue so my doc made a comment today after my test that he must be adopted????  He was kidding ....but I do not have it so where did my son get it?  Is it from his father?  His father shows no sign of it?  Puzzled so does anyone know...
Posted 7/24/2009 5:00 AM (GMT -8)
Celiac disease is not always necessarily inherited. My husband was the first in his family to have been diagnosed. But then it was not so widely known about years ago either, so someone could have had it and not been diagnosed. Weren't you being tested for it? Or am I confusing you with someone else who posted they were having tests on the 23rd. That was yesterday so I hope we learn the results. MK
Posted 7/24/2009 9:34 AM (GMT -8)
Gma,  yes he did do a biopsy for celiac on me while he was doing the proceedure., so have to wait on that one. But he said my blood tests say that I do not have it.  Plus I thought from all that I can gather that you inherit it....so that's why I am asking???confused...thank you for  you input...
Posted 7/25/2009 1:06 PM (GMT -8)
I'm was the first in my family to be diagnosed.  Thus far, none of  my children have been confirmed to have it.  However, in the 12 years since my diagnosis, I've had several cousins who've been diagnosed.

It could still be hereditary (as in in your gene pool) without you or your husband actually having it.

Posted 7/25/2009 7:47 PM (GMT -8)
Wow, that's interesting thanks so much...
Posted 7/26/2009 8:51 AM (GMT -8)
I was the first in my family that was officially dx'd. My maternal grandmother died of small bowel lymphoma, which my GI said was almost certainly undx'd Celiac Disease.

My mother has a positive anti-tissue Transglutaminase test but negative EGD. She is on the gf diet.
Posted 7/26/2009 8:52 PM (GMT -8)
FamilyGuy, thanks so much for your responsse.  So far my son is the only one we know of with CS...and I am waitng for my results also...good luck to you...Leslie
Posted 7/30/2009 8:06 AM (GMT -8)
honestwoman50,

I am the first in my family but my family (my mother's side) has a history of chrons, lupus, gerd, heartburn, RA, lymphoma, colon and liver cancer. I can't help but wonder if they all stem from mis/undiagnosed Celiac disease. My mother has chrons and has recovered from lymphoma and refuses to be tested for Celiac for fear her diet restrictions will only get worse. I have brothers and sisters who seem to have symptoms associated with Celiac disease and even though I have tested positive their doctors do not feel a need to test them, go figure. My daughter was recently diagnosed as gluten intolerant and has been told to go on a GF diet, but her doctor (she is active duty USAF) has also refused to test her for Celiac disease stating she doesn't fit the profile. From what I have read online, you have a 10% chance if a direct family member (mother,father, sister or brother) has celiac disease and a 20%chance if an indirect (aunt,uncle etc) has celiac disease.
Posted 10/30/2009 2:49 PM (GMT -8)
I recently had a colonoscopy and had a biopsy on two palyps, which didn't show I had celiac sprue.  However, blood tests did show that I have it. 

I was diagnosed in 1990 with a gluten intolerant disease called dermatitis herpetiformis, but it has been in remission for about 4 or 5 years.  Up until that time, I had been on a gluten free diet.  During remission, I have eaten what I wanted.  DH is a skin disease, and when it was active, any gluten products would affect my skin.  During remission, I had no symptoms.  DH also affects the bowels, but while in remission, I didn't realize I was having issues, and only in the past year have I began having problems with my bowels, which initiated the colonoscopy.

My doctor's appointment this week also revealed to me that celiac sprue can also cause your liver enzymes to get out of whack.  I'm now scheduled for a liver biopsy to make sure my liver isn't out of whack.

Bottom line is there are many things besides diarrhea which are related to this disease.

Posted 11/15/2009 11:53 AM (GMT -8)
You can be tested for the celiac genes DQ2 and DQ8 -- you can carry these genes without having Celiac Disease, but you can not have Celiac without one of these genes.

Many things can trigger celiac -- virus, surgery, etc. Also there are celiacs that don't have severe symptoms for years, once diagnosed it connects the dots of many mild concerns in previous years.
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