What's the best way to test for celiac?

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happytoes
New Member


Date Joined Jun 2009
Total Posts : 9
   Posted 10/2/2009 6:04 PM (GMT -7)   
Just found out that my toddler is DQ2 positive, but DQ8 negative. I know that doesn't necessarily mean she has celiac, but i have a feeling that she may because of her symptoms.

It's all very confusing and I'm just wondering what's the best way to test? She's just 2, so I don't want to do any super invasive stuff - is there a way to get a definitive answer by blood test? Should we just do a gluten free trial diet? that's going to be really hard! But of course we'd do it if that's the best/only way to really determine if she's affected by gluten.

I'm also just about convinced that my dh has celiac - I've been begging him to get tested for YEARS. There is no way that he will do a gluten free test diet - what would you suggest as an easy first step for him? Is the genetics test really worth it? Should we do that saliva test and send it in so he doesn't have to be bothered going to the doctor? I just feel like we've done the genetics test for dd and now I'm just more confused than ever!

urgh - any advice? I'm pretty overwhelmed here. I'm now wondering about my other children as well, too. Should we all just do the genetics test and then go from there?

Thanks for any input :-)

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 10/14/2009 12:49 PM (GMT -7)   
Hi happytoes,

Probably a gluten free trial for both your daughter and your hubby would be best. If you're the cook, you DON'T have to necessarily tell him that the food is gluten free (I've learned to make absolutely anything gluten free, and people cannot tell the difference), but of course, he could always screw it up by eating out for lunch. :)

A gluten free trial could be as simple as feeding everyone gluten free food for a week, then re-introducing gluten and finding out if anyone feels sick (diarrhea, constipation, bloating, headaches, abdominal cramping, vertigo, etc, etc.).

If you do go gluten free, there are a few steps you need to take in your kitchen to eliminate cross-contamination. Please read the following blog post for great tips and info on how to go gluten free:

glutenfreegoddess.blogspot.com/2006/01/morning-after-diagnosis-that-is.html

Here are a few links to gluten free recipes:

crockpot365.blogspot.com/

glutenfreegoddess.blogspot.com/

joannsgfrecipes.blogspot.com/

A genetics test would be recommended for you, your husband, and your other children since your daughter may have celiac.

Your husband needs to understand that celiac disease is a very serious illness that can cause an incredible amount of damage. Not just to the intestines, but it can actually open the door for all sorts of other autoimmune diseases to develop later in life. Just count the number of AI disease in my signature line!!!

Please read the following article to your husband:

www.umm.edu/news/releases/zonulin.htm

Celiac disease can also cause neurological symptoms and permanent brain damage; people with untreated celiac disease have a much higher risk of developing certain cancers. There are a number of medical journal articles on many of the different problems associated with celiac disease (autoimmune thyroid disease, liver disease, RA, even lupus) which I have posted at the following link:

spider.ipac.caltech.edu/staff/joanno/med_pubs/

These may be downloaded in PDF format.

Good luck to you!!
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD. Possible lupus and/or polymyositis - diagnoses pending.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 10/14/2009 12:54 PM (GMT -7)   
P.S. If you want to have a "real" diagnosis, the bloodwork and biopsy must be done before you go gluten free. But please be aware the there are frequent false negatives with these tests, especially in young children. My granddaughter Carly was tested (blood and biopsy) when she was two.....came back negative. But they redid the biopsy at the age of three and she was positive!
Autoimmune hepatitis, Hashimoto's thyroiditis, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD. Possible lupus and/or polymyositis - diagnoses pending.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 10/18/2009 5:41 AM (GMT -7)   
EnteroLab.com also offers a non-invasive stool test for gluten sensitivity - this is how I was diagnosed. I also carry one DQ2 gene, but since I'm biopsy-negative for Celiac, I just consider myself gluten sensitive. I have no financial connection with EnteroLab.

Good luck,
-Razzle
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently trying to wean off TPN.
Meds:  Pulmicort, IV Ceftazidime, Heparin (to flush PICC line), Claritin, Domperidone, Colloidal Silver (used topically), probiotics, Milk Thistle, homeopathy.

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