celiac/lyme disease

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Oct 2009
Total Posts : 70
   Posted 3/4/2010 11:51 AM (GMT -7)   
I'm being treated for Lyme disease, My GP did a test for celiac disease that turned out to be  a 8.6,  normal range is 1-10 for this test. The test was classified as a weak positive. My GP said not to worry about it but the Lyme Dr. said "you have celiac disease as well as lyme" who should i believe. I'm surprised i tested high at all because i avoid gluten.

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 3/7/2010 2:47 PM (GMT -7)   
Hi hunter,

I would believe the Lyme doctor. Lyme disease can trigger autoimmune diseases.

Lyme Disease, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L4 and L5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate


Waiting In Fl
Regular Member

Date Joined Mar 2008
Total Posts : 178
   Posted 3/16/2010 4:09 PM (GMT -7)   
Your experience sounds similiar to mine. I can tell you I had lots of gastro symptoms, headaches, etc. that have been almost elimitated by living gluten free. My Lyme doc's actual dx was "gluten intolerence".

I don't really care one way or the other, all I can say is I have had amazing improvements gluten-free.

I hope this helps!
Bull's Eye Rash 9/07 (DX as cellulitis),Menningitis  10/07, Smptpms:headaches, extreme fatigue, insomnia,P DX "Depressed & busy mom" , Rheumotologist 2/08 Lyme test equivocal, LLMD seen4/08   Igenex Positive, Additional DX Ebstein Barr, Chronic Fatigue S, Adrenal Gland Deficiency,2 Rounds of Rochepin May 2008 &Summer 2008   December 2008

Veteran Member

Date Joined Aug 2007
Total Posts : 4399
   Posted 3/17/2010 5:40 PM (GMT -7)   
Most Lyme-Literate physicians recommend a gluten-free diet during Lyme treatment anyway, no matter whether a person has Celiac/Gluten Sensitivity or not.

I was diagnosed with Gluten Sensitivity based on stool testing prior to being diagnosed with Lyme, but have had the Lyme for a long time. I personally believe, in those who have genetic susceptibility, that Lyme can turn "on" the genes and this can lead to gluten related issues...and I believe the same can be true for other autoimmune conditions as well.

If you tested that high and have been avoiding gluten, then you may still be getting exposed to gluten through some other means, such as hidden gluten ingredients, skin care products, cross-contamination with non-gluten-free foods (shared use of utensils, toaster ovens, nonstick pans, etc.), etc.

Here is a link to a list of where gluten can hide on ingredient lists:

Good luck,
Chronic Lyme Disease, Chronic Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently weaning off TPN.
Meds:  Pulmicort, IV Doxycycline, Heparin (to flush PICC line), Claritin, Singulair, Domperidone, Colloidal Silver (topically & nasally), probiotics, Liver support herbs, Ailanthus, digestive enzymes, homeopathy.

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 16, 2017 12:34 AM (GMT -7)
There are a total of 2,906,026 posts in 318,913 threads.
View Active Threads

Who's Online
This forum has 158256 registered members. Please welcome our newest member, 1success.
251 Guest(s), 4 Registered Member(s) are currently online.  Details
George_, notsosicklygirl, Girlie, jeanneac