Advice re: tests

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Regular Member

Date Joined Feb 2003
Total Posts : 60
   Posted 4/20/2010 2:15 AM (GMT -7)   
Hi, please bear with me, this might be a bit long! I have had crohns disease for approx 12 years and i had a bowel re-section around 10 years ago. since then i have had constant diarreah and other symptoms which i have always attributed to crohns. Purely by accident i discovered that when i didn't eat bread most of my symptoms stopped (discovered whilst dieting). I started eating it again and they all came back. So i stopped again and have paid close attention to what i eat and it would seem anything wheta based is a big no no, i tried eating gluten free bread which also affected me so i thought maybe the yeast? Anyway i had the blood tests for coeliacs and they were negative but i have since found out that i should have been eating gluten when tested but i had stopped eating it several weeks prior to the test. My sister and my aunt both have coeliac and my symptoms are actually worse than my sis who can eat wheat sometimes whereas i have quite a violent reaction now if i eat even a small amount. Do you think it is possible that the tests were incorrect? I am now 15 weeks pregnant so i'm not willing to eat wheat again in order to repeat the tests accuratly. i have also now found that when cornflakes i get a reaction. I'm sorry it's so long but i wondered if anone could offer advice? Kelly x

Regular Member

Date Joined Mar 2010
Total Posts : 42
   Posted 4/20/2010 8:10 AM (GMT -7)   
Hi there,
If I was you I would go back and talk to your DR and explain whats happening and that you had cut down eating gluten before the blood test, just see want he/she says.
I know this prob not much help but I hope it has helped a little
Lee x

Veteran Member

Date Joined Aug 2007
Total Posts : 4399
   Posted 6/3/2010 4:12 AM (GMT -7)   
You can also do a stool test through - this test can detect celiac or gluten sensitvity within 1 year of starting a gluten free diet, so unlike the blood tests, it does not require you to go back to eating gluten to get accurate results. You can also do the Celiac gene test through this lab, and it does not require a doctor in order to get it can do it yourself at home (you just collect the sample and send it back in the special kit they send you).

Corn flakes may be cross-contaminated with gluten, or if they have malt in them, that is also derived from a gluten grain (barley, usually).

Also, yeast is a likely sensitivity for many with Crohn's, so yes, it is possible you will need to avoid or limit yeast intake.

I hope this helps...good luck,
Chronic Lyme Disease, Bartonella (clinical dx only), Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD ("Secondary Lupus-Like Syndrome"), Osteoporosis, chronic Lymphopenia, etc.; G-Tube; Currently on TPN due to bowel problems.
Meds:  IV Cipro, Heparin (to flush PICC line), Singulair, Claritin, Domperidone, Colloidal Silver (topically & nasally), probiotics, Milk Thistle, Magnesium, homeopathy.

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