It's true Buffymoon. My dad and sister can eat all of the gluten free processed foods out there...I can't touch them. Gluten free in the US does not mean true gluten free. Most is actually "gluten lite" and that's how they should be labeled. Here in the US, they feel that celiac's can tolerate up to 20ppm of gluten, even 5ppm makes me sick, and sick for weeks.
For celiac, the issue is more in the gliadin in the wheat, barley, and rye...some gluten intolerants can't have any gluten. All grains have some form of gluten, they have known that all along. Dr Peter Osborne has worked extensively with gluten intolerant people, he himself being gluten intolerant. He isn't able to eat any grains either. It has also been said, "If it looks like grain, and is used like grain, it is grain, stay away from it."
Once my intolerance to gluten was found, then the other intolerances fell into place, a little at a time. This last year has been the first time in over 10 years of being gluten free, that I can actually say I am feeling better. When I go on vacation to visit family, I take my own pan for cooking my chicken, I have to take my own almond milk (I can't tolerate the processed almond milks), etc. Yes, using another's pan that may of had some spice or seasoned salt used, will make me ill. It's a fact that bothered my family for some time, but now understand this is how I must be for my health.
I truly feel my sister, a celiac and dietician, had a difficult time believing me. My mom told me I was just being to careful, that I had to start eating the other foods and get my body used to them, then I would be fine.
Part of my issue, as I may have mentioned is leaky gut. My body's immune system sees many foods as the enemy and caused leaky gut syndrome. The candida diet has helped me so much, yet introducing new foods can be very tricky. For a time, I was able to eat winter squash, sweet potatoes, and pumpkin...then out of the blue sweet potatoes caused a reaction, then squash, then pumpkin, I no longer can eat any of them.
I truly believe when a doctor tells a person they are not celiac, they should tell them to go gluten free any ways and see what happens. The US is so far behind other countries in our knowledge of gluten...it's in it's infancy here. Dr. Peter Green stated (he didn't believe in gluten intolerance for a very long time) recently...gluten intolerance in this country is now where celiac was 30 yrs ago, there is so much to be learned!"