I do not believe that small amounts of gluten are harmful for me. I do not worry about touching bread, or kissing my husband. I have had small bits of gluten products (pain chocolate, blueberry muffin, crepe - tiny bites of each) without problems.
I have eaten restaurant food that I've tried to ascertain as gluten free and had a horrible time the next day. So I am very careful now with eating out.
I have liked Schar brand noodles the best. I am eating Udi's gluten free granola now, and Bob's Red Mill GF oats. I have tried some gluten-free bread but don't particularly like it. I just bought Glutino's GF pizza crust yesterday and stuck it in my freezer for the future. I do like Mary's Gone Crackers for a snack with cheese on top.
The Crohn's Disease, or IBD, that I have showed up on scopes. I am certain that I do not have Celiac disease. But I have consistently complained to my GI about upper gastric problems, and he offered no medical solutions. So I tried eliminating gluten and those problems have largely resolved. I still have motility issues and I just started using Senna at a very low dose to help that. So far, so good.
I am not planning to stop taking my Crohn's meds any time soon, but I do plan to talk to my GI about reducing the Pentasa to see what happens. It's making my ears ring and I don't like that. I might talk about a switch to Asacol, which shouldn't cause this problem. I started treatment for IBD first with Asacol, but it didn't solve the whole problem. Pentasa did a much better job, but still left me with some upper GI stuff. So now that I'm gluten free I think the upper GI stuff is going to be much better off Pentasa. We'll see.
49 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11.