Gluten intolerance and microscopic colitis

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oshkoshwriter
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Date Joined Feb 2012
Total Posts : 5
   Posted 2/1/2012 1:52 PM (GMT -7)   
I have been diagnosed with microscopic colitis (through colonoscopy) two separate times after a long bout with diarrhea, gas, bloating, etc. I was negative for celiac and the doctor says gluten intolerance would not cause this type of colitis. I am not at all convinced of this as part way into the diarrhea suffering, I stopped gluten. The diarrhea continued but the other symptoms stopped for the most part. I imagine the colitis being already underway was the reason for that. I am now on Entocort and have stopped most of the symptoms. Does anyone have experience with this? I am also lactose intolerant and use lactose-free milk. I find a lot of fiber hard to tolerate still and had a big reaction to a gluten free bar that contained malitol and sorbitol. Would be glad to find out about other people's experiences with these things. Sometimes it seems I can not eat ANYTHING without indigestion, burping and gas.

kazbern
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Date Joined May 2010
Total Posts : 8384
   Posted 2/1/2012 2:13 PM (GMT -7)   
If entocort is working then has anyone mentioned Crohn's to you?

Lots of people with inflammatory bowel disease are also gluten sensitive and lactose intolerant. It kind of goes with the territory.
*******************
49 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)Colazal (9 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11.

oshkoshwriter
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Date Joined Feb 2012
Total Posts : 5
   Posted 2/2/2012 6:57 AM (GMT -7)   
The biopsy showd collagenous colitis and not Crohns, but I appreciate your suggestion. I'm feeling so confused with all the opinions on whether or not gluten intolerance could actually CAUSE it or if it irritates after you have it. And how does reflux fit into this? I still have that even with no gluten or lactose and taking the entocort. Help!

kazbern
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Date Joined May 2010
Total Posts : 8384
   Posted 2/2/2012 7:54 AM (GMT -7)   
Reflux is pretty common, actually, although I totally understand your implicit connection between that and the gluten sensitivity.

I think when DRs are looking for celiac disease they are looking for a specific kind of damage to the villi in the small bowel, which is not consistent with what you have.

Entocort treats inflammation in the terminal ileum. about 80% of people with Crohn's have inflammation in the terminal ileum. I'm just making connections, not a diagnosis.

There are many people turning up with sensitivity to gluten that is not celiac disease. Wikipedia has some good information on this topic, although it is pretty technical. I am not certain how you could tell on scope the difference between someone who is gluten sensitive and someone who has celiac disease - I mean, are my villi damaged by gluten exposure? I don't think so. But I am clearly gluten sensitive. My rheumatologist did all kinds of bloodwork on me 5 years ago and swore I did not have celiac disease - he was very surprised at my last visit (a month ago) when I reported that I had significant improvement after 6 months on a gluten-free diet.

Lactose intolerance is also very, very common. In fact, every human being produces lactase (the enzyme required to digest lactose) as an infant, and then gradually produces less lactase as they age. With the exception of people descended from northern Europeans, almost everyone will be lactose intolerant to some degree in adulthood. Lactose intolerance may wax and wane day to day, meal to meal. However, if you have inflammation in the terminal ileum, where a lot of lactase is normally produced, you are probably going to be much more sensitive to lactose than you would be otherwise. That's my experience, anyway. My lactose intolerance was really the first symptom I had of Crohn's. Currently I am not very sensitive to lactose at all, and even had ice cream this past weekend without nausea. That's big news for me! I'm sure it is because my inflammatory bowel disease seems to be in remission, maybe helped by the fact that I've been gluten free for more than 6 months now.

Back to reflux. Sometimes our stomachs make too much acid, or the valve at the bottom of the esophagus is too relaxed. Take a ppi for a few weeks (like Prilosec) and see if you feel better. My reflux was worst when my inflammatory bowel disease was flaring. Now it's really not a problem.
*******************
49 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)Colazal (9 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11.

oshkoshwriter
New Member


Date Joined Feb 2012
Total Posts : 5
   Posted 2/2/2012 8:07 AM (GMT -7)   
Thanks a lot! You seem really well informed. I have done so much research my brain is spinning. You are quite right that reflux is very common and I have had it off and on for many years. Was on Prilosec for many of those years and then read about some of the harm it does so quit. It just seems to have gotten worse now. Seems everything goes wrong at once in there! Do you have relfux/more reflux when the bowel is inflamed?

kazbern
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Date Joined May 2010
Total Posts : 8384
   Posted 2/2/2012 8:14 AM (GMT -7)   
Yes, I seem to have more reflux problems when my IBD is active. I am not usually aware of bringing stomach contents up into my mouth or anything, but I'll have a lot of upper gastric pain. I had an esophageal stricture a few years ago that was very entertaining (NOT), apparently as a result of reflux.

Crohn's disease can occur anywhere from mouth to anus, so I've just assumed that when my Crohn's is active in my colon it's also active in my small bowel, and perhaps in my stomach. I took Nexium for a couple of years, got better relief from Prevacid, and then just quit all ppis when I started feeling better last year. But I also treat my Crohn's with the appropriate anti-inflammatory meds.

Entocort is a reasonable med to take for a few months, but not longer. It is a steroid, and after long term use you can start to have the same bad side effects as taking prednisone. You should work with your DR on figuring out what's going on and devising a safe medical treatment plan.
*******************
49 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)Colazal (9 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11.

oshkoshwriter
New Member


Date Joined Feb 2012
Total Posts : 5
   Posted 2/2/2012 9:33 AM (GMT -7)   
Like you, I almost never regurgitate anything but just a lot of burping and discomfort. The Entocort is a very short term thing. Less than 3 weeks. I started tapering from 3 to 2 after a week and then a few days later to 1. I appreciate your warning though! I have found that DGL before a meal is a good idea and am taking an enzyme product with fiber. Any experience with either of those?

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8384
   Posted 2/2/2012 9:46 AM (GMT -7)   
I don't know what DGL is. I don't take any digestive enzymes (I have taken Lactaid often though, and do appreciate its help in keeping me less gassy when I want a lot of dairy). I don't take fiber supplements because I've found they really bother me. I do try to eat a lot of fresh fruits and veggies, and I'm using gluten-free whole oats in most of my breakfasts.
*******************
49 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)Colazal (9 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11.

oshkoshwriter
New Member


Date Joined Feb 2012
Total Posts : 5
   Posted 2/2/2012 9:50 AM (GMT -7)   
DGL is deglycyrrhizinated licorice root extract (yeah, that's how you spell it!) and it protects the stomach lining and intestinal wall. It really seems to work. I think I heard about it from Dr. Oz

Colitis
New Member


Date Joined Jun 2014
Total Posts : 1
   Posted 6/27/2014 8:30 AM (GMT -7)   
It was years ago they told me , i had. Microscopic colitis.
It has not been any easy road.
Not a big person, but at one time i weighed 80lbs.
Food does not agree with me all the time.
Im weak , fatigue, cramps, etc.
I started taking ginseng vitamins ,& cut back on gluten foods.
I no longer have diarrhea & my inflammation isnt taking over my whole body.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 6/28/2014 11:28 AM (GMT -7)   
The colitis could very well be caused by gluten, it just takes 6 weeks to clear gluten from the gut tissue, and another 6-8 weeks (minimum) for the damaged tissue to heal.

In other words, staying gluten-free for a few more months may result in gradual resolution of the colitis.

Also consider fructose intolerance and SIBO (bacterial imbalance in the small bowel) as contributory issues to the diarrhea/colitis.
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube; TPN-dependent
Meds: Flagyl, Zofran, Essential Oils, etc.
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