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possible gluten intolerance or Celiac's

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Celiac Disease
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Mimi2Jack
New Member
Joined : Oct 2012
Posts : 7
Posted 4/9/2013 7:49 AM (GMT -8)
I was in the hospital Nov. diarrea, stomach intestinal pain. no vomiting. high fever.  Had a colonoscopy showed pan colitis, took biopsies, told I had pan colitis which he said was a viral infection gone bad.  7 years ago I was DX with fibro.  I have been at the doctor every month for either bronchitis or sinus infections, and now the intestinal issues. I get diarrea, severe fatigue.  Lost over 10lbs in two weeks.  GP said last week he suspects Celiac's or gluten intolerance.  Read up on it Saturday and am trying to keep gluten out of my diet.   Says it's ok for eggs, but now with what I read it could be a culprit.  But my GP said, the antibiotics are part of the problems.    strips my insides of the good bacteria.   I have constant feeling of acid.   burning in my esophagus.   But the fatigue is horrible.   It starts in the liver area with pain, I think it feels like kidney too.  Had a hysterectomy two years ago, surgeon puts blue dye on the bladder to make sure she doesn't nip it, and she called the  urologist in, she told him the bladder was thin, he claims it was normal.   I still think there is infection there unless it's inflamaation from my intestines.  As I am sure all of you have been in this frustrating place and many may have lost jobs over this also.    A lady cooking vegan (which I am not) had a doctor on and he claims that eating without gluten is good for everyone, he said the insulin doesn't get processed into the tissues or organs and that helps to create diabetes,  I thought maybe if I was put on a pill for that maybe things would get better,  my number is 133 at the time of the blood test.    But I am at the point of not trusting the doctors around here.   Especially after the Gastro doc said it was just pan colitis.   I don't have blood in my stools,  I was checked for C-diff back in Nov and they told me that's not what it was.  They found an abnormality on my right lower part of my lung while in the hospital and did not address it. And the pain always starts in the right side back flank area.  said this to the doctors repeatedly.  The hard part will be changing diet.   But most say they feel better after taking the gluten out.   But the foods that they are putting in the grocery stores are harmful to us all.

 But it's hard to have a job and husband, married children who need you to help them out and work at the same time and try to keep your job.  I didn't get a warning call yet, but policies at the hospital where I work are just that,  call, letter of warning, then suspension without pay.   which I am home without pay now.  I need the insurance there.  I keep my grandchildren Thursdays and Fridays to help my children out.  But I had to stop the pace back in sept. can't do it anymore,   as all of you, I want my life back.  only 56.

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kazbern
Veteran Member
Joined : May 2010
Posts : 8384
Posted 4/9/2013 8:05 AM (GMT -8)
Mimi2jack,

One thing at a time.

Neither gluten intolerance nor celiac disease causes inflammation in the colon. Please call your DR right away and ask for an appointment. You should be treating this inflammation with medication. Visit the UC forum for help on this.

Gluten intolerance and/or celiac disease occurs more frequently in people who have an inflammatory bowel disease. You can have a blood test to see if there are antibodies to gluten, or you can have an upper endoscopy so the DR can do a biopsy of the esophagus and verify whether you have celiac disease. More simply, you can eliminate gluten from your diet for a month and see how you feel. I caution you that with an inflamed colon you are going to feel bad whether or not you are eating gluten. If you eliminate gluten and feel better, you still need to treat the inflamed colon.

Gluten is present in any food made from wheat, barley or rye. Eggs do not contain gluten. Processed foods often contain gluten. Save yourself the effort of reading every label and just buy fresh, whole foods (fruits, vegetables, eggs, meat, dairy (milk, yogurt, cheese)). Skip the bread, bagels, breakfast cereals, frozen waffles, pizza, etc. It is hard, but I'm sure you can do it for one month. Meet with a nutritionist if you need more information.

Is your blood sugar high? Hopefully eating as I described above will help in that regard also.
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Mimi2Jack
New Member
Joined : Oct 2012
Posts : 7
Posted 4/9/2013 11:13 AM (GMT -8)
Thank you, but I had a lot of things in my post.   I was told I do not have colitis.I had a colonoscopy and they did a biopsy and it wasn't colitis.  My blood sugar as I wrote was 133.  which the GP isn't alarmed about and I was taking a supplement which was keeping it down.  I have an appt. with the gastro doctor who Dx me in Nov with pan colitis which is an infection gone bad from a viral infection he claims. But my pain started in the right side back which leads me to think it's liver for some reason and is the abnormality on my right lung actually on my liver.   Frustrated and confused as many others are on here.  but I needed to talk and that's why I wrote.   I was told that I could have lupus many years ago.  But the inflamation factor in my blood is what is throwing up stop signs.

thank you

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Razzle
Veteran Member
Joined : Aug 2007
Posts : 4415
Posted 4/10/2013 11:02 AM (GMT -8)
What inflammation factor are you talking about? There is more than one blood test marker for inflammation...

Colitis = inflammation of the colon. Yes, this can be from any cause.

Ulcerative Colitis or Crohn's Disease is an autoimmune inflammation of the colon, and that is probably what they said you did not have.

However, microscopic colitis - same symptoms as Ulcerative Colitis - can be caused by gluten.

And many other autoimmune diseases tend to be made worse from gluten.

And yes, gluten can also impair blood sugar processing.

Might try getting tested through www.enterolab.com for gluten antibodies.

And then I'd suggest trying a gluten-free diet for a few months (minimum 3 months) to see if it helps. Since the protein gluten is known to promote inflammation in the body, a gluten-free diet may very well help your symptoms improve.
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Mimi2Jack
New Member
Joined : Oct 2012
Posts : 7
Posted 4/12/2013 6:34 AM (GMT -8)
thank you for your replies.  I do appreciate it.  It was the D-diener that was so high and it was 3900. I was told it should be 500.  I have an appt. with an immunologist today, so I am going in full force.   I did go to lunch with a friend yesterday and had some bread, now today my skin is itcy, so it's telling me it is the bread/gluten.  So I have to go back to following what I was doing Since Saturday.   I also had some discomfort in my intestines/colon.   I am not a light person, but not overly obese either. I lost over 10lbs since last Monday.   I was praying to loose weight, but not this way.  With having to lay for six days and not do much, my muscles are weak too.    The food that is being processed and made these days is not good for us.  I am glad we live in the country where we have farm produce stands to get foods that aren't heavily sprayed.  So I will be canning somethings, I found a way to do them in the oven and it will be nice to have fresh foods free of so many pesticides.

thank you for caring enough to reply to me.   Don't hesitate to offer other suggestions. I am very open to suggestions for gluten free and other things with what tests need to be done.

  I do have fibromyalgia too, but I am thinking these things come from the allergy, which is what my GP said too.   I am just anxious for the immunologist appt today.   But the doctors in my area just aren't as up on things like city doctors are.  I found that out.  My friend lives near Rochester and she has a very good doctor who will test her for things, going beyond the CDC guidelines and testing her for things and giving her meds even if it's at the top or bottom end of the CDC's numbers for that particular test, that he feels she has  the disease.  I truly feel I have a thyroid problem, I have a cyst on the right side of my thyroid too and they won't biopsy it.  I get very hot and sweaty, then cold, my hair comes out when my symptoms get worse and I get sick.  I can't loose weight other then with getting diarrea, but then I may gain it back too.  But I am not eating near what I did before last week.  

  I was wondering if anyone knows about or has Leaky Gut Syndrome.  My GP never heard of it.  he said he isn't familiar with that.   It has the same symptoms of gluten intolerance and celiac's.   There is a test that can be taken, but my GP probably won't do it nor would my gastro doc because they aren't familiar with it.   this is when I want to say to the doctors I see around here, that they are redneck doctors because they don't want to bother with a second problem when they know it's there.  

thanks again

Deb

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Razzle
Veteran Member
Joined : Aug 2007
Posts : 4415
Posted 4/12/2013 3:16 PM (GMT -8)
Celiac or non-celiac gluten sensitivity can cause leaky gut. So can other food allergies/sensitivities.

There also is a strong connection between thyroid dysfunction and gluten tolerance issues (Celiac, etc.).

Have you been tested for Lyme disease?

I'm not familiar with the D-diener...gonna have to do some research on that one :)

Might also need to consider methylation issues or hypercoagulation of the blood (Lyme can aggravate these issues too).

And Lyme is known to trigger the onset of gluten sensitivity/Celiac.

BTW, one doctor gave a presentation and she said 95% of patients with Fibromyalgia have Lyme.

Unfortunately, the tests for Lyme are not very good...the best test is from Advanced Labs, it is a culture test. But it can still have false negatives...

Check out the Lyme forum here at HealingWell if you want more info on Lyme.
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mrsbugzy
Veteran Member
Joined : May 2012
Posts : 641
Posted 4/18/2013 9:18 AM (GMT -8)
Mimi,
Well, you don't have to avoid breads, pastas and stuff, just make sure they are made with the right things :)

Schar and Udi's have the BEST breads/rolls/bagels... and there are some really great baking mixes too!

Pamela's is good for LOTS of things..it is expensive, not gonna lie, but worth every penny!

I also like to use corn tortilla wraps for a lot of stuff as they are cheap and fairly tasty.
Mrs. Leepers has a great hamburger helper...

I tend to stay away from most Enjoy Life stuff, I don't like any of it. I know some people that do, but if you are just trying new stuff, avoid them for now.

I have NEVER had anything bad by Glutino...their crackers are great with cheese :) And I usually buy their other stuff too!

Remember to read everything....you would be surprised by where wheat hides...TWIZZLERS...really??????? Why on earth is the 2nd or 3rd ingredient wheat???????? Not fair! On the flip side, most all Hershey chocolate is safe :) WooHoo!

Any more questions, my email is on my profile!
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