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Pre-diagnosis Celiac

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Celiac Disease
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awolever
New Member
Joined : Feb 2013
Posts : 2
Posted 5/16/2013 9:37 AM (GMT -6)
Hi! I'm a brand new member and new to the gluten topic.
Here is my story in a nutshell:
Two years ago I was pregnant with my first and only child. I developed neuropathy in my feet and hands starting in the middle of my 2nd trimester. I just figured it was pregnancy related having never been pregnant before. It was a shooting, electric type pain with movement (stretching). That lasted my entire pregnancy. I had my daughter 11-6-11. The nerve pain continued and some muscle sensations occurred. I was referred to a neuro and had an appointment January 2012. All my tests were normal (blood tests, mri of brain/spine, nerve study, EMG). He just said idiopathic probably hormone related from pregnancy. I've work myself up into thinking I have a horrible disease (MS/ALS) even with normal tests. Went back to the neuro Jan 2013 for a recheck. All looked normal again. Had a repeat MRI, normal. Then I saw an article on Celiac and read some about it. I contacted my neuro a month ago about it. Was told to go gluten free and see what happens. I then added gluten in a week ago because he wants to test me. I was gluten-free since March. Some symptoms subsided. He wants to do a blood panel to see. I read that I being off gluten with throw off the results. I guess we'll talk more about that at my appointment tomorrow.
Here are the symptoms I had which leads me to believe this has stemmed from a gluten issue:
-Severe anxiety/depression
-idiopathic peripheral nerve pain with normal nerve study-has lead to buzzing sensation in legs (buzzing could be from excessive anxiety)
-unexplained infertility (took a year to concieve my daughter...ended up successful with Clomid)
-Headaches
-bad skin (redness & acne)
-triggered by pregnancy
-anemic (worse when pregnant)
-mild stomach issues
-gas
-bad insomnia
-constant allergy symptoms all year round
....and probably more.
I guess I just want to know a few opinions. When I added gluten back this week I started having headaches about an hour after eating, bloated belly, and constipated.
Thanks!!
Andrea
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Razzle
Veteran Member
Joined : Aug 2007
Posts : 4415
Posted 5/17/2013 10:11 PM (GMT -6)
The test likely will be negative...it takes consuming a lot of gluten for at least 6 weeks before the test to get a positive result...

A better test is EnteroLab.com - this is a stool test that can detect evidence of gluten sensitivity/Celiac up to 1 year after starting a gluten-free diet.

They also offer a cheek swab genetic screening for Gluten Sensitivity & Celiac genes.

And they have other allergy stool tests too - dairy, egg, soy, yeast.

I have no financial connections with EnteroLab, just am a happy customer...

Can't diagnose Celiac over the internet...but your experience suggests some kind of issue with gluten, whether that's Celiac or Gluten Sensitivity or wheat allergy I don't know...
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Recoveryme2day
Regular Member
Joined : Jul 2012
Posts : 335
Posted 5/18/2013 11:16 PM (GMT -6)
Just like a lot of other people on here will tell you, the best way see if you have food sensitivities, that's what they call it when you have all the symptoms but their tests come up negative, is to remove them from your diet for at least six months, if you feel a difference you can try adding them back in 1 at a time(gluten,wheat,dairy) and see if its just 1 or 2 or all 3 or others too. Those are the main 2 but there is also sulfite allergies and GMO corn and soy. Keep in Touch and read as much as you can about all this stuff because doctors are just "practicing."
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