I didn't go on gluten before the endoscopy. The endoscopy and colonoscopy were both "normal" - remembering that I had been completely gluten free for 7 months beforehand (except for the one episode where I went to hospital 5 months before). So after I got the clear results, I tried gluten again. It was hell. I went off it again.
So over the summer I tried to stay away from gluten... But there was a lady who kept on feeding me food with traces of gluten whenever I went to her place (which was one to three times a week) and I kept on feeling sick! I now know what she was doing.... She said she was doing this because she thinks all my symptoms are related to anxiety and depression and that consuming gluten wouldn't make a bit of difference to my health.
Well, once I knew this I thought - hey! Now would be a good time to be tested for Celiac because I've been having traces of it for 3 months now. The doctor ordered a blood test for TTG, IgA antibodies, total IgA, IgB antibodies and ANA. It showed that I am IgA deficient, Celiac and slightly autoimmune (ANA 1:160).
Upon receiving these results, I immediately went completely gluten free for a few weeks. (By the way, I only take my own food to that lady's place now.) Upon retesting, my ANA levels are negative (normal), and my IgA levels and TTG levels are all good again! I am definitely staying gluten free :) Oh, and did I mention that I feel million times better now!!! Gone are the migraines, neuropathic pain, nausea, stomach cramps, alternating constipation and diarrhea... The following symptoms are lessened: joint aches, muscle pain, headaches, insomnia, anxiety, depression, deep exhaustion, irritability, ridiculously heavy constant period has now subsided...!! And more... Can't remember them all... Oh, yeah! My mental capacity and short-term memory have improved :)
Not having gluten is the best thing ever for someone with Celiac! It's worth all the extra preparation and money and cravings...
That lady still wants to feed me gluten because "you can't diagnose Celiac disease with a blood test... You need an endoscopy and sigmoidoscopy." Well, maybe so - but I would have to wait 6 months on a waiting list like I had to last time, AND eat large amounts of gluten that whole time to make sure any damage showed up in my intestines. Sorry, but eating gluten is DEBILITATING for me, and it's just far too painful. Not worth it. I'd rather bear her derision, scorn and disbelief than the horrible symptoms that happen when I eat gluten...
As far as my two doctors are concerned (I have a GP and a LLMD), I definitely have Celiac. I was positive for TTG while on a diet with very low gluten consumption (except for the one wheat wrap I had 2 days before the test, which had quite a bit of gluten) and 97% of people with a positive TTG are Celiac as shown by biopsy. So yeah, going by that, there's a 3% chance I'm not Celiac. But there is other evidence. I've had my ANA tested every year for the last few years, and it's always been positive. But after being gluten free, it's negative!! And Celiac is an autoimmune disorder. I've had anemia 7 times in the last 3 years... But not since being gluten free. But the biggest thing for me is that I get the symptoms of gluten intolerance when I eat gluten, and these symptoms subside when I don't eat gluten.
Post Edited (Jasmine Grace) : 4/4/2014 6:05:58 AM (GMT-6)