Celiac Disease, Gluten Intolerance, or Something Else?

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StarFleetVeteran
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Date Joined Jul 2013
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   Posted 7/23/2013 1:24 PM (GMT -7)   
For the past month, give or take a week or so, I've had a growing pain in my left side (accompanied by a slight bulging), as well as nausea that seems to be getting worse. My stomach has felt tight and bloated, and I've been using the bathroom a lot more than usual. Sunday (7/21) it got bad enough to the point that I went to my local CareNow, and the doctor there, after giving me an exam, thought I might have a hernia or colitis, and suggested that I go to the ER and get a CAT scan. I went, got a full blood and urine workup and the scan, but none of them revealed anything really unusual. No hernia and my white blood cell count was okay, so they sent me home to see if it gets any better or worse. It's been about the same since then.

I've always eaten things when gluten, but never had pain or nausea like I've been having. However, in talking with my mom, we came to the conclusion that it may have started about the time we got some veggie meat made from soy, with A LOT of gluten in it. And over the past month, I've eaten quite a bit of it. From what I've read, these are all symptoms of Celiac disease or gluten intolerance, so I was wondering if anyone else has had the same issues, particularly with the pain located in one side and not the other. Also, I've decided to cut out gluten from my diet for a while and see if that helps, but I was curious if the pain/nausea lasting days or whatever after I stop eating gluten is normal, or if it should've gone away by now. And if it's normal, how long can I expect it to hang around, cause it's not too fun. Any help would be greatly appreciated, as this has had me pretty worried. Thanks!

Jasmine Grace
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Date Joined Jun 2013
Total Posts : 815
   Posted 7/24/2013 3:48 AM (GMT -7)   
If 4 weeks completely gluten-free doesn't help you, then gluten probably isn't the culprit.

If gluten isn't the problem, then:
Try going soy-free for 4 weeks to see if that helps. Personally, I can't tolerate soy and maybe you can't either.
Age: 18
Conditions: Fibromyalgia, chronic fatigue syndrome, chronic pain syndrome, irritable bowel syndrome, food intolerances, complex regional pain syndrome, anxiety, GERD, allergies, dermatitis, low immunity, tinnitus, restless legs syndrome, scoliosis, etc.
Goals: to be an occupational therapist; to explore the world.
"Reach for the moon; even if you miss, you will land among the stars."

pitarita
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Date Joined Oct 2013
Total Posts : 1
   Posted 10/14/2013 2:43 PM (GMT -7)   
I had my blood tested against 154 products at an independent facility and found that not only do I have a problem with gluten and lactose, but all dairy, soy, garlic, black pepper, baking yeast, brewers yeast, cantelope, honeydew, cranberry, etc. There are 25 food items that I am intolerant to.
The test was a little pricey, but I felt it was worth finding out why I wasn't getting any better.
Maybe you should look into this type of test as well.

GFINMI
New Member


Date Joined Oct 2013
Total Posts : 12
   Posted 10/18/2013 8:57 AM (GMT -7)   
What kind of test was it? I blood test?. What kind of independent facility ??? I am really curious because I wouldn't mind getting a test done like that myself.

UCandMe
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Date Joined Mar 2013
Total Posts : 589
   Posted 10/20/2013 6:58 PM (GMT -7)   
I had a test like this done by my nutritionist called MRT or LEAP testing. However she explained that this test shows items that cause inflammation in the body. I tested negative for gluten but am still intolerant to it. It is a useful test but, the blood test your GI would do or a gene test would better test for gluten. Keep in mind the gene test just shows predisposition not necessary current issue. Enterolab also does a gluten stool test that some use to test for possible intolerance.
Diagnosed Feb. 2013, proctitis, Female Age 44
Colazal, Colocort enema @ bedtime, Natures Sunshine probiotic eleven, Loloestrin 1 per day
Gluten, Dairy, Soy, and Corn free
Prior Meds: Canasa, Apriso, B12injections, Folic acid

jade09
New Member


Date Joined Feb 2014
Total Posts : 2
   Posted 2/12/2014 9:36 AM (GMT -7)   
the pain on the left hand side could be diverticulitis - the doctor suggested that's what I have. Look it up there's lots of info, but pretty much it's an inflammation in the large intestine usually from slow bowel movements. So if you've had diarreah maybe that was caused by the gluten or soy or something else :)

ezgoindude
New Member


Date Joined Mar 2014
Total Posts : 12
   Posted 4/3/2014 7:34 PM (GMT -7)   
If u don't mind me asking, when u go to the bathroom more often, is the stool looking normally as it always would?
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