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Celiac Results - please help interpret

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Celiac Disease
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Posted 3/27/2014 5:22 PM (GMT -7)
Hi,



I just returned from an appointment with my GI. She said I am negative for celiac, however, the copy of the test results I received said "supports a diagnosis of celiac." I am obviously confused. I went back to ask her why she said it was negative, and she didn't have time for me. Suffice to say, I won't be going back. But I do have these results and I'd like your opinion on how to interpret them.

(normal range in parenthesis according to paperwork)


Deamidated Gliadin Peptide Antibody - IgG - 43.0 EU (<4.9 EU)

Deamidated Giagin Peptide Antibody IgA - 9.3 EU (<6.1 EU)

Anti-hunman tissue transglutaminase igA - 75.0 EU (<10.3)

Anti-endomysial igA IFA - positive (range, negative)

total serum iGA by Nephelometry, total igA - 129 (<3 years, 8-220, 3-13 years 41-395, >13, 44-441)



One ellele HLA DqA1*05 of Dq2.5 detected, HLA DQB81*02 not detected.

Celiac risk haplotype not detected


I suspect because I do not test positive for the gene, she said I was negative for celiac? Any opinions? Would really appreciate any help!


For some reference, I blood test positive for a wheat allergy and I've been avoiding gluten for almost three weeks because I suspet celiac.



thank you!
Posted 4/2/2014 8:18 PM (GMT -7)
Hello,

Let me start off by saying I am not going to be able to help you yet, but I found the need to respond as I just had my blood drawn this week to a Celiac Complete panel test with HLA DQ2 and DQ8 test.  I will gladly compare the results when they get in sometime in the next week or so....

If I could ask what made you decide to take the test?? I've never experienced anything this dramatic before, the past few months have been smelly oily stools with occassional stomach burning, with a slow but progressive weight loss.  Every so often tingling/numbness in the legs and hands for no reason.  I've done both a endoscopy and colonoscopy with near perfect results, they noticed my duondenum was not normal looking and yet somehow my biopsy report came back normal?  The doctor is stumped and is looking at final test to see split this between celiac, crohns, microscopic colitis or an unsual infection, lol. 

Posted 4/3/2014 11:54 AM (GMT -7)
take a look at this transcript I think it will help was more than i can in this small post.

http://chriskresser.com/pioneering-researcher-alessio-fasano-m-d-on-gluten-autoimmunity-leaky-gut

You can test negative and still react to gluten and or other grains.

Good luck to you

P.S. Fire that doctor.

 

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