Please answer either question 1 or 2 or both according to your knowledge levels in the topics.
I have recently been diagnosed with Celiac based on these things:
•low positive TTG levels (20, which is borderline "negative") when on a low-gluten diet (traces of gluten)
•positive IgA antibodies (after considering that I am IgA deficient)
•ANA has been 1:160 for the last several years but is now negative/normal on a completely gluten free diet.
•I have many typical and atypical symptoms of Celiac when I eat gluten, and these subside when I don't eat ANY gluten AT ALL. (The symptoms still stick around if there are traces of gluten in my diet.)
•I have previously been diagnosed with fibromyalgia and irritable bowel syndrome (including intolerance to lactose, fructose, FRUCTANS, and galactans - determined by a dietitian over 9 months of an elimination diet when I was 15).
•All my atypical Celiac symptoms started with a flu-like illness when I was 16 - I'm currently being tested for chronic Lyme disease, since I have never before been tested or treated for Lyme, and it's been over 3 years now since I got "it", whatever it is that causes all my hundreds of symptoms that suddenly came on.
•BUT I have been diagnosed with IBS for 4 years longer (since I was 12) than when all the other symptoms started. I was experiencing IBS throughout childhood though, to the best of my memory.
•When I was a baby, I cried a lot compared to how much my other 3 siblings cried as babies. I was always regurgitating half my food until I was a toddler - and then my mum doesn't remember any more digestive problems, but my earliest memories start at about
2, and I remember the stomach cramps, nausea, headaches, constipation, diarrheoa and not wanting to eat because it hurt my stomach to eat.
Is this sufficient for a diagnosis? I have a nurse friend who insists that I need an endoscopy and sigmoidoscopy for her to believe the diagnosis. Which makes me just the tiniest bit uncertain of whether or not I'm actually Celiac. Maybe I have non-Celiac gluten intolerance?
I don't want to keep on eating gluten just so that I can have a positive biopsy. It's not worth the pain. I had a clear endoscopy and colonoscopy last year, after having been gluten free for 7 months, so I know there's nothing else wrong with my digestive tract except perhaps Celiac. (It was after the endoscopy that I started having traces of gluten.)
Before I went gluten free, I was having a lot of bowel/digestive problems. The doctor ordered a Bioscreen (stool screening) test which I haven't been able to afford to have done yet. Since going gluten free, I have been having what I'm pretty sure are normal bowel movements. Is it worth paying $300 for the Bioscreen test when my stools seem normal now? F.Y.I. I'm already in some financial distress.
Thanks everyone :)
Conditions: Celiac disease, Fibromyalgia, Chronic Fatigue Syndrome, neuropathic pain, FODMAP intolerances, allergies, anxiety, depression, acid reflux, dermatitis, tinnitus, and more.
Being tested for: Lyme, Lymphoma, Bartonella, thyroid disorders.
Goals: to be an occupational therapist; to explore and change the world. "Reach for the moon; even if you miss, you will land among the stars."
Post Edited (Jasmine Grace) : 4/5/2014 3:15:21 AM (GMT-6)