Celiac diagnosis; blood tests all neg, Marsh 1 biopsy?

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Cboogy
New Member


Date Joined Jun 2014
Total Posts : 1
   Posted 6/9/2014 9:59 AM (GMT -7)   
Has anyone else been diagnosed with Celiac disease solely based on Marsh 1 biopsy - increased epithelial lymphocytes? They found elevated lymphocytes in both small intestine and colon. All blood tests including IgA and IgG are definitely negative. I have not been tested for H. Pylori. I have IBS symptoms that do not improve on a strict gluten free diet. My symptoms (nausea, stomach cramps and burning, occasional stabbing pains) DO improve however on a low FODMAP diet and with lots of exercise. Is this a confirmed case of Celiac disease? I am not going to go strict gluten free unless I'm at least 98% sure it is Celiac and not something else, as I experience NO improvement on a gluten free diet. (I tried going gluten free for 10 years with no quality of life improvement).

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4937
   Posted 6/12/2014 7:46 AM (GMT -7)   
Welcome to the forum,Cboogy.

Were you on a gluten-free diet before the biopsy? Avoiding gluten negates the biopsy results. The other tests have improved recently, but the biopsy is still the standard.

cappuccinocurls
Regular Member


Date Joined Jun 2014
Total Posts : 230
   Posted 6/21/2014 4:31 PM (GMT -7)   
Ditto, you need to be eating gluten to get accurate results. Have you had an endoscopy or only colonoscopy?

Also, once you do the test and it comes back negative again, if that is the case, I'd go 100% strict GF to see if it really works.

My doc has said that some people never get answers. But don't eat foods you know are bothering you. Don't rationalize it

Is it gluten or carbs in general? I very carb intolerant, and sugars too. I'm getting tested for Lyme these days (total shock to me) but my allergist thought it could also be a candida overgrowth.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4400
   Posted 6/28/2014 11:35 AM (GMT -7)   
MARSH 1 inflammation can be caused by a number of different things, including early Celiac Disease. But other food allergies or dysbiosis in the gut can also do this...as can other diseases/conditions (IBD, etc.).

The FODMAP diet is good to try, but also should consider breath tests for h. pylori and SIBO...
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube; TPN-dependent
Meds: Flagyl, Zofran, Essential Oils, etc.
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