If you've been diagnosed, what are your symptoms?

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cappuccinocurls
Regular Member


Date Joined Jun 2014
Total Posts : 230
   Posted 6/26/2014 11:33 AM (GMT -7)   
 I've been blood tested. I had an endoscopy 2 years ago and called the office to find out if they ever did the biopsy (back when I ate wheat/gluten). My blood test came back negative and I was GF at the time so I know why. I am being tested for Lyme since I had a suspect blood result pop up. But the doc did ask me to investigate celiacs again since a lot of the symptoms can be similar.
 
My sister is working on a celiac diagnosis too. Only she has the chronic stomach pains if she accidently eats it and I usually have some stomach pain, but more of less neurological/brain fog symptoms.
 
So what happens if you eat it (and have been diagnosed officially?) I'd like to help out my sister as well who really (seem to) have the textbook symptoms compared to me & she has a GI that is pretty much worthless. BUT she also doesn't want to go back on gluten to get tested bc of all the pain it will cause

aliroseb
New Member


Date Joined Jun 2014
Total Posts : 9
   Posted 6/26/2014 10:09 PM (GMT -7)   
Endoscopy showed swelling but test was negative, gi suspects that I do have celiacs but I am so far not willing to go back on gluten to find out.
My symptoms are severe left hip pain, bladder pain, spine and shoulder problems made worse, blurry vision, break outs, left side cramping and pain, constipation which leads to hemorrhoids, racing heart, allergies and asthma made worse, probably some I am forgetting because they arent bothering me right now. If i accidentally eat enough I am usually sick for 3 weeks. Hope that helps.

cappuccinocurls
Regular Member


Date Joined Jun 2014
Total Posts : 230
   Posted 6/27/2014 4:15 AM (GMT -7)   
Ok thanks! I will call the doc again next week to see if they were able to track down my endoscopy papers. I was officially diagnosed with Lyme yesterday and I know that my food intolerances can go hand in hand. But my sister worries me....and it's weird that we both have similar symptoms.

aliroseb
New Member


Date Joined Jun 2014
Total Posts : 9
   Posted 6/27/2014 7:52 PM (GMT -7)   
That is weird but with an autoimmune disease I would think some of the symptoms could be the same maybe, just guessing. I too had myself tested for Lymes 2 years ago because nothing made sense, then when the digestive problems started a year ago it all came together for me mostly. I still have issues but I am better.
I wish you well and hope you are blessed with healing soon.

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2154
   Posted 6/30/2014 9:33 AM (GMT -7)   
Hi I was checking out the celiac board since I am having digestive problems.  I have lyme now for a number of years.  Just be very careful and aware of the inaccuracy of lyme testing.  A negative test result does not in fact mean you do not have lyme.  The current testing was developed for surveillance purposes and is NOT supposed to be used for diagnostic purposes.  However, most doctors are unaware or refuse to abide by those CDC guidelines. 
Lyme, HME, HGE, bartonella. 4+ years undiag. despite 10 drs.
Current meds: folbic, neurontin, cymbalta, Prior meds: bactrim, doryx, amantadine, amox, minocycline, tetracy, roxithyromycin. IV refused by ins. Supplements: boluoke, alpha lipoic acid, AG immune, magnesium, milk thistle, resistant microbes, cats claw
FEELING GREAT THESE DAYS! Hang in there - it does get better.

cappuccinocurls
Regular Member


Date Joined Jun 2014
Total Posts : 230
   Posted 6/30/2014 4:10 PM (GMT -7)   
Hello! I was diagnosed with Lyme via western blot and cd 57. I feel thankful that it actually popped up on bloodwork.

And it seems many Lyme people have food intolerances. I guess I am not alone.
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