Posted 10/10/2014 11:12 PM (GMT -8)
I've had GI issues off and on since I was a child. I'm 21 now and they're the worst they've ever been. It started a few years back where I'd get "attacks" of pain in the upper abdomen right in the center and then have difficulty eating for awhile but then things would be "normal" again. They thought it was an ulcer but it wasn't. Then they thought it was a hiatal hernia and after cutting me open, it wasn't. Fast forward to October of last year.. An attack happened and then even after the pain was gone I still was unable to eat. My stomach was extremely swollen all of the time and worse after eating. I was living off of liquids and saw a new GI doctor who said it was all in my head. I then went to another GI doctor who did a GES and found out I had moderate Gastroparesis, Small Intestine Bacterial Overgrowth, H. Pylori, and an esophagus that never closes. He treated SIBO and H. Pylori but I never got better. I'm always dehydrated now and barely eat a tiny meal a day. Any more than that and the nausea is too extreme that I dry heave until I have to make myself get sick. That GI offered no further help so I recently saw another. I've lost 19 pounds and am now down to 106.. I can't afford to lose anymore weight but yet this doctor doesn't know what to do either. He said my Gastroparesis isn't severe enough to do this. My stomach always is so swollen still that I look bigger now than I did before the weightloss which is alarming. Eating makes me look easily six months pregnant. Wheat is a huge trigger but I stay away from it and haven't received my celiac results yet. FYI I also have Lyme, Endo, IC, POTS, and Fibro. Does anyone know what could be wrong or what further tests can be done? Thanks in advanced for any help! Xoxo