Posted 9/22/2015 8:50 AM (GMT -7)
There are seveveral good celiac sites that can guide you. Things like GF hand lotion, facial sunscreen, and shampoo. Anything that might end up in your mouth. Always wash your hands before you eat anything. Carry GF snacks for emergencies.
Eating out, I am afraid, is out unless you find a gluten free 100% dedicated restaurant. Probably, this is why your antibodies are still high or higher. I know of one great one Tucson. Cross contamination is the issue. I rarely eat out. It is not worth the risk. It is like Russian Roulette. A glutening recently set me back two months! Remember, CD is an autoimmune disorder and gluten happens to be the trigger. It causes a "flare up" that can last a week or months! Everyone is different.
Consider eating a home for a few months. My husband and I will go out with friends, but we eat at home before and then order a drink at the restaurant. We have traveled abroad, but we mostly tailgate it. Grocery stores are our fast food (that and a Costco chicken).
Oh, my DGP result was around 80, but lab ranges vary so the number does not matter. I had no tummy issues when I was diagnosed -- just anemia and two months into my diagnosis -- spinal fractures from osteoporosis. I had little symptoms that resolved and I always attributed those symptoms to menopause, etc but they were celiac related.
I encourage you to research as much as possible. Buy a few good CD books and get you family tested! And I can not stress getting copies of your medical records. GI docs -- they are not always celiac savvy. I honestly think that mine had just attended a conference and was up to latest research and diagnostic protocol when he diagnosed me! Your doc may not have taken enough biopsy samples.