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Fatty Liver and Celiac help...

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Celiac Disease
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glutfreewen
New Member
Joined : Oct 2015
Posts : 4
Posted 10/3/2015 8:03 AM (GMT -7)
I was told 16 years ago my vili were flat and to avoid gluten.
I lost 65 lbs after going GF low carbs because I was over weight.

Now I am 134lb and 5ft7 16 years later.

I just found out my liver enzymes are triple what they should be. I've had chronic elev liver enzymes on and off for 18 years.

I got tested for ABC hepatitis and all negative.

I was taking many supplements/herbs, stressed at work terribly, and found barley grass in an a drink called super greens 8000 which i stopped.

I eat almost everything organic.

Breakfast I have an egg or apple and some raw almonds.
Lunch: organic spring mix lettuce with tomato, green peppers, olives, broccoli, nuts and GF salad dressing (which did have sucralose)
I was have sucralose products about 4x/day from low carb GF products/gum, etc.

Ultra sound showed fatty liver.

I was so discouraged because I eat healthier than anyone I know.

Doctor is unsure and says "it's in your genes"

Anyone else have any answers?
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cyclinglady
Regular Member
Joined : Aug 2015
Posts : 267
Posted 10/4/2015 10:30 AM (GMT -7)
When was the last time you had your antibodies tested for celiac disease? This will help you rule out gluten as the culprit for your problems. How long were you consuming the product containing barley grass and when did you stop? Are you sure all your supplements and meds are gluten free? Sounds like something is sneaking into your diet that contains gluten. That might explain your liver issues. At least rule it out and the antibodies test is best -- not just telling your doctor that you are diet compliant.

Last Spring news broke that many probiotics prescribed for those with celiac disease contained gluten. Here is a link to one article but you can research and find out more by googling:

http://www.consumeraffairs.com/news/study-finds-gluten-in-many-probiotics-051815.html

What I am saying is that your supplements might not be gluten free. If you are taking them, I would suggest you only use certified GF for a while. That is if you find that your antibodies are above range and gluten is your issue.
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glutfreewen
New Member
Joined : Oct 2015
Posts : 4
Posted 10/4/2015 12:08 PM (GMT -7)
Thank you so much! I will ask my doctor to run the the antibodies test to see.

Can you explain to me once I get it what I am looking for?
Will it tell me if there is still gluten in my system?
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cyclinglady
Regular Member
Joined : Aug 2015
Posts : 267
Posted 10/5/2015 11:42 AM (GMT -7)
Here is the complete panel:


-Tissue Transglutaminase (tTG) IgA and (tTG) IgG
-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG
-EMA IgA
-total serum IgA and IgG (control test)

-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests


Personally, I tested positive on just the DGP IGa test when I was first diagnosed (had moderate to severe intestinal damage). My TTG tests were negative. My doctor has to order the DGP test and not the TTG tests when checking for antibodies during follow-up visits. If you do not know which tests were originally given, then ask for them all.

Yes, it can tell if you are reacting to gluten. That is a good place to start. I got sick in July 2015. My symptoms were not my Orignial symptoms. I was pretty sure I was glutened but I could figure out what I consumed that glutened me. So, I went for the bllod test. Sure enough, it was gluten! My antibodies were very high. I suspect two products which were labeled gluten free, but not certified. I am not going to consume them to test! So, I live without those two products. I did recover from my glutening, but it took me two months. I thought I was good about avoiding gluten. My husband had CD too, but he did not consume those two products. So he never got sick.

Standard protochol recommends annual testing to insure dietary compliance.

Take care!
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