Need help. Can't have any grains. Gluten intolerance or celiqc? Also other qs

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goingcrazy
New Member


Date Joined Oct 2015
Total Posts : 7
   Posted 2/5/2016 4:18 PM (GMT -7)   
So I'm 25 yo male. Literally cannot have any grains. The symptoms I get are mostly extraintestinal - severe brain fog and irritability, insomnia, heart palps, night sweats after ingesting basically any grain. Mild but bearable pain in the abdomen. This is tested through years. I tested wheat, corn, Brown rice, basically any grain. I'm on my phone typing so mind the grammar if its bad...the only physical visible sign is mouth ulcers, tested for each grain, so I can tell if what I've eaten was bad.

Would you call this celiac or gluten intolerance or grain intolerance... I don't get diarrhea or throw up. Also if I go completely grain free I feel so much better, but after a while going grain free I develop insomnia...this is probably due to lack of mineral vitamin absorption so I recently bought a multivitamin. If I go back eating Brown rice I can sleep but have brain fog. Any suggestions on a good multivitamin I can take without too much vit c because I'm sensitive? Gosh I hate this crap. It's so hard to figure out.

Captaindd
Regular Member


Date Joined Nov 2015
Total Posts : 65
   Posted 2/5/2016 6:38 PM (GMT -7)   
You need to see a doctor and get tested for celiac and diabetes. I have problems with gluten intolerance and the carbs in rice sets of my diabetes. I can eat potatoes because they have list carbs than rice.
10/9/06 PSA.05 11/04/2010 PSA 1.8 10/22/2013 PSA 4.1 3/03/2014 PSA 4.4
10/08/2014 PSA 5.9 VA 11/10/2014 PSA 7
11l20/2014 Started Gluten Free Diet Weight 268 Pounds
12/12/2014 Biopsies Parts 1,2,3,4,and 5 Benign Part 6 Positive 10% Gleason Score 3+3
3/32/2015 PSA 5.1 9/16/2015 PSA 9.0
9/17/2015 Stopped eating red meat,dairy, eggs,chicken,turkey 11/09/2015 PSA 10.5
12/18/2015 All Biopsies negative

TroubledTurds
Veteran Member


Date Joined Jan 2004
Total Posts : 8028
   Posted 2/6/2016 8:41 AM (GMT -7)   
i agree with the cap as far as getting tested, although it doesn't sound like celiac, but you obviously have some kind of sensitivity/intolerance -

definitely some blood work is in order -

what is your diet like sans the grains ?
dx'd with pancolitis 12/21/03
current supplements:probiotics, vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with :-)

goingcrazy
New Member


Date Joined Oct 2015
Total Posts : 7
   Posted 2/6/2016 10:06 AM (GMT -7)   
I honestly don't think it's diabetes, I've been tested for blood sugar twice... One was in the range of normal fasting blood sugar and one was outside the range but not by much, however, I wasn't fasting for both tests so those results were actually better than expected.

Also I am 6 foot male 154 pounds so in pretty good shape visibly ,not too large for diabetes or too small for the other type, I think.

My grain free diet is pretty good, I would think I'm getting most vitamins but probably not. Typical day, eggs cheese turkey omelet, broccoli cheese and potatoes soup, apple, pear, white or sweet potatoes, spinach or asparagus and maybe salmon or chicken.

I can have white rice without problems I believe, recently started having that at night because I thought I wasn't getting enough carbs. However it didn't help with sleep. Than I can go back to my semi old diet with rice chex cereal and sleep really well, which makes me think I'm lacking some vitamin/mineral. Just bought centrum today and will see how it goes.

Also not too hyped about getting celiac tested which requires you to eat gluten right? So not going down that path, I already know I need to follow a certain diet so I just assume I have gluten intolerance maybe celiac but same diet required.

I also know I absorb things really well, isn't celiac anti absorption in your intestines?

SLLRunner1
New Member


Date Joined Dec 2015
Total Posts : 11
   Posted 3/4/2016 6:53 PM (GMT -7)   
juststud said...
i agree with the cap as far as getting tested, although it doesn't sound like celiac, but you obviously have some kind of sensitivity/intolerance -

definitely some blood work is in order -

what is your diet like sans the grains ?


How can you tell that this does not sound like celiac when there are over 300 symptoms, and sometimes celiac exists with no symptoms at all? Where or not it's celiac or something else calls for a medical evaluation.

@goingcrazy, the only way to tell if you are celiac is to get tested for it. Nobody here can really tell you whether you have it or not.

Have you you consulted with your doctor regarding the symptoms? Have you been tested? Do you know of anyone else in your family that has celiac disease? It is hereditary.

I encourage you to ask your doctor for a referral to a GI doctor to find out what is going on with your heath. Good luck. :-)

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 4/25/2016 8:56 AM (GMT -7)   
I would suggest looking into some form of probiotic which will help repair your digestive tract. I eat homemade sauerkraut and drink kombucha tea to give me the probiotics my body needs. I like to consume the foods which contain probiotics but there are supplements you can take. For sure leave the grains and sugar alone until you repair your digestive tract. If you have a leaky gut it is hard to get the vitamins and minerals your body needs.

idealist
New Member


Date Joined Apr 2016
Total Posts : 1
   Posted 4/30/2016 11:42 AM (GMT -7)   
I have been a celiac since 2003. Stomach pain and gas lots of gas with bloating are the normal symptoms with diarrhea. Have a Lower GE examine with biopsies will give you the diagnosis. If you go off of gluten you will not test positive unless you are still ingesting gluten without know it.
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