Diagnosed 3 years ago. Gluten-free since. Symptoms are only worse. Help!

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New Member

Date Joined May 2016
Total Posts : 1
   Posted 5/10/2016 1:25 AM (GMT -6)   
As for many of you here, it's a cry for help. Today I heard from yet another doctor "you should seek the second opinion". 3 years of gluten-free diet, probing elimination of other foods, unexplainable weight gains and weight loss (but mostly weight gain), extreme (think 8 months pregnant) bloating frequently even after drinking plain water, gas, fatigue, extreme hunger that never gets fulfilled, and the worst of all feeling hopeless....

What do I do next? So much money has already been spent on tests, biopsies, medications... Trying to maintain decent shape is impossible. Enjoying life has become increasingly difficult.

I am hoping there's someone out there who's been through similar stuff and found cure or something to turn this around. Please ping me if that's the case. I'm losing it...

Regular Member

Date Joined Aug 2015
Total Posts : 211
   Posted 5/12/2016 11:09 PM (GMT -6)   
After three years, you should have improved by now. Are you sure you are actually gluten free? Do you ever eat out? Are your medications and supplements gluten free? Do you eat GF processed foods? How much? Have you had follow-up antibody testing to see if you are diet compliant?

Post Edited (cyclinglady) : 5/12/2016 10:15:02 PM (GMT-6)

New Member

Date Joined Jul 2016
Total Posts : 6
   Posted 7/14/2016 9:10 AM (GMT -6)   
Have you had gastrointestinal testing?? Endoscopy..etc?? Also, do you have any other symptoms like overall muscle and joint pain? Fibromyalgia patients do have some of your same symptoms.

Regular Member

Date Joined Aug 2016
Total Posts : 221
   Posted 10/21/2016 3:04 AM (GMT -6)   
Have you read Wheat Belly? Not the first one but the one called Total Health. The author touches on some really interesting things such as intolerance to ALL grains and even sugar. He also talks about gut health and the importance of the guts microbiome. It really helped me with my gas and bloating and even the weight issues.
Diagnosed with Borrelia Oct 2016 through iSpot Lyme blood test, suspect Bartonella as well.

Veteran Member

Date Joined Sep 2014
Total Posts : 534
   Posted 3/6/2017 8:28 PM (GMT -6)   
Have you tried a probiotic supplement?

mary poppins
New Member

Date Joined Oct 2017
Total Posts : 2
   Posted 10/10/2017 8:40 AM (GMT -6)   
Have u tried taurine and zinc carnosine?

New Member

Date Joined Oct 2017
Total Posts : 9
   Posted 10/14/2017 4:19 PM (GMT -6)   
i was diagnosed with celiac at the start of the year and it took me about 6 months for my stools to return to normal , i still suffer with fatigue but it wasn't till i figured out that corn and soy also make me react even the tiny amount of corn starch in my medication makes me sick not diarrhea but the almost dream state that i go in when i ingest something that has a reaction . Make your diet as simple as possible , all i eat is meat rice and vegies' i don't even use the cutlery or plates pots n pans etc in my house that everyone else uses i have my own and i wash them with my own sponges lol , hang in there it could be one tiny thing that is making you feel this way .
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