Does this sound possible?

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ILEDE
Regular Member


Date Joined Feb 2012
Total Posts : 66
   Posted 6/6/2016 9:13 AM (GMT -7)   
Hello Everyone,
I normally post in UC forum but for the past few months my symptoms have not followed my classic UC flare type.

Is it possible to have celiac and be able to eat a very small amount of gluten (a hamburger bun) and be somewhat ok (except for bloated feeling) and when having a bigger portion or amount of gluten (bowl of pretzels, huge amount of cereal, big size of pasta) be plagued with horrific diarrhea, cramping, and urgency about 8 hours after ingestion? This was what I noticed with my food diary. But oddly the small amounts do not produce the more severe symptoms.


Also, I'm 39, never noticed a problem until recent bout of terrible food poisoning. Is that common?

I'm having my scopes soon but want to try and figure things out myself.

Thanks so much for reading and I hope someone can relate or provide insights.

cyclinglady
Regular Member


Date Joined Aug 2015
Total Posts : 151
   Posted 6/9/2016 11:22 PM (GMT -7)   
When I was diagnosed with celiac disease, my only symptom was anemia -- no intestinal issues at all. The only way for to know for sure is to get a celiac blood panel (antibodies). Here are the tests:

http://www.cureceliacdisease.org/screening/

Be sure to keep eating gluten until all testing is complete! And yes, you can have more than one autoimmune disorder!

Good luck!

ILEDE
Regular Member


Date Joined Feb 2012
Total Posts : 66
   Posted 6/10/2016 4:42 AM (GMT -7)   
Thank you CyclingLady for the great tip on the blood tests!
That is very interesting your presenting symptom was anemia. Did you or have you experienced any gastrointestinal problems because of gluten? Do you follow a gluten free diet? Does the anemia get better?

Thank you and I appreciate your response!

cyclinglady
Regular Member


Date Joined Aug 2015
Total Posts : 151
   Posted 6/10/2016 4:35 PM (GMT -7)   
My anemia, which was severe, resolved within six months of being gluten free. The strange thing is that now when I accidentally consume gluten (usually cross contamination), I now get gastrointestinal symptoms. It has been a year since my last glutening. Also a year since I have eaten anything that I did not prepare myself.

Two months after my celiac diagnosis, I started fracturing my back doing nothing. Osteoporosis is a result of malsorption, like iron in my case.

Everything is good now. I have been gluten free for over three years.

ILEDE
Regular Member


Date Joined Feb 2012
Total Posts : 66
   Posted 6/10/2016 8:11 PM (GMT -7)   
That sounds really bad- the anemia and the fractures. Thank goodness you have things back on track. I'm amazed that it's been a year of eating only foods you've made. I wish there were more gluten free options for restaurants and eating out. Since I've been dealing with my issues I've found myself preparing my food more and eating out less as well. It's got the pluses and minuses.

Well, thanks again for your help and take care!
39yrs. old female
Diagnosed: Left sided UC 5/2011
Current Meds: Asacol HD 4800mg every day, VSL #3, Rowasa evening, Tumeric, Vit D and B Complex, psyllium husk powder, occasionally boswellia extract, B-complex, and canasa and now a course of xifaxan.
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