Is anyone else anemic?

I was just wondering if others are anemic. I am just trying to figure out where I'm at in this dreadful disease. I liked it much better when doc would blame ibs or having no gallbladder. I just don't understand how I went from being so active & productive to this. I am down 10lbs I weigh a whole 108lb & that is with clothes! I went to gp the other day & tried to tell him how bad I feel & all I got was the only thing wrong with you is you have celiacs disease & ibs you need to get your nerves under control! Well if I would of had a compitant doc the last 13 yrs that would of listened to me instead of dumping everything into ibs maybe I wouldn't be in this shape! Sorry for the rant I'm just so frustrated. I go see gastro next Tuesday & I cannot wait. My daughter in law works there & thinks he would be the best fit for me because he also has celiacs. If nothing else he should be compassionate.

Straydod, what do you do for the anemia? So far my gp has just told me to take multi vitamin. It's not working. My muscles feel drained, I'm jerking & twitching, can't sleep. How in the world do people work when they have this? My doc did not even refer me to gastro. I pretty much had to step on his toes & had my daughter in law get me in. Then my doc told me I didn't need scoped that I was checked & cross checked that it is celiacs. I'm going to let gastro do what he needs to.

Yes I know he has. That's why I made my own gastro appointment. He has not even checked my b12. Do you think it would hurt for me to take some otc b12?

Dana, I would wait & see what the gastro thinks needs to be done scope wise. My neighbors daughter had various scopes done in order to get the correct diagnosis. Trying to rely on labs alone is not the proper way to diagnosis this. If you are trying to go gluten free at the moment I have to wonder how it will affect future testing, I am not sure.

I would not take B12 without having the proper labs done, may be something the gi can check if he orders labs.

Take care.

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Susie
Moderator in Chronic Pain & Psoriasis Forums

Hi! I see this is from February but I just joined. I was told I have Celiac back in 2009 and have been gf since. I also take supplements, including iron and magnesium citrate (citrate is good for me because I have constipation due to a long and twisted colon). If you have fast digestion you may need a different kind of quality mag. Recently I started B complex and a kelp supplement because I'll try anything to fix my psoriasis, and that is actually improving now. I take lutein for my eyes as well, and also a probiotic. When I was underweight and couldn't gain back after having my gallbladder out, I needed to take L-glutamine to fix my leaky bowel. Very helpful in just a couple of months. I don't take that anymore. I stopped or cut way back on dairy while I was healing as well because it caused digestive distress. I can tolerate dairy okay now, but use lactose free whenever possible. I take turmeric on food every day. You need to take it with a healthy fat and fresh ground black pepper though. I know it may take a lot to feel better and everybody is a little different. I hope you figure out some things to help you because few doctors have been useful for me at all, but other Celiacs have been helpful

My son has Celiac disease. He had anemia - very low ferritin blood levels. It took 9 years for a diagnosis because the Dr. didn't even think about Celiac being a possible cause of low ferritin. - Finally he was tested ...he had very high TTG antibodies. No biopsy done. When he was undiagnosed - he was supplementing with iron, but could not raise the Ferritin much.

Went on a GF diet...and it took over a year for his intestines to heal and the antibodies to drop to a normal range..and his ferritin to come up.

It's now been 15 years since his diagnosis...he gets periodic TTG and Ferritin testing done...and hasn't had an issue. He doesn't need to supplement with iron anymore.

A scope isn't always necessary.

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Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi