Can someone explain the different celiac tests?

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astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5198
   Posted 2/24/2018 4:18 PM (GMT -6)   
Cycling lady posted this before www.cureceliacdisease.org/screening/

Since I seem to be gluten sensitive, but not fully intolerant I would like to understand the variety of tests for this a little better.

I happen to be fairly thyroid "savvy", and its funny how so many Drs just minimalism testing (short cuts) for both of these conditions.

A great site to understand thyroid is stopp the thyroid madness, dioes such a site exist for gluten/celiac- basic, easy understanding?

Ten years ago, I had one gastro/digestive Dr say Gluten sensitivity "is only a fad only existing in peoples minds" LOL.

Wow...clueless Dr., as we know he's completely wrong. He didnt know what Roundup Herbicide was either. I'm not joking here.

thanks

cyclinglady
Regular Member


Date Joined Aug 2015
Total Posts : 211
   Posted 2/25/2018 1:01 PM (GMT -6)   
Google celiac disease forums and you can typically find some pretty active sites that are strictly dedicated to celiac disease. Then there are several celiac non-profits which are more or less geographically based.

Here are two sites that breakdown the celiac antibodies testing:

https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/screening/

https://www.niddk.nih.gov/health-information/diagnostic-tests/celiac-disease-health-care-professionals

Know that some celiacs are seronegative. Som are IgA deficient which can impact the IgA celiac tests. These are some of the reasons that an endoscopy is still the gold standard in obtaining a firm diagnosis for celiac disease.

Non-Celiac Gluten Sensitivity? It may be real per celiac experts. They just have not figured out a way to test it. They get to that diagnosis by excluding celiac disease. Recently, they have been looking into a FODMAP issue, which includes wheat. More research is needed! Unfortunately, I just attended a meeting with the 2017 Present if the American GI Association. The number of research project is dwindling, which is a shame. Since they know celiac disease is definitely genetic, they might be able to solve other autoimmune disorders.

Post Edited (cyclinglady) : 2/25/2018 11:52:39 AM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 34685
   Posted 2/26/2018 2:56 PM (GMT -6)   
astroman said...
Cycling lady posted this before www.cureceliacdisease.org/screening/

Since I seem to be gluten sensitive, but not fully intolerant I would like to understand the variety of tests for this a little better.

I happen to be fairly thyroid "savvy", and its funny how so many Drs just minimalism testing (short cuts) for both of these conditions.

A great site to understand thyroid is stopp the thyroid madness, dioes such a site exist for gluten/celiac- basic, easy understanding?

Ten years ago, I had one gastro/digestive Dr say Gluten sensitivity "is only a fad only existing in peoples minds" LOL.

Wow...clueless Dr., as we know he's completely wrong. He didnt know what Roundup Herbicide was either. I'm not joking here.

thanks


Astro - when my son was diagnosed he had the anti-transglutsminase antibodies test done and his number was so high they stopped "counting" (over 200)

His symptoms were constipation and low ferritin levels. Took 9 years to get the disgnosis.
In hindsight we now believe there were a few more symptoms that we didn't realize.

As soon as we saw the blood test results, I immediately put him on a gluten free diet. A couple months later we took him to a Pediatric gastro who said the "gold standard" was a biopsy of his small intestine (tube down his throat to collect sample). But he had to go back on the gluten for a few weeks prio to the test - eating gluten daily,
We declined - I did not want to damage his gut further for a confirmation test.
Our son didn't want the test either - we made him promise that he'd be on a gluten free diet for life.

It took many months (a year?) for his antibodies to get under the top end of the scale of 200 (I was told they stop counting at 200) and many more months for it to get in range which I think is <20.

His ferritin also came up and his constipation went away.

That was all the "proof" we needed.
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