Cycling lady posted this before www.cureceliacdisease.org/screening/
Since I seem to be gluten sensitive, but not fully intolerant I would like to understand the variety of tests for this a little better.
I happen to be fairly thyroid "savvy", and its funny how so many Drs just minimalism testing (short cuts) for both of these conditions.
A great site to understand thyroid is stopp the thyroid madness, dioes such a site exist for gluten/celiac- basic, easy understanding?
Ten years ago, I had one gastro/digestive Dr say Gluten sensitivity "is only a fad only existing in peoples minds" LOL.
Wow...clueless Dr., as we know he's completely wrong. He didnt know what Roundup Herbicide was either. I'm not joking here.
Astro - when my son was diagnosed he had the anti-transglutsminase antibodies test done and his number was so high they stopped "counting" (over 200)
His symptoms were constipation and low ferritin levels. Took 9 years to get the disgnosis.
In hindsight we now believe there were a few more symptoms that we didn't realize.
As soon as we saw the blood test results, I immediately put him on a gluten free diet. A couple months later we took him to a Pediatric gastro who said the "gold standard" was a biopsy of his small intestine (tube down his throat to collect sample). But he had to go back on the gluten for a few weeks prio to the test - eating gluten daily,
We declined - I did not want to damage his gut further for a confirmation test.
Our son didn't want the test either - we made him promise that he'd be on a gluten free diet for life.
It took many months (a year?) for his antibodies to get under the top end of the scale of 200 (I was told they stop counting at 200) and many more months for it to get in range which I think is <20.
His ferritin also came up and his constipation went away.
That was all the "proof" we needed.