Posted 2/8/2021 9:44 AM (GMT -7)
Hello, it's always so frustrating when we get conflicting information from drs! Which drs will be taking care of you for ongoing care? If it is your local drs & you are confident in their care perhaps that's the avenue to take.
I have very limited knowledge & experience with celiac. My neighbor's daughter went through numerous drs & testing with no real diagnosis. Finally, after a year of being fobbed off she was diagnosed with celiac. She was in high school at the time. In order to go gluten free the entire family went gluten free & it has worked. It's completely changing your eating habits & it's not easy at first. She graduated high school, went to college & will be taking her state test to be a nurse practioner within the next 5 months. She was able to do this by diet. She had some bumps early on by cheating on her diet to test things.
I can't tell by your post your age, if cancer runs in your family or not. I suggest that you enlist the help of a dietician to help with learning about being gluten free. A strict diet will heal your intestine issues.
This forum is very, very slow, perhaps look on Facebook to see if there are any active celiac groups. Take care & good luck.