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jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 6/16/2009 6:55 AM (GMT -7)   
Welcome to the new Thyroid Disorders forum. Let's get acquainted so we can support one another better!
 
 
I'm Judy, I have ulcerative colitis and autoimmune arthritis. I was treated a number of years ago for Graves disease with severe hyperthyroidism, and am now stable on 200 micrograms of levothyroxin daily. At the time of my diagnosis, I had a resting heart rate of 120 and was happily sleeping 4 hours a night.
 
I'm recently early retired and living in the beautiful mountains of east Tennessee, although I've lived a number of other places prior to this.
 
Tell us about yourself!
 
 
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36028
   Posted 6/16/2009 8:55 AM (GMT -7)   
Hi Judy!!
Nice to meet you!!!
I'm Traveler. I have been dxed with Lyme Disease (chronic carrier), Lyme arthritis, STARI (another tick borne disease) & other co-infections, Hashimotos, CFS, Chronic/acute Epstein-Barr, Fibro, IBS -C, carpal tunnel, degenerative disks in my neck & back - & on & on...
I have had my appendix('05) & my gall bladder('09) removed. I do believe that I"m runnng out of spare parts for them to take!!!! smhair
This is why I want to learn as much as I am capable about my thyroid -with Lyme in the brain, it can get a bit sketchy when it comes to learning new stuff!!
Looking forward to learning much from those that have been there!!!
Trav.
- Traveler


Tavish
Veteran Member


Date Joined Jul 2003
Total Posts : 2272
   Posted 6/16/2009 9:55 AM (GMT -7)   
Hi everyone!
I'm Lori, 40, living in Michigan for many years now. I have been a regular poster here on HW but on the breast cancer board, as I received that diagnosis in November 1999. I did chemo, rads, Tamoxifen and have been cancer free ever since.

Family history of thyroid disease, mother had most of hers removed 3 years ago due to a cold nodule. 2 cousins have Hashimoto's. I had been evaluated for a large thyroid for many years with no abnormal findings until we did a u/s and scan last year, found a cold nodule. Turns out I had Hashi's too but the nodule was papillary carcinoma, so out it came. I had radioactive iodine and currently and cancer free (again!) and on 150 mcg of levoxyl.

Glad to see we finally have a thyroid board here now, welcome to everyone!
Lori


dbnye
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/16/2009 10:01 AM (GMT -7)   

Hi Judy.

 

MY name is Bethann I was diagnosed several yeears ago with graves diesase than was on rx for for approx 7 yrs  or so than my levels all went the opposite direction and so was put on synthroid and have been on it for about 6-7 yrs now. My neck and throat area swells up off an on for last 4 and 1/2 yrs and drs do not know why.  I also have thyroid nodule, fatty liver, gerd, borderline diaetes, throat-neck pain up & down than sometimes feels like neck will explode, occasional  chest pain, weakness with fatigue, asthma, voice loss off and on or raspy-hoarse voice on a daily basis also have had bad headaches, and shakiness on and off and now I have also had 51 # wt loss since Jan 09 w/o even trying. Than to top it off I have had several female issues also.  I am currently seeing 5 specialists to try and determine what is going on w me. Have had to miss so much work over past yr I used up all my fmla luckily I still am employed since my short term disability insurance still approved and will be employed as long as continues to be approved. I have not been able to work last several mos. My qualtiy of life is not what it used to be. My health has gone downhill over the last yr.

Just had egd w bravo last wk and since than I am not able to eat w/o middle chest pain. Also my neck swelled again and yesterday and today drs feel a lump in neck and have ordered me a ct scan in two days.

 Have you ever heard of anyone else having several health issues similar?

 

Bethann


opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 6/17/2009 1:56 AM (GMT -7)   
Hello everyone -
My name is Bill, my wife Michelle has been diagnosed with Hashimotos since she was 13. I am a regular on the GERD/ Heartburn forum and am trying to get my wife to join here, without much luck yet. I just realized she has been diagnosed only 5 years longer than we have been married and that will be 20 years this September. Wow how time flies. Anyhow, until I convince her to join I will be hanging around and if anyone has issues with GERD or heartburn and hasn't been to that forum come on over.

Judy - What part of East Tennessee? My family is from Kingsport and Johnson City area.

Take care,
Bill

Ps. I also wanted to note that her dad's side of the family has several family members with thyroid disease. Some hypo, some hyper, and some cancerous.

Post Edited (opnwhl4) : 6/17/2009 2:59:17 AM (GMT-6)


theHTreturns...
Elite Member


Date Joined Mar 2009
Total Posts : 20086
   Posted 6/17/2009 2:33 AM (GMT -7)   
hi all at hw's thyroid forum.
 
jamie, male, 37.
 
born with a genetic hormonal condition, out of a dx of hypogonadism at birth. later it was found that i was annorchic. age 2. been on testosterone inj, pellets and the last few yrs been on the testogel. i produce no testosterone, am infertile also. maily on the depression forum. oh had testicular implants done at the age of thirteen. very androgenous as a young person. tad difficult. all good now.
 
thx 4 listening. jamie
 
dx, mdd, severe borderline personality disorder, iddm, diabetic nuropathy, lombroscal spine, insomnia, water issues, etc. oh, hormone deficeint!!

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/18/2009 8:01 PM (GMT -7)   
     :-)
Hi Everyone,
 
     I dont know if I truly belong on this forum, but find my self comming back for more and more info.
 
     My name is Dani. I am 28yr (29 tomorrow) married mother with 2 very beautiful lil girls.
     I normally haunt the Chronic Pain section of HealingWell. As chronic pain is a part of my life. I am told the pain comes from a variety of sources, the biggest being degenerative changes in the spine with subsequant rotation and curvature. Also known as levoscoliosis. My doctors, and there quite a few of em, dont know why. I hear I have insomnia, but my sleeplessness is nothing like you would see on TV, with someone staying up all night doing things. I go to bed, wake alot, fall back asleep promptly after waking. *shruggs*
 
     I am a forum troll I think? Maybe not, not really sure. But ive been hanging around, curious mostly, fascinated aswell. I will find out whats going on with my endocrine system next week.. no use thinking about something you have no control over yet... but still, curiosity gets best of me and here I am, yet again sifting through all the information to be found.
 
     In any case. I just wanted to introduce myself and I hope im not intruding. But! If i am let me know!
 
*huggs*
dani
blush  
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Cylvia
New Member


Date Joined Jun 2009
Total Posts : 2
   Posted 6/26/2009 6:49 PM (GMT -7)   
Hi everyone!

My name is Cylvia F and 42

I was diagnosed with hypothyroidism in Dec 08. I see a therapist for panic attacks, agoraphobia, insomnia, and ofcourse depression. He had tried so many pills to make me sleep throug the night he was at his wits end so he asked me for all my Lab works. He then found out that I had been Hypothryroid for over 9 years and no one ever told me. My levels were not extreamely low but low enough for my to be considered hypo. I've been on synthroid since Dec 08. I just got my gallblader removed a few months back.

My sleep is still a problem sometimes I go 3-4 days without sleep. On good nights I sleep 4 hours a night. Thank YOU TIVO! I also put on earphones so I wont wake up my hubby..

I am also vitamin d deficient my number was a 13 which is considered low. So I am also taking vit. D 2000i.u hopefully this will also help with my depression.

I have so many questions about hypothyroidism. I hope this forum will answer questions people have abot their thyroid.

Thanks for letting me post
Sylvia

superloopie
New Member


Date Joined Jun 2009
Total Posts : 15
   Posted 6/28/2009 8:37 PM (GMT -7)   
I everyone. I am hypothyroid-so far anyway- and am awaiting a 6 week period so I can have a nuclear scan of my thyroid, so currently not on any meds for that. I also have MCTD- recently diagnosed- and just learning what a pain in the butt the immune system can be! I don't sleep well at night but when I do eventaully get tired, I can sleep for almost a full day! LOL! Looking forward to learning more through these boards and getting to know everyone!

Swimom
Veteran Member


Date Joined Apr 2006
Total Posts : 1732
   Posted 6/29/2009 1:50 PM (GMT -7)   
Hi ya'll,

I've had Hashimoto's for 20 years. I have had my "ups and downs"...LOL. Mine is complicated by a T3 conversion disorder but, I have a good TCa Endo who supports my refusal to have it removed or be treated with radioactive iodine. My thyroid is dying off on its own in a slow and annoying sort of way. Right now, one side is still functioning to an extent. The fluctuations are not so predictable however, I've just gotten used to the signs and more able to adjust the Armour Thyroid to changes. I have yearly ultrasounds and bi-anual biopsies.
 


martin1960
New Member


Date Joined Mar 2006
Total Posts : 3
   Posted 6/29/2009 2:56 PM (GMT -7)   
Hi everyone, Just thought I'd pop in to say hello. Seems like a nice place to meet new people. I'm sure I'll enjoy my stay and I'm always happy to meet new friends. Peace
Type II diabetes, Inclusion Body Myositis, Gerd, Nash, High Blood Pressure, High Cholesterol, NDPH, Severe Panic Disorder, Cervical Spine Arthritis, Hypothyroidism.


princessb
Regular Member


Date Joined Jan 2009
Total Posts : 24
   Posted 7/5/2009 9:19 PM (GMT -7)   
I'm Sara, 33yo F from Maine currently (moving to Hawaii in January!!) and have hyperthyroidism and a multinodular goiter as well as ulcerative colitis.  Am taking methimazole and Atenolol for the hyperthyroidism and haven't seen a huge response just yet.  My UC is in clinical and endoscopic remission -yay!- and I am just on maintenence meds for that.  Glad there's a forum for this!
 
Ulcerative Colitis, Hyperthyroidism
Lialda 2.4 Gm, Methimazole 5 mg, Atenolol 25 mg
In remission after almost 3 years :)


minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 7/8/2009 3:19 PM (GMT -7)   
Hello Judy,
I was diagnosed with Hashimoto's 2 1/2 years ago. I also have chronic Lyme, and co-infections-Bartonella, babesia, micoplasma, fibro. I have had 3 bulls-eyes in past 18 years and positive lyme test. It all is being controlled with massive doses of antibiotics. I was told lyme bacteria caused my body to attack my own thyroid.

I 've been to endos who don't understand Lyme so my Lyme literate MD prescribes my dose of Armour which I believe need to be increased.

I am hoping to learn and share much about thyroid treatment on this forum.

Blessings
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties. [/color]

<FONT color=#0000ff>Outstare The Darkness--The Light Will Come!


JoanieLiver
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/9/2009 10:28 PM (GMT -7)   
Hi everyone. This is my first time to this forum.I had 2 liver transplants in 2005.The first transplant rejected as soon as they put it in and
they took it out and I was without a liver for 20 hrs. It was a miracle
that I recd another liver. I was  on diaylsis for three months because without a liver your kidneys won't work.Since my transplant I have
had 10 incisional hernias. When my liver was taken out the first time
they left me open and my body swelled. My muscles in my abdomen
were ripped and there was no muscle left to attache the mesh to when
they tried to repair my hernias. Now on each side of my body I have
mesh attached to my ribs to hold my intestines in. I have pain everyday.
I also have hypothyroidism, fibro, miagraines, and chronic pain.
I have taken thyroid medicine for 7 years now. I simply cannot lose
weight. The transplants have something to do with that but does
anyone have any suggestions on losing weight. Even not eating
doesn't help. Thanks for listening to my story! Diane

minerals
Veteran Member


Date Joined Jul 2007
Total Posts : 943
   Posted 7/11/2009 11:24 AM (GMT -7)   
Hi Diane, I feel very guilty for complaining after reading what you have been through. I know you did not write your post to get pity, so I will give you my prayers.

Sorry I don't have any pointers on losing weight, I am working on that as well. Going without food is not the answer as our bodys metabolism shuts down when we starve it.

Ihavd upped my own dose of armour thyroid meds and will keep the forum posted on my progress in losing my 30 lb weight gain. It came on so fast.... like in 4 months and stayed on. It is not from food. I am really tired of feeling my abdomen on my thighs when I sit down.

Blessings
Diagnosed 2003 Lyme, Babesia, Bartonella, Micoplasma,Hashimotos Thyroiditis. Have had since early nineties. [/color]

<FONT color=#0000ff>Outstare The Darkness--The Light Will Come!


JoanieLiver
New Member


Date Joined Jul 2009
Total Posts : 4
   Posted 7/12/2009 5:26 PM (GMT -7)   
Thank you for your reply. I know that not eating is not the answer but
some times you try anything. I'm not much of a breakfast person and
don't eat until later in the day. I know that is not good too. I know
what I'm suppose to do but after doing that and not getting results
you get very discouraged and just say the heck with it. I have had a
t-3 and t-4 test. Have you had any tests other than those to detect
thyroid disease? I don't get much exercise because of my hernias.
That doesn't help the situation either. I guess I will just have to
accept things the way they are. HAHAHAHA Nothing wrong with a
bigger beautiful woman. HAHAHAHA. Thanks again for your reply.

veromia333
Veteran Member


Date Joined Mar 2009
Total Posts : 674
   Posted 7/12/2009 9:48 PM (GMT -7)   
hi, i'm Veronica from the Lyme board. just discovered a thyroid nodule in my MRI . Asking what to do next.
The line is faded not showing where Lyme came in. I became a new Mommy n my Lyme decided to show itself. Swollen elephant like knee and finger and limiting back pain. Bell's palsey, weight loss as if I had no muscle on my bones anymore. And much more text book lyme symptoms. To a Lyme doc, after alot of there is nothing wrong with you and a recommend to counceling,he said V this is Lyme. What kept me pressing on I had Lyme while I was pregnant. I know I was not infected while pregnant. I am watching her with an eagle eye. God Bless everyone. Love Veronica. Were the ones who know about Lyme not the doctors. Isnt that just mad? Backwards. Alice in wonderland.


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/14/2009 1:38 PM (GMT -7)   
Hi, I'm Joy :-)  . I just got diagnosed with hypothroidism smhair . I also have pre-diabetes cry  , High cholesteral cry  , borderline high blood pressure  eyes  , open angle Glaucoma  cry  , dry eyes  sad  , Asthma  mad  , allergic to everything skull , Sleep apnea  smurf  , fibroids  blush  , and GERD so bad I can spit fireballs devil  .
I live in N.E. GA. and am 41 years young going on 100 years old some day. turn I do have some blue days cry and crave sleep at times redface  .
It's a challenge to figure out the new dosing schedule so I can have my Nexuim first thing so I don't spend the day spitting fireballs  devil  . The meds say wait 4 hours between the two, 1 hour before eating, plus have a empty stomach shakehead . That's very hard for a person who loves food nono . I start back to work in two weeks and the schedule won't be so hard yeah .
(Sorry about all the icons, but I'm a child at heart and I love them  smilewinkgrin   .)
Joy

DANCINGQUEEN
New Member


Date Joined Jul 2009
Total Posts : 1
   Posted 7/18/2009 7:34 AM (GMT -7)   
Im new at this, but everyone else I talk to about this gives me that "blank look". My friends and family I mean. Well... even some of my doctors. I have Hypothyroidism, on medication , my TSH is now 2.86. But my Thyroid Peroxidase Antibody is high at 274.7 (not sure what that means) Gained alot of weight. Not sure how much because I refuse to get on a scale. Also have Fibromyalgia. Was on Cymbalta for depression and the pain from the fibromyalgia. The pain is so bad I have to crawl out of bed. My feet hurt it takes my breath away every step I take. My doctor took me off Cymbalta because of the weight gain and put me on Wellbrutian. The Cymbalta was HELL to get off of, but i did it, but think I need to back on because of the pain. Oh, Doc told me not to try Lyrica because I will put on more weight. I also have Angioedema. They thought it was Heritary Angioedema, but blood work said wasnt heretary. I sweel all over my body. From the inside out. Face, hands, feet ,but the worse is my throat and I cant speak. I have hives all over. I look like someone beat me up while I was sleeping. I have abdominal pain and heartburn so bad, I have gone to the ER. They said I was fine and go home. I guess thats my internal swelling? My memory is shot. For some reason I cant remember hardly anything. 
I am 44, single mom with two Awsome kids. I have always been atractive, fun, always positive. I am so ashamed of myself, I feel like I am being punished for something. I am seeing an Endo doc in August for the Thyroid.
Thanks for reading this, It helped to put it out there. Can anyone tell me if this is all related? Would love to hear from someone.
 

Goldfinch
Regular Member


Date Joined Mar 2007
Total Posts : 96
   Posted 7/18/2009 8:48 AM (GMT -7)   
Hi Everyone!
 
My name is Michelle and I have just recently had a total thyroidectomy due to papillary thyroid cancer.  I was diagnosed with Lyme disease in July 2006. I had a full neurological workup when I was sick with Lyme and my MRI showed multiple throid nodules. This result lead me to having my thyroid nodules monitored yearly with ultrasounds and fine needle aspirates and biopsies.  There was one complex nodule that I had which kept fillling back up with fluid after it had been drained so my doctor and I decided it was time to take it out.  At the time I opted to take out just half of my thyroid since all of my aspirates had come back benign.  The final pathology report came back positive for papillary thyorid carcinoma.  I opted to go back and have a second surgery to take out the rest of my thyroid.  The second surgery revealed no cancer.  I did not need radioactive iodine because my cancer was small and contained within the thyroid.  I am currently on 120 mg of Armour Thyroid (I just increased the dosage from 90) because my most recent TSH value was 7.9.  I am still trying to get my values regulated and within normal range.
 
I am 42 years old and have a great husband and three wonderful children.  I am currently a stay at home mom but will be starting part-time work in the fall since my youngest will be in school full time.

 Currently off of antibiotic.
 Supplements: Vit.D/C, Multivitamin and Probiotic


ldybug
New Member


Date Joined Jul 2009
Total Posts : 12
   Posted 7/20/2009 9:28 PM (GMT -7)   
hi every body
i am new to all this meaning thyroid disease and chat rooms, but i need some advice i am 42 and have having a lot of health issues sense i was 35. Iwas just tested in mid june and my tsh are very low score is 0.005 and my autoantibodies 124% can't seam to lose any weight for the pass year. I asked the doctor to test my thyroid i have two them come back now at 0.005 my doctor as put me on atenolol 25mg on a good night i lucky to get 5 hours of slept, my heart fells like it's on a race, my hands shake and i have itching skin attacks, pins and needles in my hands. I had my left ovary removed 05 and in 08 total hysterectomy so do i have hypo or hyper still not sure the Dr. say it's hyper but i ve been on a 1600 cal diet and still no weight loss only weight gain? he has done a thyroid up take don't know the outcome yet? my t4 are in normal range. He has more test for me take in aug he orded t3,t4,tsh,thyoglobul antibodies and microsomal tpo-ab. My qustions are could the thyroid have been all of my problems with my womb and the fibrocystic breast i went back though med record and the itchingness and hand shakes and irrgeular periods, fibroids and fibrocystic breast have been on going. The heart racing and pins and needles along with other things like hair i can run my fingers though it and end with a quite a bit in my hand i have to clean my bush every day. the other question is could the dr. be wrong about the hyper?

Post Edited (ldybug) : 7/23/2009 11:33:02 PM (GMT-6)


Greeneyes2
New Member


Date Joined Aug 2009
Total Posts : 9
   Posted 8/22/2009 3:42 PM (GMT -7)   
Hi I found your forum by accident when I asked the web the question "How long does it take synthroid to leave the stomach?" I had 1/2 thyroid removed due to a large nodule and thyroid cancer in my family. My doc said the only way to be sure is take it out and test all the tissue.
 
My bro had papp cancer and has done well. I did not have cancer, thankfully.
 
I have  done fine. WE thought that 1/2 my Thyroid would do the job, but now I am now on Synthroid and I am so glad.
 
At first after surgery I was ok for a few months...
about 3 months after surgery, I was feeling totally rotten and could hardly walk.  After getting tested,  my doc put me on Synthroid.
 I already feel better and it has been only 7 days. I am hoping that my feet pain and tiredness will be gone in a few months. 

On another note---I also have Lyme. Contracted it 16 years ago.
I have suffered each year since then with an outbreak --the worst was 6 years ago for 6 weeks. I thought I was dying. I think my thyroid problems kicked in after that.

Don't you find it odd that  some Lyme sufferers end up having Thyroid problems? Anyway, glad to be here and I will be asking many questions I am sure. I am going to check out the Lyme section too.

Post Edited (Greeneyes2) : 8/22/2009 4:53:16 PM (GMT-6)


Janette
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/26/2009 11:53 AM (GMT -7)   
I am Janette. 39 years old. Mother to one amazing son~ I have been in pain since I was 18 years old. Took them 10 years to diagnose my Fibromyalgia. Approximately 4 years ago I was diagnosed with Hyperthyroidism (Graves Disease). I am now told I have Hastitoxicosis and bounce from hyper to hypo thyroid. I also have growth hormone deficiency, high cholesterol, Irritable Bowel, PMDD, Vitamin A, D, B6 and not sure what other vitamin deficiencies. I have a goiter and did have several nodules, but one Christmas season they just disappeared. I called it a miracle. Now, I have a pituitary tumor that they are watching with a MRI every 3 months. I also get blood work done every 4 weeks. I just found out that I need glasses...never had a single problem with my eyes before. I am in pain; exhausted but can't sleep; irritable; always too hot or too cold; forgetful; anxious...the list goes on. I still believe I am blessed to have what I have including God, family, and friends!

lipgloss
Regular Member


Date Joined Jan 2008
Total Posts : 70
   Posted 10/8/2009 2:09 PM (GMT -7)   

 

hi

 


Learning2fly
Regular Member


Date Joined Oct 2009
Total Posts : 76
   Posted 10/9/2009 7:38 PM (GMT -7)   
Hi! I'm Evelyn. I was surprised to see a thread dedicated to thyroid issues. I have hypothyroidism and for many years have not been able to stay on a single dose longer than one month without having it moved up or down. I finally found a good endocrinologist, make that great endo, who thinks it's more important how you feel than what your numbers are. I have bipolar disorder, major depression, IBS, RLS, Fibromyalgia, cataracts, glaucoma, spinal stenosis, and nerve compression to my sciatic nerve in my right leg, and ulnar merve compression in my right arm and the list goes on....

I just found this place recently and come back as often as I can find the energy. In the forums I've been in, I've found such helpful people. I thank you all for your care and concern!
VIEW IMAGE
 
Major depression; Bipolar Disorder; Fibromyalgia; Spinal Stenosis; right arm and leg nerve compression; cataracts; glaucoma; IBS; RLS; hypothyroidism; B12 deficiency ... that's enough or I'll get more depressed.

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