Posted 7/26/2010 10:59 PM (GMT -6)
Hello! I am a 23 year old female. I have a condition that is gradually worsening and the doctors don't seem to be able to get at the bottom of it.
I personally have a history of diabetes but was able to control it down to normal levels through dietary changes. Also, Everyone on my father's side has hypothyroidism.
After missing 7 months of my period I was finally diagnosed with PCOS, Polycystic Ovarian Syndrome. March was the starting point of most of my troubling symptoms. Since then I have gained a total of 55+ pounds. I used to be very active, energetic, and very fit prior to this and have a relatively healthy lifestyle. I am a pescaterian (don't eat meat but eat seafood) and eat natural wholesome foods- absolutely no junk food, sodas, and I try to have as little of processed foods as possible. My weight gain increases on a weekly basis- at least a 3 pound increase per week in addition to the 55 pounds I have already gained.
I have extreme pain throughout my body, which makes me possibly think I may have fibromyalgia as well. Also in March I developed carpal tunnel symptoms. The pain on my hands was very intense- it was even difficult for me to hold a piece of paper. All of a sudden I found my hands completely paralyzed- was hard to hold plastic forks, hard to shower, shave, etc.
My legs and my hands swell up. I could no longer wear many of my shoes and could only fit into big thong flip flops; and I haven't been able to wear my wedding band since.
I have extremely cold extremities and my basal temperature has never gone over 97. I feel very cold all the time, but interesting would be burning at the same time. It's very difficult to describe but it feels like my body is burning but yet I'm freezing, at least my extremities are.
I developed severe allergies. My allergy symptoms had been suppressed for at least five years; but this year I couldn't stand one day without allergy medications.
Interestingly enough my heart rate has not been under 100, when before it was no higher than 86. The highest I documented it to have reached was 130- when I thought my heart was going to come out of my body. But i believe my most recent blood results that I picked up today might explain it. My triglycerides were 292 and my cholesterol was also high.
Other symptoms include: severe headaches/migraines, inability to stand/walk fast or walk at all sometimes; extreme hair loss; fatigue, shortness of breath; puffiness around the face; pain in the joints of the hands and feet; depression, anxiety, restlessness; forgetfulness/memory loss; rapidly changing mood swings; dry skin; difficulty concentrating; loss of libido; tinnitis (ringing in the ears); vertigo; lightheadedness; tenseness throughout my body; and my husband also has been saying that I started snoring- which I had not done before. To say the least I feel light my body is falling apart and I feel like I am truly dying. I am deteriorating physically and mentally. While the increased anxiety and depression could be explained by me being a law school student, I truly have no other possible explanations for the other symptoms. I also filled out the hypothyroid symptom checklist and checked off all but 1 symptom- hoarse voice.
Since I have no insurance, I don't have a one stop place where I can get treated or diagnosed. Instead I am going through several programs and thus have seen about 9 doctors or so- each one being worse than the other. Nobody seems to know what is wrong with me and thus have been unable to properly diagnose my condition. I did, however, start seeing an acupuncturist who told me that years ago she had the same symptoms and did not get a proper diagnosis for anything. She later found one doctor who diagnosed with hypothyroidism and placed her on thyroid replacement therapy. The unique situation about her, and apparently other patients this doctor was seeing, was that her blood results were all within normal ranges- especially the thyroid related tests (TSH, T3, T4 Antibodies and etc). Within a month of combined acupuncture and thyroid replacement therapy, my acupuncturist had lost 15 pounds and slowly after recovered. She's still continuing her treatments and will be for life.
She recommended I read Sholom's books about Thyroid dysfunctions. I purchased her book, Thyroid Diet, and it clearly explained that even if all the blood tests are showing up within the normal range, there could nevertheless be thyroid dysfunctions- due to resistance and conversion problems. I have found numerous medical support for her findings but the doctors I have been seeing have been entirely ignorant of any literature I had taken to them (all of which were from trusted sources, including actual research findings).
I am now in a desperate situation. My thyroid related blood results are the follows:
T4 Free- 0.75
T3 Total: 165
Based on these results they are unwilling to try the hormone replacement therapy. What makes it worse is that they have absolutely no explanation of why I am having all those symptoms.
Please help me!!! I need to know what is going on with me and if anybody has had a similar experience of having hypothyroidism without supporting blood results. Thank you all very much for your time and help!!! [/red