MEN1 (multiple endocrine neoplasia type 1) runs in my family, my fathers side, I was diagnosed after a DNA test for it in 2007. Thus far the only issue I've had has been hyperparathyroidism, high calcium levels which one of the results was multiple kidney stones.
I had one enlarged parathyroid taken out July 2010, still had high calcium levels, so was referred to Dr. Yeh at UCLA in Aug 2011 for a parathyroidectomy and left forearm auto transplantation. Basically, they take out all remaining parathyroids (in my case three) pick out the best one, cut it in half, and one half is cut into four pieces, attached to a small piece of titanium and implanted into my forearm.
Was taking calcium carbonate (Tums) until the parathyroid implant took hold and started working again, about
The reason for the auto transplant in the forearm, if it were to enlarge again, it's easier, and safer, to have surgery on the arm than the neck.
Thus far, it's been great! No new stones, calcium levels are normal.
My symptoms are different from my father, though his issues started about
the same age as mine were found. So it's nice that I was able to get a head start and hopefully get a handle on any issues that might arise and could be prevented.
Post Edited (CölitisScöpe) : 10/30/2012 6:03:49 PM (GMT-6)