I usually post in the Fibromyalgia forum but I really need some advice.
I will try to keep this brief. I'm 36 years old, up until 28yrs I was a very healthy, happy energetic person.
My problems began with constipation. Eventually, it became so bad it would be sometimes 4-5 days before I could go. I would be so sick and bloated I could no longer keep food down. Then my periods began to get extremely heavy and painful and I had awful pms symptoms. After a few years around my 30th birthday, I began to rapidly put on weight. I went from 124lbs to 149lbs in 3 months. I'm 5'7" and had always been a size 4 or less. I was still going to the gym 5 days a week, still eating the same things but the weight kept pilling on. I felt totally out of control. My face would often look puffy and round and my stomach always looked bloated. I went up to a size 10. Around the time of the weight gain, I developed this super dry scaly, flakey skin on my nose. It was so bad that I could not wear makeup. I tried, scrubs, gentle washes and every moisturizer on the planet but I still had skin flaking off. To make matters worse, I would get deep cystic acne on my chin or nose at least once a month. My hair got extremely dry and I was shedding nonstop. Needless to say I began to feel super depressed.
My GP at the time ran allergy and gluten tests, everything was fine. He did a basic Thyroid test as I was convinced it was that, and everything was normal. After a colonoscopy came back normal. He told me it was IBS and just getting older as I was now 30.
I tried to adjust my diet a bit and exercise even more but I could not get the weight off. I began to feel very fatigued and my neck and shoulders just ached non-stop. I also developed terrible joint pain all over but mainly in my feet and hands. I ached all over and my muscles felt weak. My libido which had been more the healthy literally disappeared. I had trouble falling asleep but worse I woke up feeling exhausted every morning even after 10-11 hours of sleep. For years I functioned like this. It sucked.
At 33 after an ovarian chocolate cyst burst landing me in emergency room, I was diagnosed with stage 3 endometriosis. I had surgery and they also found 3 very large Fibroids hanging off my uterus. After the surgery, I felt a bit better. I even lost about
6lbs over a couple of months. I had stopped going to the gym months prior when after a personal training session I felt so weak and shaky I had trouble walking down the stairs.
The joint and muscle pain got worse and I still felt so worn out. However, I was advised if I wanted kids, which I did, to start right away as the endo could come back and at 33 it was sorta now or never. For 7 months we tried without luck. Finally, after a round of Clomid, I got pregnant with twins.
Over-all the pregnancy went well, I felt great, no muscle pain, no endo pain, no joint pain. I my bowels were regular. My skin looked fantastic and no longer dry and I felt like I had more energy then ever. After I gave birth though, my health to an incredible dive. I lost all 38lbs I gained in the pregnancy in 2 weeks and then another 12lbs on top of it. I was 128lbs and not gonna lie I liked that part, but I was also extremely tired, extremely sore, everything ached worse then ever. I would sometimes feel confused and I could not retain information. I was in a total fog and super irritable. Looking back I think I had post partum. I assumed it was the new mom, lack of sleep causing all of this but after a routine blood test, I found out I had Mono.
After 6 months and still feeling awful and so fatigued. ( both girls were sleeping through the night by 4 months so I was getting adequate sleep.) I saw a rhuematologist. Over a year later, I still feel awful, my weight is climbing, my nose and face are getting dry again etc etc it's all coming back. My face swells from time to time without any reason and I am back to relying on medication to go the bathroom! I've seen a rheumatologist, been tested for Lyme, lupus and just about
every other autoimmune disease under the sun. Everything came back fine. Negative ANA etc...I was diagnosed with Fibromyalgia and possible Chronic fatigue. And as she put it, you definitely have something autoimmune going on, but nothing definitive yet. I also have chronically low vitamin D, usually around 15. I've been on 10,000ui a week for 3 months now. I currently take 50mg of Savella and 10mg of Adderall for fatigue and brain fog. I'm literally getting by. But am miserable. I have developed TMJ which I think may be the source of the neck, shoulder pain I feel. But the only thing that has every worked on the pain was a 6 day steroid pack. I never felt so good in my life. But I don't want to be on steroids long term.
Which brings me to here. (Finally, sorry.) I had another thyroid test everything came back fine except my thyroglubin was high. I had an ultrasound and was told my thyroid was on the high end of normal in size and had some small nodules. My endocrinologist said it wasn't anything to worry about
Something hormonal is going on. That I am certain of. I just got a hormone test done today for whatever that's worth. Hormones are tricky things and hard to treat. What I am wondering though should I totally be ruling my thyroid out? My symptoms are classic for Hypothyroid or Hashimotos but my endo isn't concerned. Meanwhile, I can't get into a deep sleep, my body aches non stop, my joints hurt, my hair is falling out, my skin is dry, my libido is gone, my emotions are wacky and now my weight is climbing. I dunno what to do anymore. I don't want to go to a pain clinic, I don't want to be on a bunch of meds, I want to know what the problem is so I can feel halfway decent again.
How long did it take you to get a diagnosis for Hypo or Hashimoto's? Do you think I need to just let the thyroid thing go and focus elsewhere? I don't want to give up. I love my kids and my husband and well darn it I love myself and I don't wanna live like this. My girls deserve a mom who can take them for walks and the park run after them, not one who dreads it because she's in so much pain and so VERY tired.
If could share your story or give me advice I would totally appreciate it. Thanks.
Post Edited (Redheadbk) : 7/15/2011 3:22:12 PM (GMT-6)