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TSH Normal, does that rule out Thyroid problems?

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Thyroid Disorders
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jr991
Regular Member
Joined : Feb 2011
Posts : 186
Posted 9/9/2011 10:26 AM (GMT -7)
Hello,

I've been searching for an answer to my problems for years and I have not yet found anything that can explain the reason why I feel the way I do. I have often looked at Hypothyroidism as a possibility, but my doctor has ruled it out since my TSH is normal.

I have been suffering for close to 8 years with this constant spaced out/brain fog feeling, excessive yawning all day long, very low energy. I feel like I'm dragging myself around all day long and it's to the point now where it's exhausting to even just stand still for more than a couple of minutes.

The only problem with weight that I have is it is very difficult for me to gain weight. I have always seemed to have a fast metabolism, but I just can figure out why my body is so drained all the time.

I have been tested/treated for sleep apnea and the treatment has worked, however I don't feel any different.

Does this sound like anything to do with thyroid?

Thanks in advance.
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mscrowbar
Veteran Member
Joined : Nov 2010
Posts : 877
Posted 9/9/2011 12:57 PM (GMT -7)
I am no expert on thyroid issues. I had my levels checked and they were normal but while getting an mri on throat for another reason they found that my thyroid was very large and had cancerous nodules. I had it out this past January and was treated with iodineradioactive therapy and now am on thyroid medication. Unfortunatley, I still felt the same.

But, in the meantime, while trying to figure out why I feel so fatigued and have range of motion issues (and recently was diagnosed with RA) the endo did a full panel work up and found I was extremely low in b-12, iron, and vita min D. Now I get a b-12 shot once a month, take prescription D every other day and iron two times every day. After several months of being on this combination I am starting to feel less fatigue and general muscle soreness. I still have range of motion issues and some pain in joints but the meds I am on for the RA are slow acting and aren't expected to start working full strength for a few more months.

I guess what I am trying to say is that while it could be a thyroid issue it doesn't seem likely, especially with the normal numbers. What it could be is the deficiencies that I mentioned above. I really feel so much better even though the original reason for the mri hasnt been found. (I constantly feel like I am being choked and have a constant left ear ache. It was thought to be the large thyroid pressing on everything but the problem is still there and the thyroid is completely gone?)

If you haven't had these checked, please do. Most doctors don't automatically order tests for these.

Hope this helps, please let me know.
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jr991
Regular Member
Joined : Feb 2011
Posts : 186
Posted 9/9/2011 1:06 PM (GMT -7)
Hi Denita,

Thank-you for taking the time to respond.

My doctor has been really good at checking pretty well everything he can think of. I was slightly low in Vitamin D, everything else was good. I even had my ferratin levels checked and those were normal too. All the typical things that would give reason to me feeling this way comes out normal. I do have a number of other symptoms going on so it could be something of a bigger picture, but wanted to hear what peoples thoughts were on this.

Thanks again.
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mscrowbar
Veteran Member
Joined : Nov 2010
Posts : 877
Posted 9/9/2011 1:57 PM (GMT -7)
How about Fibromyalgia. That causes general fatigue, brain fog, and all over body aches. Actually there is a list on the fibro forum that has 52 symptoms to it. Maybe much of what you feel could be related to that? I have had fibro for about 5 years and was just recently also diagnosed with RA. I have just about all the symptoms on the list. It takes quite awhile and a caring doctor to diagnose it. Look over there, read the symptom list and some of the posts, maybe that will help.

so sorry you are suffering. I was there and know exactly how you feel. I am feeling much better these days but how long that will last I don't know.

keep me posted

P.s. The fibro site has many more active members and are willing to listen and offer suggestions to any one having fatigue/pain issues even without a diagnosis. Maybe you will get more responses there.
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davinci817
Regular Member
Joined : Aug 2011
Posts : 119
Posted 9/9/2011 6:34 PM (GMT -7)
Jr, have you had your other hormones checked? Estrogens, progesterone, Testosterone, DHEA, Cortisols, Insulin? TSH isn't the only thyroid hormone either. Hope they checked your T4 and your two T3's.
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BethW
Regular Member
Joined : Mar 2010
Posts : 132
Posted 9/10/2011 5:35 PM (GMT -7)
I had the same thing happen- had the symptoms of hypothyroidism, but my numbers were normal (I did test positive for Hashimoto's thyroiditis). One endocrinologist said I was going into perimenopause (but didn't test my other hormone levels) and that my thyroid was still fine. I got a second opinion, and they found a cyst on my thyroid during an ultrasound. Because of the size of the cyst, they did a fine needle biopsy. In the biopsied tissue, they found atypical cells, so we decided to remove my thyroid. When they looked over my thyroid after it was removed, they found cancer.

I guess what I'm saying is that your symptoms sound like hypothyroidism. Have they tested for thyroid antibodies (at high enough levels, they are an indicator of that auto-immune disorder)? Did they do an ultrasound?
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jr991
Regular Member
Joined : Feb 2011
Posts : 186
Posted 9/10/2011 6:30 PM (GMT -7)
I haven't had an ultrasound done, and the only levels they have checked was the TSH. I haven't had the T4 or T3's tested.
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mscrowbar
Veteran Member
Joined : Nov 2010
Posts : 877
Posted 9/12/2011 7:09 AM (GMT -7)
Because the thyroid was not the reason for my symptoms, the removal of it did nothing in terms of releaving them. I have fibro and RA. These and the mal-absorption issues are the culprits for my aches, pains and brain fog. It took many years, a good doctor and lots of blood work to finally get the diagnosises and find the right combo of meds to treat them.
If your doctor is still trying to find the reason for your symptoms then I would say that you have a good doctor and that doctor is doing everything in his/her power to find the right diagnosis. I woud stay with that doctor and keep on, keeping on. If you have any type of autoimmune disorder, your blood work, symptoms and repeated visits with the doctor will eventually reveal what you are dealing with. It just takes time, sometimes it takes lots of time. Good luck with your journey. Please keep us posted.
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cfs
Regular Member
Joined : Aug 2011
Posts : 80
Posted 9/20/2011 6:25 AM (GMT -7)
jr991, what is your TSH?
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