Question for everyone

Thank you in advance for any reply's. I'm new to this forum and had a question. I wondered how many, if any of you, were diagnosed with any form of thyroid disorder through any other means besides bloodwork??

Right now, my Doctor has me on a trial period of a medication used for fibromyalgia to see how I respond.

I have almost every symptom of hypothyroid but have had it tested numerous times and it always comes back negative. Since many symptoms of hypothyroid also are symtoms of other endocrine problems, my Dr sent me to an endocrinologist. All test on my adrenal glands etc came back normal.

Alot of these symtoms are also fibromyalgia symtoms and since there's no definitive test for fibro, it's usually diagnosed when everything else is ruled out. So that's where I'm at now.

But I still get this nagging feeling that somehow they're wrong, I've had it for years. I really feel like it's my thyroid. I'm trying to educate myself as best I can as I've been dismissed by so many Dr's when it comes to any kind of diagnosis other than to suggest that it's due to depression since all of my bloodwork comes back normal.

The reason I ask is that I ran accross a few thing's that made me second guess the Dr's. The first just my own research and finding sites such as this where countless people said that it went undetected in them for years.

Some people said that it was only dx after a saliva test. I've asked 2 Dr's I've seen about this and they said they don't do them.

Then I found this video online where these two Dr's said that Dr's should be going by the patients symptoms and not just numbers and how so it's being missed in so many people because Dr's only look at bloodwork ranges.

I also knew a women who had it but she told me that to this day it will not show up on bloodwork, it was only after an eye Dr diagnosed her that she began taking synthroid which she resonded well to and has been on for years.

I'm so frustrated and have been suffering from alot of these symptoms for over 10 years and they've only continued to get worse so that I am barely able to function. I am exhausted 24/7.

I just want to get to the bottom of what's really wrong with me and get on medication to treat it and then get back to living.

Thank you again for any info. or for sharing some of your personal stories with me. I greatly appreciate any feedback!

Thank you so much for replying. I completely understand how frustrating it can be to constantly not feel well and to feel like you're always searching for answers. At times I've almost just given up and resigned myself to just living with whatever this is due to sheer exhaustion and frustration.

It's especially frustrating as in your case, to have Dr's give so many conflicting answers.

I just recently joined the fibro forum and read a topic not too long ago that came to mind when you mentioned some of your symptoms. It was about sjogrens' syndrome (hope i'm spelling that right) It's often misdiagnosed as fibro because the symptoms can be very similar. You mentioned dryness. Is that in your eyes/mouth? That is one of the telling symptoms. Just something that might be worth looking into. I'll check later to see if I can find the article again and post the link for you.

Again, thank you for your response. Was at the Dr today and he did test's to check for a B12 deficiancy as well as Vitamin D as apparently that is common with fibro. I hope that you can find out what is causing you to have a sore throat and not to feel well. Maybe that link will be helpful. I hope. Will post it a bit later. Take care!!