Posted 10/30/2012 7:56 PM (GMT -7)
I have MEN1 (multiple endocrine neoplasia type 1), it runs in my family, my fathers side, supposedly his father before him. I was diagnosed after a DNA test for it in 2007. Thus far, the only obvious issue I've had has been associated with hyperparathyroidism, high calcium levels which one of the results was multiple kidney stones.
I had one enlarged parathyroid taken out July 2010, still had high calcium levels, so was referred to Dr. Yeh at UCLA in Aug 2011 for a parathyroidectomy and left forearm auto transplantation. Basically, they take out all remaining parathyroids (in my case three) pick out the best one, cut it in half, and one half is cut into four pieces, attached to a small piece of titanium and implanted into my forearm.
Was taking calcium carbonate (Tums) until the parathyroid implant took hold and started working again, about three weeks.
The reason for the auto transplant in the forearm, if it were to enlarge again, it's easier, and safer, to have surgery on the arm than on the neck and the complications that can arise from that type of surgery.