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Tired of feeling this lousy

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Thyroid Disorders
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Sly21
New Member
Joined : Dec 2013
Posts : 4
Posted 12/5/2013 6:30 AM (GMT -8)
Hi everyone! I'm new to this forum and would like your opinion about my situation...

I am a 38 year old female with many medical issues and I'm trying to figure out what is causing all of this...
I am a high school teacher (for over 13 years now) and am currently on sick leave because I can't function at an acceptable level to be able to care for the teenagers in my classes... I was sent home on sick leave for burnout on April 23 of this year. To this day, I still feel down and no energy...

Here are my symptoms:
-extreme fatigue with days like today where I have energy but I know that I will be paying for it tomorrow...
-I fall asleep everywhere and anywhere after 6pm
-extreme diharrea daily (liquid and all kinds of colours)
-extremely loud bowel sounds all day long (and sometimes painful)
-tremor, jittiness (was told I had ADHD)
-irregular skipping heartbeats and sometimes very fast even when in bed
-can't sleep more than a couple of hours at a time..wake up in sweats often
-night sweats
-mental fogginess, scatter brain (feeling like my brain goes on stall)
-can't concentrate long enough to complete anything
-forgetfulness when before I had an amazing memory
-extreme lower back pain and hip pains shooting down in my knees
-always hot (can't put my hands on my lap when sitting down because I overheat within minutes)
-always need to move - can't sit still for more than 5 minutes because my mind wanders and my back and hips hurt way too much
-husband tells me I choke when I exhale in my sleep and wake up a lot... I wake myself up too...
-easily out of breath when just doing chores around the house or talking on the phone
-swallowing is getting harder and my voice is changing - cough a lot


Here are the surgeries I had done over the years:
-burned myself to the third degree when I was 1... had a skin graft
-kidney stones in 1997, 2012 and one right now in my right kidney
-removal of my appendix in oct 2012 only to find out I had a large neuroendocrine carcinoid tumor in it (6.5 cm!)
-removal of 8 inches of my colon in dec 2012 to remove infected lymph nodes
-2 lymph nodes had metastatis cells
-ct scans every 6 months and consults with an oncologist - all results came back negative for now
-nodule was found on my thyroid around 1995 and emptied and all came back ok...it was a cyst
-ultrasound was done on my thryoid because they saw calcification on the big nuclear scan for cancer screening done in dec 2012 (all came back normal, no tumors)
-3 nodules were found on my thyroid, one of which is of concern...appt with ENT on Dec. 16 of this year
-sleep test was done on Nov 17 - waiting for results
-MRI was done for my back and all my lumbar disks have issues (thorn or buldging with some mild bone degeneration) - have tried physio but not working very well
-blood work was done and a couple of results were high but that's it.... TSH was at 1.45
-I'm taking some meds... naproxen, cipralex, baclofen, tamsulosin, T3 with codeine and hydromorphone for now

So I guess my question for everyone is could this be hyperthyroidism?? When I read up on symptoms, I see that I seem to switch from hyper to hypo symptoms... All my doctors are telling me that it's not the cancer that is making me feel like crap it's something else but nobody can find the cause of my pain. Also, My dad passed away when he was 28 of heart failure and had many kidney stones (10 in 8 years) and many masses removed from his abdomen... now we don't know what those were and the autopsy only said that he died of a heart attack of unknown causation.... we have many ailments that run in the family also...too long to list lol!

Thanks very much everyone for your input!! :D
have yourselves an awesome day!! :D
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hypoHashi
Veteran Member
Joined : Jul 2012
Posts : 801
Posted 12/5/2013 7:30 AM (GMT -8)
Hi,
Welcome to the forum.
I have no experience what so ever with the long list of conditions you have/had, the only comment that I want to make is that to rule out thyroid issue, you need to be tested for TSH, FT3, FT4, TPOab, TGab and TSI ab.
this a full thyroid panel, and antibodies, your TSH looks good at 1.45.
Why do you take T3 medication? is it Cytomel? what was your TSH prior to the T3 ?
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jujub
Elite Member
Joined : Mar 2003
Posts : 10424
Posted 12/5/2013 7:58 AM (GMT -8)
Your symptoms are a combination of hyper-, hypo- and those which I've never seen related to thyroid function. If you haven't seen an endocrinologist, it would be a good idea to do so just to rule out problems with your thyroid or other endocrine glands.

I do hope you have a good primary care physician who is helping to coordinate and pull the threads together with you. Good luck.
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Sly21
New Member
Joined : Dec 2013
Posts : 4
Posted 12/5/2013 8:20 AM (GMT -8)
I take Tylenol 3 to try to aleviate the back pain but it's not really working well. I have only been tested for TSH, no T3 and T4 yet. My family doctor is convinced I'm depressed and anxious (told him if you don't sleep and can't accomplish anything because you can't concentrate and because of the constant pain you're in, you would be depressed and anxious too... :( he is not the greatest but we don't have many options for change of doctors where I live (lucky to even have a family doctor actually). Fortunately my specialists are awesome and I am asking to get a referral to an endocrinologist for sure. This is just ridiculous. I want my old life back so I can enjoy my kids (9 and 6) and return to my job!!
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Sly21
New Member
Joined : Dec 2013
Posts : 4
Posted 12/5/2013 8:29 AM (GMT -8)
Oh and I just pulled out my blood work results and TSH levels were at 0.45 not 1.45.
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hypoHashi
Veteran Member
Joined : Jul 2012
Posts : 801
Posted 12/5/2013 8:42 AM (GMT -8)
Hi,
I thought that is T3, the thyroid hormone available as Cytomel.
With such low TSH I am convinced that you are hypERthyroid, get tested for the other tests I mentioned, specially the antibodies to see if you have an autoimmune thyroiditis, either Hashimoto or Graves, and a visit to an Endo would be great idea, just make sure that you see an Endo who specialize in thyroid, since many of them specialize in Diabetes .

Good luck,
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Sly21
New Member
Joined : Dec 2013
Posts : 4
Posted 12/5/2013 8:49 AM (GMT -8)
thanks so much HypoHashimoto and really sorry about the mistake. I will ask to get tested for what you have mentioned.
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OliviaJ
Regular Member
Joined : Oct 2013
Posts : 35
Posted 12/7/2013 8:44 PM (GMT -8)
I am not an expert on the bloodwork, but your symptoms sound very much like Hashimotos. I say this because I have almost all of the same symptoms. Hope you find a diagnosis and treatment.
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