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levothroid dose change -- strange side effects

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Thyroid Disorders
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Kquad
New Member
Joined : Sep 2013
Posts : 6
Posted 4/4/2014 3:37 PM (GMT -8)
I had my thyroid taken out about 18 months ago. Turned out to be benign hurtle cells. However, over the several months this all took, I developed severe health anxiety. They started me on 125 mcg levothroid. It seemed OK at the time, but I was being medicated for anxiety pretty heavy, so who knows. I slowly started to dig out of the pit and put on a few pounds I had lost. The next test showed me a little low at tsh 3.5. So they upped me to 137 mcg. Tsh then was 0.5. I was still being medicated and I noticed little.

Well, I decided enough was enough and I stopped the medications for anxiety and depression. I went back to the gym and gained back the last 10 pounds I had lost. My TSH cam back about 4 again and I was having legs cramps at night and dizziness , so he upped me to 150mcg.

2 weeks later, I had a terrible tension headache, blood shot eyes, forehead pressure, strange feeling when turning head and a feeling that one of my eyes was being pushed down ( it is not). The eye doc said my eyes are fine. I cut my dose down to 142 mcg and it subsided a little. My anxiety is back a bit, has anyone had these symptoms. I have vowed to stop running to the MD for everything and it has worked for a while :-)
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jujub
Elite Member
Joined : Mar 2003
Posts : 10424
Posted 4/4/2014 5:22 PM (GMT -8)
A normal TSH is usually in the .5 to 4.5 range. A decreasing TSH is normally consistent with hyperthyroidism, which should initiate a decrease in the levothyroxine dosage. Increasing TSH indicates hypothyroidism, and the dosage should be increased. Your thyroid should not be managed by TSH alone; a full thyroid panel is required to adequately diagnose thyroid issues and to adjust treatment. If you're not seeing a well-qualified endocrinologist, perhaps it's time to do so.
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Kquad
New Member
Joined : Sep 2013
Posts : 6
Posted 4/4/2014 5:32 PM (GMT -8)
I have asked and may have to change Doctors. I only know I seem to feel poorly over 3 for my TSH. I have read dose adjustments can me rough for some people . I am hoping that is it. Have a very good friend with a brain tumor and at times it is all I can do to keep from heading back to the MD.
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