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Various pains and life after total thyroidectomy

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Thyroid Disorders
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Various pains and life after total thyroidectomy  
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Jenish
New Member
Joined : Apr 2014
Posts : 1
Posted 4/13/2014 9:13 PM (GMT -7)
Hi Everyone,

I'm Jenish from melbourne Australia, recently I got diagnosed with Pappillary Carcinoma and had a surgery to remove whole thyroid. Everything went well, they had the thyroid and couple of lymph nodes sent for biopsy and lucky the carcinoma contained in one nodule and didn't spread anywhere else, I'm going for a radio iodine therapy just to make sure no nasty stuff left anywhere in my body. turn
Now to the topic, my parathyroid glands are still in there but doctor told me they might get stunned after surgery for few weeks/months so he gave me a few tablets (vitamin d & calcium). After a week since surgery I had headaches right after I consume calcium tablets and I went online and checked symptoms of hypercalceamia and found symptoms like mine, headache, higher rate of urination, bone and joint pains.
I stopped taking calcium tablets but still continued taking vitamin D all the hypercalceamia symptoms were gone until few days ago. Now I'm waking up every morning with my rib cage hurting but the pain goes away after few hours, few vague pains on my joints sometimes lightly stiff jaw joints. not really sure what's happening with me. rolleyes

Any advice or comments will be appreciated.
Thanks.
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jujub
Elite Member
Joined : Mar 2003
Posts : 10416
Posted 4/14/2014 4:34 AM (GMT -7)
Welcome to HealingWell, Jenish. I haven't had thyroidectomy, but did have complete ablation of the thyroid with RAI years ago. The problem I remember most was that I was severely hypothyroid until my medication was adjusted to stabilize hormone levels. I'm wondering if some of your symptoms could be due to hypothyroidism now?

If you haven't been referred to an endocrinologist yet by your surgeon, be sure this happens sooner than later. You will need to be followed by a good endo who is familiar with thyroid issues until your levels are stable, which in my case took a couple of years. I felt completely normal after a couple of adjustments - somewhere around 4-6 months, but my medication was tweaked a couple of times after that to get the levels in range and stable. Since then I've not required further adjustments. I take 200 mcg of levothyroxine daily.

Be sure to discuss these symptoms with your surgeon or endo, as I'm obviously not a doctor and you need to be sure there's nothing going on that needs a doc's attention.

Let us know how you're doing!
Thyroid forum moderator

Ulcerative colitis since 2001, starting 8th year of remission with Remicade.
Inflammatory osteoarthritis; osteonecrosis from steroids
Grave's disease treated with radioactive iodine and now on Levothyroxine.
Type II diabetes induced by steroids.
Eczema, darn it!

"It's always something." ~ Rosanne Rosannadanna
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