I can relate. My rheumatologist first said connective tissue early 2013 then said maybe fibromyalgia because of the neck pain. Prescribed Lyrica and since they have increased dosage multiple times. I was referred to neurologist who did more tests than I thought existed and said my head is fine. No scans of my neck though. I see a primary doctor close to where I live and I swear I get further with her than I do with the specialists. I am deficient in Vitamin B and D. I was increased to B shots every three weeks and now am taking 8000 mg of D a day and now have to take a big dose once a week. it's been well over a year of the vitamins and the levels still do not increase. So then thyroid was high, 8.38, and they did an ultrasound. That was fine. I am so tired of hearing the word fine when I DON'T feel fine. LOL. I have started to take hydocodone for the pain and my primary was not happy because she does not like pain meds. I told her neither did I but I am to the point that I am drained physically and mentally.
I had multiple trips to a podiatrist and two surgeries later was told one was pointless. The arthritis in my feet is bad and hurts awful. But they told me there's nothing more they can do. Just deal with it. Then I went through multiple tests for IBS and ER visits due to the pain. They found a blockage in one scan but colonoscopy fine. I have seen more doctors and all just look at me like I am crazy. One had me bend over and touch my toes and because I did that he said "you don't have rueumatoid arthritis" and that was end of visit. There's so many more visits but that would take forever and this is already long enough.
My last visit to my primary was for recheck and she had a student with that day. They got to the door and they stood out there whispering for a full fifteen minutes. When she came in she said she was trying to update her as to my condition. I can only imagine what was said. I didn't have the energy to really care either.
Mary
UCTD, Raynauds, IBS, Oste
openia, Hypothyroidism