Posted 1/14/2015 6:36 AM (GMT -8)
I'm looking for some help with where to turn to hopefully resolve some of my ongoing health issues. I've long suspected hypothyroidism but my labs have either been very lacking or the ones I've had have been "normal" despite a lot of symptoms I can't explain -- but which doctors attribute to getting older (I'm in my early 40s) or taking care of my kids. Ugh! I've been having some issues (many long term, some more recent). Sorry this is kind of long but I want to give as much info as I can.. 43 yo, F, 4 kids, 3 miscarriages.
For approx. 10 yrs -- fatigue even with rest, cold (raynauds) hands/feet, don't really sweat, constipation, bloating, weight gain, irritability, forgetful, aches/pains, bodily hair loss (don't really need to shave more than 2-3x month and then usually very sporadic hair), low libido, fat arms and legs, low BBT -- sure there's more, but these are chief complaints.
I've seen a gastro and had colonoscopy, no issues, saw a derm for the hair loss, found nothing, told, well nice you don't need to shave. But, I'd rather know why.
A few years ago my GP suspected B12 def because of extremity tingling. It came back in the low 200s so started first with injections, then sublingual. I also asked for my vit D3, which came back at 9. Also supplementing. B12 is in 500s and Vit D bounces in the 30s-40s. No improvement in fatigue or tingling.
Now about 8 months ago I started losing a ton of head hair such that I basically have male pattern baldness at the crown and immense thinning at the sides. I had taken out an iud about 3-4 months prior so determined that it was likely TE, but was sent to new derm who tested a few things and came back with a positive ANA (1:160). Month later the ANA was down to 1:40, but my GP wanted me to see a rheumatologist. I got in about four months later. He ran every test known to man and only the ANA came back positive, but now 1:640. I have an appointment mid-February to discuss what to do next. He also asked for a hair biopsy, which I had done -- actually a scalp biopsy. No inflammation but thinning hairs, TE and androgenic. He poo pooed the androgenic and said it was the same as TE. Derm said to do rogaine.
In the meantime I went back to my GP to ask her to rule out thyroid because it kept coming up as another cause for elevated ANA. (Sjorgens, smith, RA, CRP, etc., etc. all normal/negative).
Se begrudgingly tested TSH, FT3, FT4, RT3, TPO and TgAB.
T3 2.65 pg/mL. 2.3-4.2
T4 1.08 ng/dL. 0.8-1.8
TSH 1.62 mIU/L. 0.4-4.5
RT3 16 ng/dL 8-25
She called and said all were normal. TPO and TgAB were both negative.
My cycle has also gone crazy, from regular to 6 weeks, super heavy 5-7 days for couple of months and then back to 4 weeks and then 6 weeks, etc.
I read that the T3/RT3 ratio should be higher than 20 and I calculated mine at 16.6. Firstly, is that even true about the ratio -- I mean all of my labs fall in the normal range. And, even if it is true, how big a difference could 16.6 to 20 really make?
Whether it is autoimmune, lupus, udctd, thyroid -- I don't really care what they call it, but I know something is "off" and I feel like my life is passing by, like I'm watching a movie.
I appreciate your time reading this. I am not asking for a diagnosis, but rather help figuring out which path(s) should be explored further and how to find a doctor willing to help.