I'm going through confusion as well. I'll post my readings but wanted to tell you I've had thyroid nodules for over 10 yrs. I didn't even know I had them until my sister's doctor glanced at my neck and said: "You have thyroid nodules." So that started the journey I wish I never took.
I saw an ENT (thyroid specialist) who did ultrasounds and needle biopsies. All was fine. My blood levels were normal but he still put me on armor thyroid to put me into "suppression" to try to shrink my nodules.
My PCP did not want me on the med as I had normal thyroid levels and said this was controversial. Flash forward: my ENT left the group. I went off armor last year but now my TSH is .004 L. My other readings are within normal range although T3 is high range.
I went through trauma with my husband's illness and subsequent death in 2015 which set off a series of health issues for me. I was just getting on my feet this September and feeling well when this TSH issue came up in a blood test.
Again, I feel totally fine physically. But my PCP now wants the RAIU to see why the TSH is low. Also - I do have some antibodies in my blood but the surgeon/thyroid specialist I saw this week said many people can have them without a problem. He said they probably won't treat me as I'm a-symptomatic but said it wouldn't be a bad idea to do the thyroid scan. I can't see an Endo until January 2017 as they're booked.
Unless I'm reading them wrong, I can't see that your levels are hyper. And you feel well. I'm facing the same quandary. Do or don't treat. My gut says give it a little time in my case as I'm still trying to recover from grief, which can give a lot of symptoms similar to chronic fatigue, depression, anxiety etc. Again I have none of those. I just miss my husband. I understand levels can fluctuate. The doctors don't want to hear about
this. They just seem to want to forge forward.
Here are my readings from 2 weeks ago.
FREE T4 0.80-1.90 ..1.60
TOTAL T4 4.5-12.5 ..10.2
T3,TOTAL 76-181 ..142
T3,FREE 2.3-4.2 4.1
TSH 0.40-5.00 ..<0.004
From what I see, the only thing off is the TSH.
When I was young, I suffered terrible occular migraines and tachycardia. No one ever tested my thyroid. No one knew why this was happening to me. Each night, 30 minutes after falling asleep, a gush of adrenaline would wake me up with racing heart, much like you experienced but during days in your case. I had EKG's, wore a heart monitor, etc. All was normal. I lived this way for about
I had cyclic occular migraines increasing during pregnancy. But ... after emergency hysterectomy in 2000 ALL of the symptoms disappeared within 6 mths of my body adjusting to the rapid loss of hormones. I never took HRT - just used natural progesterone cream. So I'm positive my problems were estrogen related.
While my husband was ill I was a stone but toward the end my body began to break down and my migraines returned. Not the tachycardia however. A week after he passed, I developed ongoing health issues. I believe the thyroid issue is associated with grief and chronic stress which after days of scouring the Internet and speaking with others, trauma can trigger hyperthyroid.
Off armor my nodules have begun to shrink. I'm wondering if they could be shooting hormone into my blood and lowering my TSH. At this point I just want to be left alone. I'm sick of being sick. I'm sure you understand the feeling
I'm sorry I can't advise you on treatment, which is up to you and your doctor, but as you wanted to hear from others with nodules I'm posting in response.
Not sure if I should be saying this, but if it were me, and levels were normal and I had no symptoms, surgery seems drastic. Did your doctor say this could be random or transient? Did he say it's dangerous to not have the surgery or any treatment? Did he give you other options at this point? What did he say about
your current levels and the fact that you're now a-symptomatic?
In my case, I'm not sure I want to put myself through the stress of a radioactive iodine scan. Reason being, I kicked the tachycardia and tinnitus and migraines are under control. I don't want to rock the boat. Did you have any side effects from the RAIU?
Would you happen to know if there is more radiation in the uptake scan compared to a CT scan? As yet no one has told me their experience with radioactive iodine uptake scan. Of course doctors say x-rays subject you to radiation too but what is the ratio? If you have any idea, please let me know.
I hope your doctor can answer all of your questions. Again, my opinion is just that. I have no medical knowledge and am struggling with thyroid myself. I would like to offer support and good wishes.
Please post back with your decision and how you're feeling. Good luck with whatever you choose to do.