Parathyroid tumor

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Mary Grimley
New Member


Date Joined Nov 2017
Total Posts : 16
   Posted 2/11/2018 6:21 PM (GMT -6)   
Hello. I was posting at HW because of questions about my spine surgery, but now I have another thing going on. My serum calcium is 11.1 and my parathyroid hormone (PTH) is 81. It does not take an endocrinologist to diagnose a parathyroid tumor (or two). It took me 6 weeks to finally get my primary to order the PTH. I have spent days on the phone with my insurance. They say this is elective surgery and not covered. I say this is life threatening and I need a specialist endocrine surgeon to do the surgery ASAP. I have an appointment with my primary tomorrow and I am taking my pillow. I will not leave until I am satisfied that I am not being ignored and the surgery WILL be scheduled and paid for by my insurance, or the cops come to get this peaceful protester out of the waiting area. My ACDF (spine fusion) has never been adequately followed up. I have never had pain control. And I am cranky enough to be willing to get arrested to make my point. I am NOT depressed. I WILL NOT take Cymbalta to make me docile. I admit I am cranky.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5081
   Posted 2/11/2018 10:26 PM (GMT -6)   
They say this is elective surgery and not covered.- WTH?

Unfortunately I dont dont know much about Parathyroid besides the high calcium accosiated with it.

This is a slow, almost unused forum, its almost dead. I would suggest stopp the thyroid madness forum for your question.

Most states has appointed mediators (on your side) to deal with unruly insurance companies. Look them up, call your state attorney general too.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in 2015. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 2/12/2018 3:57 AM (GMT -6)   
Take a look at this website - especially at the chart that shows calcium and pth testing - and what results mean.

At one point I had looked into this.

www.parathyroid.com

“ A blood calcium level that is too HIGH, and is associated with a HIGH parathyroid hormone level then one or more parathyroid gland tumors are almost surely present. That is, the high blood calcium is a result of the excess parathyroid hormone (PTH). It is a parathyroid gland tumor that is the problem. “

There is a chart somewhere on that website that shows levels of calcium and PTH that indicate a tumor is likely.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 2/12/2018 2:06:02 AM (GMT-7)


Mary Grimley
New Member


Date Joined Nov 2017
Total Posts : 16
   Posted 2/13/2018 1:44 PM (GMT -6)   
Thanks for your responses. I was mainly blowing off some steam. There is no doubt I have one or two parathyroid tumors. My calcium has been over 10 since 2006, so I consider myself at high risk for stroke or a cardiac event. It's just so frustrating trying to get the appropriate medical care and being told it's no big deal. And then having insurance say it's elective. I am giving the "system" 3 weeks to get the surgery approved and scheduled. If they are still dragging their feet, I will be contacting my state attorney.

Mary Grimley
New Member


Date Joined Nov 2017
Total Posts : 16
   Posted 2/14/2018 9:01 PM (GMT -6)   
My doctor informed me she could not make a referral for an endocrine surgeon until I had a bone density test, a 24-hour urine collection (checking for calcium), and a renal ultrasound. I got them scheduled for Tuesday, and to pick up the pee container. Oh, and she decided I needed a serum vitamin D. So many flaming hoops just to generate as much revenue out of me as possible. I finally was assigned a Care Coordinator through my insurance, but she said this was out of her scope. The clinic now recognizes me as a "High Maintenance" patient. Good. Squeeky wheel and all that. Also, the doctor will not prescribe the injectable vitamin B-12 that I have been taking for several years, and need to continue for the rest of my life, until I allow a gastroenterologist to perform an ERCP. Not going to happen. I can buy my B-12 and syringes from Canada. So irritating, frustrating, and just plain bad medical practice and bad insurance people with no medical degrees deciding the fate of my life. No need to respond. I'm just blowing some more steam.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 2/22/2018 4:07 PM (GMT -6)   
Mary - did you go to that site that I posted a link to?

If you suspect parathyroid tumor you really should read the information. How to diagnose...surgery...etc.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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