Thanks for replying. Yeah, it has been a real challenge lately. This is what lead me to ask for thyroid tests to begin with - my usual fatigue isn't this severe (i.e., getting out of bed & getting dressed is enough to make me just want to crawl back in bed), and I don't usually have muscle fatigue and pain from doing absolutely nothing, and then when my neck swelled up that is what really clued me in that my thyroid may be the source (or at least part of the problem) of the new/worse symptoms.
Because I cannot consume anything orally, and the injectable iodine available for those on TPN (IV nutrition) is derived from shellfish (to which I am allergic, so the pharmacy who mixes my TPN won't put it in mine), I have not been getting any iodine for about
a year and a half. I'm fairly certain I am iodine deficient because of this. Nutritional deficiencies (or imbalances) of trace nutrients are not unusual in those on long-term TPN, especially when the TPN is their sole source of nutrition. Also, it is not possible to put everything needed in TPN, due to a variety of reasons: chemistry and interactions between various ingredients, solubility (i.e., fat-soluble vs. water soluble), availability in a sterile injectable form, etc.
I did see a doctor about
this Friday, and he ordered a second round of tests to verify the abnormal TSH and check thyroid antibodies before we try any kind of prescript
ion thyroid support. I'm not sure what other tests he ordered, hopefully his office will call me with results next week.
One thing I did try yesterday and today is to use more than one topical application of the low-dose liquid iodine I found at the health food store. I think it might be helping a little bit, but it is hard to tell for sure yet. I don't know how much iodine gets absorbed when applied topically, too, so I'm not sure what amount I'm actually getting from this topical stuff. Tried topical betadine as suggested by someone else as an iodine source, but didn't like how it felt on my skin with all the other ingredients in it.
Too many health issues to list...
Post Edited (Razzle) : 3/17/2018 11:49:05 PM (GMT-6)