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New here - anyone else have test showing T S H level in the thousands ???

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Thyroid Disorders
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DianeB
Veteran Member
Joined : May 2013
Posts : 1355
Posted 8/22/2018 5:43 PM (GMT -6)
Hi
I am New in the thyroid area.. usually I read & post in chronic pain & fibro.

Recently had major health problems & am just out of hospital -
With additional issues / questions.

Several doctors at hospital were astonished at the over 50,000 report from lab tests..
Especially since T3 & T4 were ‘normal..
Are starting to schedule the retesting; blood, ultrasound, MRI, etc

Today is first day of my recent searching - for years I have read books & researched online.
Thought I would start with experienced folks
After the great info I have found about fibro & chronic pain.
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Girlie
Forum Moderator
Joined : May 2014
Posts : 44543
Posted 8/23/2018 12:49 AM (GMT -6)
It’s good they’re retesting - that is a crazy high TSH.

I’m thinking an error.
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DianeB
Veteran Member
Joined : May 2013
Posts : 1355
Posted 8/23/2018 4:46 AM (GMT -6)
Thnx for your reply..

I am HOPING it will end up being an error.
Not going to be really concerned until similar number shows up again.
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DianeB
Veteran Member
Joined : May 2013
Posts : 1355
Posted 8/28/2018 6:07 AM (GMT -6)
Update
After taking Synthroid (25 Mcg) for 2weeks, another blood test was done; just received results. T S H is now 20 & a prescription was called in for higher dosage (75 Mcg)

Comments or thoughts?
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Girlie
Forum Moderator
Joined : May 2014
Posts : 44543
Posted 8/28/2018 10:23 PM (GMT -6)

DianeB said...
Update
After taking Synthroid (25 Mcg) for 2weeks, another blood test was done; just received results. T S H is now 20 & a prescription was called in for higher dosage (75 Mcg)

Comments or thoughts?

What is the range for the TSH? and what is your FT3 and FT4?
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DianeB
Veteran Member
Joined : May 2013
Posts : 1355
Posted 9/5/2018 6:46 AM (GMT -6)
Girlie
I now have latest lab report

T3 29.0
T4 8.4

I don’t see ‘TSH’ on report - could it be called something else?

Ultrasound of thyroid is scheduled
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Girlie
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Joined : May 2014
Posts : 44543
Posted 9/10/2018 8:41 PM (GMT -6)

DianeB said...
Girlie
I now have latest lab report

T3 29.0
T4 8.4

I don’t see ‘TSH’ on report - could it be called something else?

Ultrasound of thyroid is scheduled

Can you post the ranges for the T3 and T4? The ranges should be on the results sheet. Also those are Free, right? FT3 and FT4?

I've only seen TSH as TSH on lab results.
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DianeB
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Joined : May 2013
Posts : 1355
Posted 9/11/2018 5:47 PM (GMT -6)
I’ll look
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DianeB
Veteran Member
Joined : May 2013
Posts : 1355
Posted 10/31/2018 8:10 PM (GMT -6)
Hi.. just complete several tests last week. Yesterday rec’d call from my primary care w/results.. Hashimoto.. Am getting thru everyday life; bathing, dressing, eating, is exhausting, throw in (post stroke outpatient) tests too & just deciding had far ahead to call Uber to arrive at appointments sometimes throws me for a loop. I Feel ‘good’, happy even, overall better than before prestroke & I Enjoy that, every single day. Tomorrow no appointments so I start researching.. online. my primary reassured me that she can treat me just fine, at least for now. Several years ago I read a book about thyroid issues by Gina Nolan as I had ‘gone thru’ several endocrinologists, never being satisfied w/results. So going to start w/her FB page. So I intend to find information for not only myself, but also to give to primary care in order to get referral, IF I feel seeing a specialist is best for me. Thoughts? comments?
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DianeB
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Joined : May 2013
Posts : 1355
Posted 11/1/2018 6:18 AM (GMT -6)
Could not figure out / find post topic to include Hashimoto...
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straydog
Forum Moderator
Joined : Feb 2003
Posts : 18366
Posted 11/2/2018 2:01 PM (GMT -6)
Diane, wow, I just read all of your posts here. My gosh, you have been through the wringer with health problems. Sadly, this is a really slow forum. In spite of everything, it sounds like you are making headway & getting things under pretty good control.

My husband has been on Synthroid for several years now. It has worked keeping his numbers in the normal range. I am a little confused, so will ask this. Do you feel comfortable letting your family dr handle this or would you prefer seeing an endocrinologist? That is quite an increase in the Synthroid. What was the drs reasoning for the increase since you have had a substantial drop in your numbers?

Take care.
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DianeB
Veteran Member
Joined : May 2013
Posts : 1355
Posted 11/3/2018 3:06 PM (GMT -6)
Susie. Thnx for reply !! NO I will NOT just leave my thyroid care in my GP’s “ hands”. I went to an endocrinologist for several years & as long as the standard tests came back in normal range, the dr was satisfied - no matter what I said re: how I felt. Which is when I started reading / researching.. found / read books in library including the one by Gina Nolan. After that dr, My (previous) primary THOUGHT he could ‘fix’ me by just increasing dosage with NO blood tests. Sigh. Is why he is my ‘x’.
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