asacol/colazol/diet/new pain

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jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 12/27/2007 6:55 AM (GMT -7)   
all of your answers to my question re liquid movements and enema are great everything here makes me ask more questions-
i wonder too about taking the 2 3xdaily asacol and 3 3xdaily colazol together, what is the difference between them, her 2nd doc added colazol (and all the rectal meds) after about a month on asacol alone .she said their was not enough improvement with the asacol and cut it down a bit and put her on the colazol -saw through sigmoidoscope

also the diet - it is very important and i have shown her that eating more small meals hurts less than larger ones, and she is walking around after eating rather than sleeping .
but what can you eat we are running out of ideas.

also when does she stop the hydrocortisone enmas, she'll call the dr about this one, but how long does it take to go off them? she's been using them 2 weeks daily with proctofoam plus the messalamine eenmas and a suppostory when she can find the room

also for the last 2 days she has a pain in rectum when she has bm it is hiher than the opeining?

thanks
Mom to 19 year old daughter diagnosed 11/07.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 12/27/2007 8:25 AM (GMT -7)   
Everyone has different diet suggestions. For me, a low carb diet works best. I eat primarily tender white meat of chicken and turkey, mild white fish, scrambled eggs, soft cooked low fiber veggies like green beans, english peas, carrots, winter squashes, sweet potatoes. Nut butters and avacado will supply healthy fats, along with fish, flax and Udo's oil. Homemade broths and blended soups/stews are good for flares. Very ripe bananas and baked apples or applesauce are good, too. You may want to check into Absorb Plus shakes, formulated specifically for IBDers. It supplies enteral nutrition and allows the bowels to rest.

Sounds like she either has some hemmorhoids or possibly a fissure.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


gaff
Regular Member


Date Joined Jul 2006
Total Posts : 442
   Posted 12/27/2007 8:58 AM (GMT -7)   

That seems like a lot of medication.

When I was first DX, I had only bleeding and no diarrhea.  The medication caused the diarrhea for me.  Since my doc assumed that the diarrhea was from the UC, he kept increasing my meds.  At one point, I was on 4x3 colazal and 2 Rowasa daily.  I was so sick with diarrhea, headache... I couldn't leave the house.

As the bleeding stopped, I decreased my meds. and the diarrhea and headaches and all othe side-affects went away.  I now take 2x2 Colazal and 1/2 Rowasa every other day.

I've not heard of anyone being on BOTH Asacol and Colazal at the same time.  It just seems to me that she is on too much medication.

As far as the food, encourage her to eat bland food.  I eat a lot of plain chicken.  Fruit and spicy foods cause problems for me.

Also, even the smallest amount of exercise can be very helpful for the mind and body. Encourage her to start going for walks or a short run when she has the energy.

Good Luck!


gaff
left-sided UC since 11/05
 Rowasa, Colazal, Calcium, Centrum
Natren Healthy Trinity Probiotics


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 12/27/2007 9:11 AM (GMT -7)   
PLEASE - When you say "her 2nd Doctor" - what do you mean? Does she have two GIs working on her case? Or two different types of docs? Are they in the same practice?
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)
- Iron (2x per day)


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5136
   Posted 12/27/2007 9:12 AM (GMT -7)   
One of your earlier posts gave me the impression that new doctor had told your daughter to phase out Asacol while getting onto Colazal. I'm not surprized to hear that she has anal/rectal pain if she's taking 15 ASA pills daily plus using Cortenemas besides. And you wrote initially that she has left-sided UC, right? That's too many meds in one day! (Plus suppositories.) 9 Colazal daily should be enough oral 5 ASA; the U.S. NIH Phase 2 (of 4) clinical trials for Colazal set the daily dose at 6 Capsules. Too much 5 ASA can dehydrate. Definitely contact the gastro about tapering down the steroids. In the meantime, your daughter should drink plenty of water daily and eat as balanced a diet as possible, being cautious about spices, fats, & roughage like seeds. It sounds like she is making progress so she mainly needs to be careful and get enough rest to help heal the inflamed tissue. No need to pile on the meds if her flare is responding-- too many can be irritating & bring on constipation. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 12/27/2007 10:49 AM (GMT -7)   
the second dr was our 2nd opinion, i was not happy with the gastro that diagnosed her with a colonoscopy, he took days to return phone calls and our message was that she was in pain, i was referred to an ibd specialist ,she has her practice in nyc and we were impressed by her credentials so that is where we are now, only she went on vacation for the holidays, though her asscociate did call us back when we called and he was very kind, but he did say that she should take both of the asas, the women doc who added the colazol did tell her to taper down the asacol, but that was from 10 pills daily to 6. i don't think she should be on both and i don't know much, but my daughter will call her after the new year and get the regimen squared away. i'm not happy about the pain she has higher up, but she thinks maybe it's where the enemas are hitting, it will be on the list of what to ask the dr. i am trying to be cool, we are relieved the bleeding and all night long d has stopped and she can sleep through the night most nights, but i know stuff can be spreading inside. she will be back in school after the 4th and i hope things stay quiet! i would have wanted her to take the semester off andgive her body a rest but she wants to be in school.
thanks for the diet answers, she is a regular exerciser, always does some jogging and i'm encouraging more elyptical because i don't know if jogging is bad for intestines, all that bouncing. she has gained weight and i believe it's from the steroid enemas because her face is rounder and her body is different. there is a course that the CCF offers, i think it's ibd 101, but i have to wait and see when the next one will start, there is none on the calendar yet (long island). until then, i am reading and coming here, thank you all!
Mom to 19 year old daughter diagnosed 11/07.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5136
   Posted 12/27/2007 11:30 AM (GMT -7)   
It's unlikely that "stuff could be spreading inside" on all those anti-inflammatory meds, especially when no. of bms daily has dropped by ca. 2/3 & your daughter can sleep thru most nights. Those are the best indicators of improvement in IBD flares. The associate probably did not want to meddle with his colleagues' prescriptions. I still think the new doctor supplied your daughter with all of the most common UC meds figuring that the lengthy holiday period was beginning; therefore, she should have everything on hand that she could possibly need, just in case pharmacy changed hours, etc. I agree with you that stretching exercises are safer than jogging while one is in a flare; raising a sweat is not the best thing to subject the body to while on so many meds that can dehydrate. It's good that your daughter wants to return to college! She will learn to manage the UC & get on with her life. Mainly, she needs to eat a healthful diet & get adequate sleep-- try to avoid all-nighters when papers & exams come up. If she has the will, she will prevail. Best wishes for a happy, healthier New Year! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 12/27/2007 12:33 PM (GMT -7)   
If she's underweight, she needs weight training to put on healthy weight (increased muscle mass) more than she needs cardio which could actually cause her to lose more weight. A weight training program will also combat the bone loss that comes with steroids. The round face and changes in body shape are steroid weight gain and are not a good thing. Check out the book Coping with Prednisone: It May Work Miracles, But How Do You Handle the Side Effects to learn what you can do to limit the unhealthy side effects of steroids.

http://www.amazon.com/Coping-Prednisone-Miracles-Cortisone-Related-Medicines/dp/B0002Y6AEO/ref=pd_bbs_sr_1?ie=UTF8&s=books&qid=1198783928&sr=8-1
 
I tend to disagree with Old Hat about returning to college. I would think it's more important that she get her UC under control and achieve remission or at least a state of better health before returning to college where there will probably be stressful classes and exams, late nights and unhealthy food. Health has to come first. College can wait. I actually had to drop out a semester for a killer case of mono (prior to my UC dx). At the time, I saw it as the end of the world, but it wasn't. I was able to make up classes at summer sessions and still graduate on schedule.


Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 

Post Edited (princesa) : 12/27/2007 12:41:43 PM (GMT-7)


gaff
Regular Member


Date Joined Jul 2006
Total Posts : 442
   Posted 12/27/2007 3:11 PM (GMT -7)   
I had pain that was up high when I was on 12 Colazal a day. Once I reduced it, it went away. Just A thought!
gaff
left-sided UC since 11/05
 Rowasa, Colazal, Calcium, Centrum
Natren Healthy Trinity Probiotics

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