Have to vent (Prednisone)

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sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 12/27/2007 1:47 PM (GMT -7)   
I am getting a bit depressed. I know that there's no way of realllly avoiding moonface with prednisone. I've been on it about 2 months now. Started at 40 mg... now down to 20mg for another week or so..  
 
I don't know if it's anyone elses experience, but I honestly think that along with moon face... there's a MOON TUMMY too. I swear that my stomach is double its size. None of my clothes fit... I actually broke the zipper of my pants the other day. I felt so upset. It's affecting my intimate relationship with my hubby because I don't feel good about myself. I eat pretty darn good too... so that's not why I'm gaining weight. It's the pred.
 
I think my worst moment was yesterday. I went to the dr because I wasn't feeling good... and went to go get prescriptions filled. I used to work at the Rite Aid where I go to the pharmacy. One of the people that I used to work with asked me right when she saw me... "are you pregnant?"  I think my jaw must have dropped or something... but I explained about the meds. I just think that I can't get over someone thinking I'm pregnant..its so upsetting.
 
Anyone feel depressed bout the weight the gain on this thing? Even though they know it'll go away once off of it?
Kara, 20
Diagnosed with Ulcerative Colitis March, 07
-Left sided all the way up
-Was on Colazal..it didn't do anything for me. Had horrible flare up...been on lialda and pred since. Seems to be working!
Medications: Colazal 3 pills 3x a day
                  Prednisone - 20mg in the morning w/ food.
                  Lialda - 2 pills in the morning w/ food.


WhiteSox1
Regular Member


Date Joined Oct 2007
Total Posts : 135
   Posted 12/27/2007 2:20 PM (GMT -7)   

Man, do I understand what you're saying.

I've gained 50 pounds since I've been on prednisone and I can't stand it.  In my entire life I have never been this big and yet here I am.  Gave up meat, caffeine, alchol, you name it to try and be healthy and yet I still gained a ton of weight.  I don't not feel confident about myself at all at the moment.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 12/27/2007 2:27 PM (GMT -7)   
Hi Kara,

I am right there with ya! Though, I had wanted to lose weight before going on the pred. I was on 60mg a day for 1 month and have been on approx 50mg a day for almost 3 months. I have moonface, moon-neck, moon-belly, zits, a fu man chu mustache (just waxed that), my eyebrow hair is growing longer and darker and now have hair above my eyebrows going up to my hairline I have put on 12 pounds and I am so depressed about it. Plus I booked a vacation hoping I would be off the pred and it's 4 months away but I don't know if I will be off it or not now and I will look terrible on vacation and feel terrible and I am bloated, oh so bloated and generally uncomfortable in my own skin. And that is not even going into my muscle cramps and my general blah feeling about everything and everyone. I will commiserate anytime about the side effects of prednisone and the worst thing is I think I am steriod resistant so I think I went/am going thorugh all of this for NOTHING! I am on the pred for my kidneys not my UC and will know Jan 10th if I will be on the pred still or will begin to taper and the next step drug I will lose my hair.........I just can't win!!

Sorry you have to deal with all this too! It sucks!
Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 12/27/2007 2:35 PM (GMT -7)   
thanks guys... it feels good to have people that understand what i'm going through.

I'm sorry you guys have to go through this too. Beth... i wish there was somethin i could do for you... i definitely know that... i just can't win feeling. Actually it almost seems like there will never be a time when it all just goes away and we have one day of just everything feeling good.. no problems... and no sickness. It's like.. the second we help one part of our bodies... another part starts to hurt... i keep tellin everyone i feel like im a 90 yr old lady lol.

Is there anything they can do for your kidneys other than pred... cuz if you're resistant and you truly are doin this for nothing... that SUCKS to high heaven.

I feel thankful reading your thing though that I haven't acquired the hair problems... other than my hair used to be really thick and now its so thin i cant keep clips in it.

I am breakin out constantly though from pred.

I think knowing that once this is over ill lose some of these problems helps.... but its still really depressing knowing i cant control how bloated i am. I just feel so unsexy.
Kara, 20
Diagnosed with Ulcerative Colitis March, 07
-Left sided all the way up
-Was on Colazal..it didn't do anything for me. Had horrible flare up...been on lialda and pred since. Seems to be working!
Medications: Colazal 3 pills 3x a day
                  Prednisone - 20mg in the morning w/ food.
                  Lialda - 2 pills in the morning w/ food.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 12/27/2007 2:51 PM (GMT -7)   
I have to be on the pred for 16 weeks before they consider it a 'failure' (that 16 weeks is up Jan 10th on my next appt) then the next step I think is cellcept but will see what the Nephrologist says. I am okay, I just needed to vent a little......guess I am glad it's winter so my hot flashes are not so bad, right......I can be thankful for that at least!
Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 12/27/2007 4:07 PM (GMT -7)   
My mother asked me if I was pregnant when I had ongoing abdominal bloating. This wasn't from pred; rather it was from letting my eating get off track with too many sweets. Cutting way back on the sweets and getting on Natren's probiotics has made a huge difference for me.
 
You do have some control over the moon face, weight gain and water retention of pred. Check out the book Coping with Prednisone: It May Work Miracles, But How Do You Handle the Side Effects?
 
 
The keys are a healthy, low sodium diet, drinking plenty of water (which actually helps reduce water retention), getting regular exercise, etc. You might ask your doctor about putting you on a diuretic for a short period of time, too.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 12/27/2007 5:27 PM (GMT -7)   
The most common documented side effect of steroid is increased fat deposits in the face and abdomen. Controlling salt and calorie intake will help, but even on a normal amount of calories, the fat will tend to migrate from other areas to your face and belly. Once you go off the Pred, this effect will go away.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine and Remicade.
In remission since April, 2006. Remicade has been my wonder drug.
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 12/27/2007 6:56 PM (GMT -7)   
I have another set of clothes - my fat clothes - for when I'm on pred! Not only does the abdominal swelling from the inflammation make things rough, then you add pred to the mix and BAM! none of the clothes fit :( I called it my spare tire. At least if I had a flat, I was covered, right??? sigh...

Not only does the pred give you that water weight, it reeks havoc with your emotional well being too! So add the pred depression to the moon face, spare tire, and not feeling well, it's no wonder you're feeling down in the dumps...
 
Then for someone to be so rude and ask if your pg!  They need a lesson from Emily Post.

Try to do things that make you happy! Make sure to get your hour of sunlight each day to keep feelings up. Exercise helps boost those endorphins too. And trust your hubby! If he still thinks sexy thoughts about you, it must not be bothering him as much as it bothers you. Sometimes a romp in the hay has a way of boosting endorphins too. I just make sure the lights are off ;-)


Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Forvia and a Probiotic
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 12/28/2007 3:01 PM (GMT -7)   
dakota... your post made me feel so much better thanks!!! it made me smile... specially the last sentence *hugs*
Kara, 20
Diagnosed with Ulcerative Colitis March, 07
-Left sided all the way up
-Was on Colazal..it didn't do anything for me. Had horrible flare up...been on lialda and pred since. Seems to be working!
Medications: Colazal 3 pills 3x a day
                  Prednisone - 20mg in the morning w/ food.
                  Lialda - 2 pills in the morning w/ food.


Hobo
Regular Member


Date Joined Jan 2006
Total Posts : 187
   Posted 12/29/2007 11:29 AM (GMT -7)   
I've gained 35lbs on Prednisone.
I'm not happy about it.

~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 12/29/2007 11:00 PM (GMT -7)   
I totally understand!!   I just finally finished my pred taper.  I was on high doses of pred for a good month,  then in the hospital was on high doses of IV steroids,  then out of the hospital on a pred taper.   My moon face is sooooooo  unattractive.   I hate the pics of me taken on christmas,  talk about a "fat mama".   I have so much fat on my cheeks and my chin!!    i have always had some abdominal fat,  at least since having my kids, so thats not new for me.  But I think I gained back all the weight I had lost with being so sick.   But now I was hoping to start exercising after being off the steroids,  but now I have so much joint pain and fatigue from my "anemia of chronic disease",  its hard to get going on an exercise program.    Oh well,  I will try to soon I guess, maybe it'll be my new years resolution!  :o) 
                                          ~Christie
40 yo RN, happily married, with 2 beautiful daughters, Tianna(14 yo) and Alyssa(10 yo).   Diagnosed L sided Ulcerative Colitis in Jan '04 and Diabetes type 2 in June '05.
                                         Medications
Remicade infusions ~ 11/6/07, 12/6/07, 12/20/07,  6-MP 100mg daily, Pentasa 500mg twice a day, prednisone 20mg 10mg 5mg daily, Nexium 40mg twice a day, Lantus insulin 45 35 units daily, Novolog 10 8 units with sliding scale at meals, Amaryl 2mg daily, multi-vitamin daily, Calcium daily, B complex vit daily,  and pro-biotics daily.


Smithson
New Member


Date Joined Jan 2008
Total Posts : 5
   Posted 1/5/2008 7:06 PM (GMT -7)   
I'm on pred for 10 weeks now and hate the moon face and also particularly the abdominal distension as well. It bothers us men as well!
37 year old male
Diagnosed ?UC 2003 on hospital admission but found to have campylobacter and treated successfully.
No symptoms until Spring 2006 - treated with prednisolone and mesalazine
2007 - only 2 months in Summer without symptoms, on 2g twice a day of mesalazine, just finishing 10 week course of prednisolone and just starting 6 MP (didn't tolerate azathioprine due to nausea), mesalazine suppositories and prednisolone enemas. Also take probiotics.
Stopped smoking 2005.
Ulcerative procitis is still flared-up.


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 1/5/2008 7:17 PM (GMT -7)   
I've been on varying doses of Pred for a long time, April will be two years. I am on 40 mg now, have gotten as low as 5 mg every other day, but got horribly ill and had to go back on. When I got ill I lost all the weight I had gained on the Pred and then some, but I've gained back 7 lbs in two weeks and am already 3 pounds over my ideal weight and trying so hard not to over-eat, but I am ravenously hungry all the time. I mean, I can eat like a truck driver and within twenty minutes my stomach is growling.

I was hoping that being on Remicade would get me off the Pred, going back to my GI Jan 21, so hopefully I'll be able to start weaning off again.

One thing I can tell you is that anti-depressants and anti-anxiety meds help with a lot of the other side-effects, not the weight gain and moon face, but the agitation, the b****iness and sleeplessness. I am on 10 mg of Lexipro to help with depression caused by the chronic illness and some other rather stressful issues going on in my life. I take Xanax as needed. Most nights I take a couple of Tylenol PM to help me sleep, sometimes followed by a Xanax chaser which does the trick if the Tylenol PM isn't enough. Getting enough sleep helps a lot. It also helps that this time of year the whole darn world is on a diet ;-)

Meesh
Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97;
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, was almost off, back to 40 mg; 12/1/07 - 12/29/07 weekly Venofer (iron sucrose) injections; 9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal three 750 mg capsules 3X day; Bad reactions: Imuran( 2/07)

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