HELP!!! Questions about UC and getting pregnant

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Maureen4RU
Regular Member


Date Joined Dec 2007
Total Posts : 42
   Posted 12/28/2007 7:38 AM (GMT -7)   
I have had UC since I turned 18-I am now 25. I was first put on Asacol for a few months and then my doctor switched me to Colozal (9 pills a day). I had my first flare up in 4 years back in June and became extremely sick. I believe it was due to the stress of planning my wedding, buying a house, and finding out my dad has cancer. However, things have since calmed down and I am much better. My doctor has since changed my medication to 12 pills of Colozal a day and 3 pills of Entocort a day.
 
My husband and I are ready to start trying to get pregnant and I don't know how these medications will affect my baby if/when I get pregnant. Does anyone have any advice for me??? My doctor is on vacation for the next week and I would really like to know what others have experienced with this. Please help! I hate feeling like I am in the dark about this.
 
Thanks so much!!!

kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 12/28/2007 8:06 AM (GMT -7)   
Hi Maureen, welcome to healingwell!

My husband and i are looking into this subject as well. Last year I went to a symposium and got a lot of great info. Here is the link to some notes to copy and paste. http://www.healingwell.com/community/default.aspx?f=38&m=753635

The meds you are on are considered safe for pregnancy. It's when you get to imuran and remicade that the studies get really fuzzy. Even low doses of prednisone are considered ok. I am looking into a high risk obgyn to work with my GI when we are ready.

There are a lot of women here who have had healthy babies while on meds, i'm sure they will chime in.

Good luck!
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, 15 mg pred. until immuran kicks in...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07
Prontonix once daily for acid reflux, zofran twice daily for nausea


texasyankee
Regular Member


Date Joined Dec 2007
Total Posts : 28
   Posted 12/28/2007 8:11 AM (GMT -7)   
Maureen

I had extremely active left sided disease when I was in my 20's. I took prednisone to get it under control, went off, got pregnant 12 months later with the help of chlomid. My baby was very healthy and I had no symptoms using no meds for almost 2 years between the pregnancy hormones and then the nursing hormones. I was able to conceive naturally for my second child and experienced the same remission during that pregnancy. My condition seems to really be affected by my fluctuations in hormones. Pregnancy, with all it's increases kept me feeling great. Post 40 dips in estrogen are wreaking havoc. I am sorry I can't weigh in on the meds you take. Best wishes to you for feeling GREAT during your pregnancy.
DXed with left sided UC in 1983 at 20 years of age
-Used prednisone for long periods in the early years (1983-1992) which resulted in severe osteoporosis
-remission through two pregnancies 1993/94 and 1996/97 no meds taken other than prenatal vitamins
-flare in 2000 didn't respond to methasalazane supps or enemas tried methatrexate; mostly in remission for 7 years
-July 2007 new flare with additional never before seen symptoms.....hormone related?, not responding to meds
 
 
 


Maureen4RU
Regular Member


Date Joined Dec 2007
Total Posts : 42
   Posted 12/28/2007 8:13 AM (GMT -7)   
kb5 said...
Hi Maureen, welcome to healingwell!

My husband and i are looking into this subject as well. Last year I went to a symposium and got a lot of great info. Here is the link to some notes to copy and paste. http://www.healingwell.com/community/default.aspx?f=38&m=753635

The meds you are on are considered safe for pregnancy. It's when you get to imuran and remicade that the studies get really fuzzy. Even low doses of prednisone are considered ok. I am looking into a high risk obgyn to work with my GI when we are ready.

There are a lot of women here who have had healthy babies while on meds, i'm sure they will chime in.

Good luck!

 
Kelly,
Thanks so much for the welcome and for the reply! I had no idea that websites such as this one even existed! I just happened to come across it when trying to do some recent research. I will definitely check out the site you told me about. I really appreciate your advice. Good luck!

Maureen4RU
lived with UC for 7 years
Colozal (12 pills a day)
Entocort (3 pills a day)


momhatesuc
Regular Member


Date Joined Sep 2006
Total Posts : 78
   Posted 12/28/2007 8:41 AM (GMT -7)   
I have a lot of experience with this since I have a 1 year old and a 2 year old and a very stubborn case of UC.  The medications you are taking are considered safe during pregnancy.  I took asacol, rowasa enemas, cortenemas and prednisone at different times to control flares during my pregnancies.  Most people will tell you it is much more important to keep yourself healthy than to worry about those specific drugs.  I had no problems or complications.  I'm sure you'll be fine :)  Best of luck to you and keep us posted!
Leslie, 30~ left-sided UC diagnosed in 1999
9 asacol x day
nightly rowasa (as needed)
multi-vitamin, calcium


Maureen4RU
Regular Member


Date Joined Dec 2007
Total Posts : 42
   Posted 12/28/2007 8:45 AM (GMT -7)   
Thanks so much for the quick responses! I really appreciate it! :)
Maureen4RU
lived with UC for 7 years
Colozal (12 pills a day)
Entocort (3 pills a day)


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 12/28/2007 8:52 AM (GMT -7)   
Hi - Welcome to HealingWell.

I am currently pregnant with our first child (32 weeks) and have taken Asacol and Rowasa throughout the pregnancy. I had a flare during my first trimester and ended up on a short taper of Prednisone, which pushed me back into remission. According to my GI, high-risk OB and my own independent research, Asacol, Rowasa and Prednisone are all safe for use during pregnancy. They don't cross the placenta, so they do not affect the baby at all.

As for Entocort, I would encourage you to research its use during pregnancy. Both my OB and GI have stated that it should not be used during pregnancy, as it can cause certain birth defects. I never researched it on my own, since it wasn't a necessity for me, so I went with their advice. Both were pretty adamant about it.

My best advice would be to find yourself a high-risk OB and have a consultation visit with him or her. You should also have a visit with your GI to talk everything through before you conceive. Make sure that your OB and GI can and will work together. Communication between the two of them is an absolute must. Also, make sure that your OB has dealt with Crohn's and/or UC patients before. It is important for him or her to understand your medical needs (including c-section vs. vaginal delivery) while, at the same time, ensuring that you have a healthy pregnancy.
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)
- Iron (2x per day)


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/28/2007 1:39 PM (GMT -7)   
I personally would not take Prednisone while pregnant wheter or not it is supposedly safe. There are different drug classes which help determine their safety during pregnancy. Talk to your doctor before jumping into anything. I just read expecting's post, I agree 100% with what she says. You have to work with the two doctors. I would say if you are feeling well enough and the doc gives you an ok, do it now. I had 2 boys young and I am glad I didn't wait because I have gotten worse and won't be having any more kids. It can be hard when your kids see you sick if you are flaring and when you need extra help from family or things but I think it helps the children be more sympathetic and helpful. My 6 year old brings me tiolet paper from the other bathroom or vasaline and stuff when I call him for help. My 3 year old is with me at doctors so much, he is fascinated in the human body and I am praying he will be a GI doctor one day and help me! Some people go into remission with pregnancy, you never know. I hope you can work everything out with your doctors and you will have a healthy baby someday soon.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade,ulcer shrunk in 3 months August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis? & Fibromyalgia Current meds: Remicade 700mgs every 6 wks ( had a reaction will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Back to Prednisone again :( for joint pain


macgrl
Regular Member


Date Joined Nov 2007
Total Posts : 26
   Posted 12/28/2007 7:02 PM (GMT -7)   
I am also currently pregnant (22 weeks) with my first child. I'm also newly diagnosed with UC (July 2007). I've been flaring pretty much since late September/October, so I've been on various forms of Salofalk (pills, supps, enemas) and various levels of prednisone. I actually just ended up in the hospital for 3 days over Christmas when a liquid diet and 50mg of prednisone failed to get my flare under control. They put me on IV fluids and IV steroids (similar to prednisone - same risk) and everything is FINALLY under control!!! I totally understand your concern because I have no clue what the effects will be on my little one. But like someone who previously posted said, apparently the risks of the drugs are low compared to the effects of a flare (preterm labour). So I'm keeping my fingers crossed, trying to stay as healthy as possible, and working together with my GI, OB, and a dietician. By the way, everything seems to be okay with her so far. I'm gaining the right amount of weight and she's growing well and moving around lots every day! I'll be sure to let you know how things go for the remainder of the pregnancy and hopefullly I'll have a healthy baby girl to tell you about by the beginning of May!
----------------------------------------------------------------

Diagnosed: July 2007
Pregnant: Due 05/2008
Meds: mesalamine, 40mg prednisone,
Other: prenatal vit., probiotics, calcium, fish oil.


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/28/2007 7:44 PM (GMT -7)   

I forgot to add that you should start taking Folic Acid supplements right now, many UCers are low in Folic Acid and it effects the baby's brain and spine.

For Macgrl, have you ever tried not taking the fish oil or probiotics?  I found that they caused me to flare rather than help.  ...Just wondering...


Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade,ulcer shrunk in 3 months August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis? & Fibromyalgia Current meds: Remicade 700mgs every 6 wks ( had a reaction will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Back to Prednisone again :( for joint pain


SnookieBow
Regular Member


Date Joined Mar 2007
Total Posts : 79
   Posted 12/29/2007 10:22 PM (GMT -7)   
I don't want to scare you, but this was my experience. I was diagnosed with UC in Sept 06. The dr put me on Dipentum and Entocort . I accidently got pg in Oct. 06. I immediately quit taking the meds the beginning of November. I had a miscarriage in December 06. My new GI said that Asacol is safe during pregnancy.
I wouldn't trust Entocort. I believe that is why I had the miscarriage.
I would definitely talk to your doctor.

snookiebow
UC First flare:  August 2006, diagnosed September 2006-
Dipentum and Entocort September and October 2006- now trying Asacol
Garden Of Life:  Primal Defense, Digestive Enzyme, and FYI
Glutamine Caps, DHEA,  vitamin E, Capryl, Turmeric & Bromelain
Omega 3- Fish oil, Biotin, Cal-Gel
Occasional  Vitamin E enema &  Rowasa enema
AloeVera juice


macgrl
Regular Member


Date Joined Nov 2007
Total Posts : 26
   Posted 12/30/2007 2:48 PM (GMT -7)   
Just wondering why everyone takes fish oil to begin with? I started taking it on the advice of a naturopath (before being officially diagnosed with UC) and have continued to take it (off and on) for the baby's brain development. What are the other benefits? As for the probiotics, I started taking the primadophilus reuteri (1/day) after reading a thread here on healingwell.com about great success people had with them. Do people usually just take them when they're in remission?
----------------------------------------------------------------

Diagnosed: July 2007
Pregnant: Due 05/2008
Meds: mesalamine, 40mg prednisone,
Other: prenatal vit., probiotics, calcium, fish oil.


roxZ
Regular Member


Date Joined Sep 2007
Total Posts : 21
   Posted 12/30/2007 4:04 PM (GMT -7)   
I took both colazal (9pills daily) and entocort (3 pills daily) as well as 20mg of prednisone throughout my entire pregnancy and I have two healthy baby boys.  (Twins)   I hope this helps you.
Vikki, 28
dx with ulcerative colitis at age 16
prednisone 20 mg, colazal, entocort ec

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