I looked on the CCFA website for physicians. There is no pediatric GI in AK listed but there is a Dr.
Richard Farleigh in Anchorage. Is that close to you? Maybe your son's doctor can recommend a regular (adult) GI to go to. I think I would look for a GI doctor (with a good bedside manner and up-to-date information) rather than a pediatrician.
By the way, my daughter's pediatric GI is not on the CCFA list but I think he is terrific. However we are in New York and the monthly trip from Alaska to New York would be just a bit much!
Sorry your son is still not in remission. I hope you find the right mix of whatever he needs to get him there.
--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday, 35 mg prednisone, 2 tabs 6-mp
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone.