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hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 12/28/2007 1:48 PM (GMT -7)   
Hello - My doctor put me on asacol initially and I got a little better but not really. I didn't go as much and I didn't see very much blood but I started to have stomach pains sometimes which I never had before. So then he put me on Entocort which made me feel better than I had in years and within hours of taken the first dose. So I have been taking both and he said to do this until the middle of February. So I was fine for around 20 days. No I was perfect! Now I'm back to where I started and I'm in the bathroom at least 10 times a day. And my house is full of relatives! This has been going on for two days. My question is do you all think the asacol is the problem? I read that steroids induce remission but don't keep you there so maybe the asacol is not working or maybe the entocort just isn't working anymore because its been too long? I did have two cigarettes for the first time in a couple of years with my little brother so that might have made me sick - but I thought smoking was okay? The doctor gave my a choice of starting entocort or moving my dose of asacol up or trying something else similar to asacol. Now I wonder if I should try taking more asacol, my appointment isn't until February and my doctor is really hard to get an appointment with but I like him so I don't want to go somewhere else.

And I was really really hoping I would be in remission for a year - or at least a few months!!!!!!
Jessica 26/F
Asacol 2pills/ three times a day
Entocort EC 9ml/day


quincy
Elite Member


Date Joined May 2003
Total Posts : 29852
   Posted 12/28/2007 1:55 PM (GMT -7)   
Hi...smoking is really never OK...
 
Is your UC throughout your colon or limited?  You could add where it is into your siggie so we don't keep asking you.  It is an important bit of info for many of us.

You should be on rectal meds Jessica....call the doctor for a prescription. Ask him what he thinks you should be on...either the 5ASA retention enemas(Rowasa or if you're not in the US..Salofalk), or steroid enemas.

You're not on a high dosage of Asacol, it could be that you're not on enough. I don't know if the Entocort gets through the whole colon...much do some reading.

Rectal meds to start at least.

It's unfortunate you're feeling crappy....but 'tis the season with the added stress (subjective) that we have on us for whatever reasons.

Hang tough...call for the rectal meds before upping/changing any of the oral meds.

quincy


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 12/28/2007 6:34 PM (GMT -7)   
I know the UC isn't throughout my whole colon but I'm not sure what part it is. My doctor told me Im sure but I don't remember. I was just recently diagnosed. I am planning on asking him during my next visit. He said that it was a mild case and he thought the colitis was from something else until he got the biopsies back. It doesn't feel like a mild case to me!
Jessica 26/F
Asacol 2pills/ three times a day
Entocort EC 9ml/day


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 12/28/2007 6:49 PM (GMT -7)   
I echo quincy that smoking is never ok. But, as for UC, as agree with quincy that you could up the asacol (I am on 12, which is highest allowable dose) or you could look into rectal meds. But, your symptoms should not be returning if you're on steroids. You need to see your GI as soon as you can, as you want to get the flare under control before it can get worse. Flares are harder to control the longer they continue untreated, so you need to see your doctor. occasionaly there are people whose UC just doesn't respond to steroids, so you may need a higher dose of steroids. I don't know the entocort dosing schedule, as I have only ever been on prednisone. good luck, and don't put off seeing your doctor. feel better soon and don't worry, the first flare is the hardest to control. it will get better once you find the right drug therapy.
29/Female/NC
Pancolitis dx 3/07
12 Asacol/day
150mg Imuran/day (steroid dependent)
Various vitamins, a probiotic and fish oil.

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