Posted 12/29/2007 2:10 PM (GMT -6)
Hi PLEASE - the doctor is right that this forum suffers from "selection bias," meaning that the population who posts on this forum is very skewed and not representative of the illness at large. those of us writing are writing because we're struggling. those people who aren't struggling are just out living, even though they have UC, so they aren't writing. you have to remember that there are tens of thousands, even hundreds of thousands people with this disease, and probably only a few hundred on the forum. so most people are out and about and well, and the stories you hear here do not reflect all those many many people doing fine. rest assured that your daughter will do ok. I am relatively young, recently diagnosed, and also still sorting out my medical therapy, so my mom worries a lot too. but, finally my mom understands that the worst case scenario is loss of the colon, and that in the big picture that really isn't that awful. I mean, it would be a hard adjustment, but she knows I would adjust. this isn't terminal or fatal, rather just a lousy disease that requires lifestyle changes. but your daughter doesn't have pancolitis, she has left-sided, so that;s good, as that is a slightly less severe version of the illness. just give yourself and her some time for it to set in and remember the posts here are not the norm. but I will add that when my mom was freaking out about my diagnosis I was much more stressed and upset than when she was calm about it, so I strongly suggest you show a tough face in fron of your daughter, as it is so much harder to eb the child when the parent is upset. this will get easier.