Has anyone here had a Rectal Resection? or a resection?

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princesscolon
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Date Joined Apr 2006
Total Posts : 733
   Posted 12/29/2007 9:39 PM (GMT -7)   
I haven't even tried the Humira yet, but my doctor said if it doesn't work out, he wants to try a rectal resection before doing the illeostomy.  I just am looking for anyone who has experienced this and how did it work out for you?  How severe was the surgery?  I am trying to be hopeful about Humira, but just want to be informed about the resection.  Thanks.
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade,ulcer shrunk in 3 months August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis? & Fibromyalgia Current meds: Remicade 700mgs every 6 wks ( had a reaction will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Back to Prednisone again :( for joint pain


suebear
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Date Joined Feb 2006
Total Posts : 5698
   Posted 12/30/2007 6:16 AM (GMT -7)   
I would be very leary to try a resection for UC.  Is this a recommendation from a CR surgeon or from your GI?
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 12/30/2007 7:03 AM (GMT -7)   
Why is he jumping to surgery so fast - you haven't even tried Imuran or 6mp yet?

KTM


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted 12/30/2007 7:54 AM (GMT -7)   
My understanding is that good CR surgeons will not do a partial colectomy on UC patients. This because the disease inevitably recurs in the remaining section of the colon, and requires more surgery. If you're considering surgery, be sure you get opinions from a couple of qualified CR surgeons. I'm doubting that they'll recommend rectal resection or partial colectomy.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Intolerant to Asacol and rectal mesalamine preparations.
On Prednisone then Entocort 2001-2006 with only short periods off. 
Current meds are Colazal, Azathioprine and Remicade.
In remission since April, 2006. Remicade has been my wonder drug.
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/30/2007 4:33 PM (GMT -7)   
This was a recommendation from my GI since I only have the one ulcer in my rectum and he is afraid it will preforate. He said first to "see what happens" with the Humira. If it doesn't work out, he would like to try to remove the ulcer and reconnect it and just "see what happens"... He said it is likely a new ulcer could develop there, but he could give it a try before the illeostomy. He said the resection is a lot easier than repairing a rectovaginal fistula...
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade,ulcer shrunk in 3 months August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis? & Fibromyalgia Current meds: Remicade 700mgs every 6 wks ( had a reaction will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Back to Prednisone again :( for joint pain


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/31/2007 6:07 AM (GMT -7)   
I would not let your GI make surgical decisions for you, they are trained to treat problems with drugs, not to make decisions regarding surgery. Having a resection (if you could find a surgeon who would agree to it) is only postponing the inevitable if you have cycled throught all the UC drugs. Your best choice is to consult with a surgeon to see what his/her opinion is on a resection. The few people I have met who have had partial surgeries have all had to go back for the entire surgery at some point. Partial surgery does not end the misery.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/31/2007 7:38 AM (GMT -7)   
Thanks for the replies. I guess that is my biggest concern, going through the surgery and recovery with my 2 young boys, and ending up having to get more surgery anyways. I really want my rectum ripped out, as crazy as that sounds! I have had so much trouble and pain from it. I wish the colon didn't have to come out too since it looks so healthy, that sneaky, lousy colon of mine!
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade,ulcer shrunk in 3 months August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis? & Fibromyalgia Current meds: Remicade 700mgs every 6 wks ( had a reaction will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Back to Prednisone again :( for joint pain


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/31/2007 7:45 AM (GMT -7)   

I was in a similar situation, my disease was limited to my rectum.  The colon appeared fine.  But both had to go in order to give me a better chance of living healthy.  I also know how hard these decisions are and think you are wise to do your research.  You will know when it's time for a change.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 

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