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FRIESGIRL1979
New Member


Date Joined Dec 2007
Total Posts : 3
   Posted 12/29/2007 10:59 PM (GMT -6)   
HI, I AM A NEW MEMBER HAVING EXPERIENCED THE LOVELY GOODPASTURES SYNDROME. I WAS 26 AND WAS FINE. ONE DAY MY MOM SAYS SHE IS COUGHING UP BLOOD AND HAD DONE THE SAME THING A COUPLE OF DAYS BEFORE. HAVING TOLD HER WHAT WAS GOING ON I WENT TO THE DR. OF SOURSE I HAD NO INSURENCE AND THE DR SAID TO WAY TILL THEY WERE ABLE TO DO A BRONCHOSCOPY. WELL, I COULDN'T WAIT THAT LONG. SUNDAY AFTERNOON, I GOT VERY SICK, COULDN'T HOLD MY HEAD UP. AT THIS TIME ME AND MY DAUGHTER WHO WAS 5 AT THE TIME WERE, AS I SAY NOW LUCKY, WERE LIVING WITH MY PARENTS. MY MOM TOOK ME TO THE HOSPITAL AND AFTER SOME BLOOD WORK THAT I DON'T REMEMBER HAVING, THE ER DOCTOR DECIDES THAT I NEED TO BE TAKEN TO THE NEAREST MORE UPDATED HOSPITAL. I WAS ADMITTED INTO ACUTE CARE AND HAD NO CLUE WHAT WAS WRONG WITH ME. SEEMS LIKE ALL I WAS WORRIED about WAS MISSING MY DAUGHTERS FIRST DAY OF KINDERGARDEN WHICH I ENDED UP DOING. I HAD 2 BLOOD TRANSFUSIONS AND LATER AN open LUNG BIOPSY AND WAS DIAGNOSED WITH GPS. 2 WEEKS IN THE HOSPITAL, 15 PLASMAPHERESIS TREATMENTS, CYTOXAN, LOADS OF PREDINOSONE, AND about 140 POUNDS TO GO WITH ALL OF THAT, I'M DOING GREAT, OTHER THAN THE PROBLEMS I HAVE WITH MY JOINTS AND BONES FROM ALL THE PREDINOSONE. I AM NOT CURRENTLY ON MEDICATIONS. I JUST WORRY IF THIS WILL EVER COME BACK, GOSH I HOPE NOT. THE PART WHERE I HAVE BEEN LUCKY IS THAT I HAVE NO KIDNEY DAMAGE. REALLY, THE DRS STILL DON'T KNOW IF I HAVE GPS OR WEGNERS, ISN'T THIS CRAZY! BEST OF LUCK TO EVERYBODY WHO HAS DELT WITH THIS SICKNESS. :-)
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