Welcome to the crowd. My son was diagnosed over a year ago with severe pancolitis. When doc first dx'd him, he said no problem, he'll just take a couple pills a day and be on the road to recovery in no time. He did forwarn us though that there are a few rare instances where some of these kids can take longer than a year to get into remission. Well here we are and into some of the stronger meds available for kids now. There have been many days he didn't make it through school and times he was on the verge of being hospitalized because he just lost too much blood and diarhea and had no strength to do much more than get out of bed. But I will have to say that overall there is improvement compared to some days he's had. But the way we see it, if they can't get this thing under control there is always surgery, and then he's cured! No more 15 pills a day for that pore kid!
As far as the bathroom goes he's had periods with upwards of 20 BM's a day. The nurse has been informed of this problem and gets him back into class or calls if it gets too bad. If you have a good relationship with your employer I would encourage you to discuss with them the fact that you could potentially miss some work. As a business owner myself, it would certainly come across better than not showing up.
And son tells me that he certainly has noticed stress is a contributing factor to the amount of bleeding. And this doesn't just consist of stress from a bad day, but also stresses on the body like lack of sleep and colds.
Take care of yourself and hold your head high!
Christine, Mother 34, of 13yo boyDiagnosed October 2006 Severe Pan Ulcerative Colitis
Meds: Colazal 750mg x 9, 6-MP 50mg, Vit D 400iu, Vit C 1000mg, Iron 50mg, Remicade 3rd infusion, Laughter
Prior Meds: Asacol, Prednisone, various antibiotics, homeopathics, special diets